07/27/2026
Last week was a rollercoaster. We started off last Monday at clinic with a hemoglobin of 6.2, so Jack got a unit of blood. On Thursday, we were supposed to be at clinic by 9 am, but we pushed that appointment. Jack was feeling pretty well in the morning, but by the time we headed to clinic, he was struggling to stay upright. He had to use a transport chair to get from the car to the clinic. They did his CBC test and his hemoglobin was 5.9, and the doctors think it was even lower but was concentrated. For those who do not live in the world of hematology, a normal boy hemoglobin starts at 13.0.
I stepped out of the room as our nurse Shaun was doing vitals. When I got back, he told Jack and I that his temperature was 100.8, and because Jack was neutropenic, he had to be admitted and spend at least 48 hours upstairs.
That evening, there was another 15-year old on the floor, who left us far too soon. He was a light on 11G , who always had a smile and a prank for his nurses and a week prior for Jack. Our hearts break for his Mom, Dad, Sister, family and friends. It was a sobering moment during our journey that keeps the fight we are in with Jack in perspective.
Unfortunately, one of Jacks blood cultures grew something that resembled Staph, but fortunately it seems that was a contaminated specimen and not a true positive.
We were released yesterday and are home, feeling better and resting for his friends birthday party this Friday.
Please keep our family, Gavin's family, all Pediatric cancer families and the wonderful staff at the Upstate Cancer Clinic and 11G at Golisano Hospital in your prayers.
Our GoFundMe link
https://gofund.me/a6433c4f4