g6pd Deficiency Foundation

04/07/2026

ALL BABIES DESERVE THE GIFT
of KNOWING IF THEY ARE G6PD DEFICIENT!

April 8th 4-6PM EST
Massachusetts NB Advisory Board
will discuss G6PD deficiency universal screening for newborns.

Come join and listen ...

We just received this information for Wednesday meeting. You do not have to participate... just listen and support the event would be beneficial. Thank you to those who registered to speak.

The direct link to join meeting: https://zoom.us/j/98630590781?pwd=zNHUB40FjYBbOWERGrw3opaDtJY6dr.1

Feel free to pass the word about the meeting and the direct link.

I'm sorry but I do not know exactly when we will be presenting but it appears the later part of the meeting.

AGENDA LISTED
Welcome & Introductions
1/14/26 Meeting Minutes Review and Vote for Approval
Chair’s Update
NBSAC retreat (In-person) Re: Possible update to the guiding principles.
Periodic Review of Mandated Conditions for Continued Efficacy:
A formal process to re-review mandated conditions.

Glucose-6-phosphate dehydrogenase (G6PD) deficiency (Presentation by Sarah Milburn, MD & Keely Harris)

Listening Session:
20-minute public comment period. Members of the public are invited to share comments or make brief presentations of no longer than 3 minutes.

Please pre-register your participation by emailing [email protected] no later than 5:00 pm on Tuesday, 4/7/26. The moderator will call on individuals who register to share comments in the order in which those registrations are received.

03/24/2026

This group exists because G6PD deficiency can feel confusing, isolating, and overwhelming, especially at the beginning.

Whether you’re a parent of a newly diagnosed baby, someone living with G6PD yourself, or a provider supporting families… You belong here.

This space is for:
✔ learning
✔ sharing experiences
✔ asking questions
✔ supporting each other

Over the next few weeks, we’ll be sharing helpful posts about screening, triggers, feeding, jaundice, and everyday life with G6PD.

Tell us below:
How did you first learn about G6PD deficiency?

06/13/2025

🏌️‍♂️Calling All Golfers! Join Us for a Great Cause!⛳️

Come swing your clubs at our G6PD Deficiency Foundation’s 9 Hole Golf Tourney & Celebration – a fun event to raise awareness and support for G6PD Deficiency!

📅 Monday, June 23, 2025

📍 E. Donald Conroy Golf Course, Babylon, NY

🕗 Only the 8AM shotgun slot is still available! All others are SOLD OUT!

🍻 Post-Golf Celebration at Lily Flanigan’s Pub: 2PM–5PM

🎟️ Includes golf, food, drinks, raffles, and more!

Grab your friends, enjoy a great day of golf, and help us spread awareness about this often-misdiagnosed condition affecting families across the world.

🎟️ Register or learn more: https://bit.ly/G64HealthGolfTourney

🌐Visit us at: G64Health.org

Together, we can make a difference. 💛

05/12/2025

🎉 Congratulations to the G64Education Team! 🎉

We’re incredibly proud of the eight high school students from across the country who came together virtually to raise awareness about G6PD deficiency, the world’s most common enzyme disorder.

Through their year-long campaign, the team educated over 100 individuals, reached out to AMSA chapters at universities nationwide, and delivered an excellent presentation at Monmouth University—earning a 4.6/5 rating for teaching effectiveness. They also launched a public awareness video and a successful fundraising drive.

Their incredible efforts earned them a $10,000 Lead4Change grant, which will support ongoing outreach and educational initiatives, including partnering with the American Medical Student Association (AMSA).

The G6PD Deficiency Foundation is proud to mentor these future leaders.

👏 This initiative is a shining example of what happens when passion meets purpose. Congratulations again to these young leaders for their outstanding commitment to health education and advocacy.

11/28/2023

Giving Tuesday: its time to support g6pd Deficiency Foundation
Read this heart warming story about two Blood brothers with G6PD deficiency.

Learn about their story and G6PD deficiency. Giving Tuesday is a perfect time to support g6pd Deficiency Foundation!

11/28/2023

https://mailchi.mp/6f956db9648a/giving-tuesday-for-g6pd-deficiency-awareness

10/16/2023

https://mailchi.mp/4a845a6d9657/pumpkin-food-4-g6pdd

g6pd Deficiency Foundation explores the facts about G6PD deficiency VS pumpkin.

10/11/2023

https://mailchi.mp/50bef0604fe7/g6pd-deficiency-foundation-2023-fall-newsletter-1

10/11/2023

Please read this important update to learn more about the g6pd Deficiency Foundation growth within the board members, Expect more of these Fall updates to follow with what we have been accomplishing while growing.

05/20/2023

Recently in Washington D.C. the g6pd Deficiency Foundation was exhibiting at a Pediatric Academic Society Symposium and was bestowed an award for promoting global education & awareness to prevent Kernicterus(brain damage).

All newborns should be tested for G6PD activity level to provide clinicians with essential information to determine whether phototherapy is needed prior to discharge.