Tenacious ME

Tenacious ME Tackling disabling autoimmune disease with obstinance and humor!

Infusion day for me. Not going to lie, the last month has taken a toll.  Today we get the fuel I will need to be the bes...
08/25/2026

Infusion day for me. Not going to lie, the last month has taken a toll. Today we get the fuel I will need to be the best support I can be while we focus on kicking cancer's ass.
Without it I would be exhausted and too stiff to move. With it, I can handle all of the complex situations life throws my way!
How do infusion medications help you? Let's celebrate the wins!

08/04/2026
07/30/2026
Last Friday my world flipped upside down.  My husband, my best friend, partner for life, was diagnosed with a high grade...
07/24/2026

Last Friday my world flipped upside down. My husband, my best friend, partner for life, was diagnosed with a high grade non hodgkins lymphoma. Suddenly everything changed.

After a few tense days waiting for answers and a plan from our local hospital, we were given the option to transfer to Dana Farber at Brigham and Women's. An option we were glad to take.

I've never seen the medical world move this fast. To say that this hospital is top notch is an understatement. We feel incredibly blessed to be here.

The outpouring of love and support from our family, friends and community has been overwhelming in the best of ways. We are grateful for the amazing people who have been placed on our path.

The road ahead will not be easy but we know we have the support we need to walk it. If you pray, please say a prayer for our family. If you don't, please do whatever juju you do do. Support is support and we will take it in all forms.

If you have ever wondered about how gut health impacts rheumatoid arthritis you will not want to miss this meeting!  Joi...
07/08/2026

If you have ever wondered about how gut health impacts rheumatoid arthritis you will not want to miss this meeting! Joining us is special guest and gut health expert Maureen McGarrity-Yoder PhD, RN and team. Together we will learn how the foods we eat can add fuel to the fires of ra, and more important, what we can do to stop adding fuel to that fire. See you tomorrow at 3pm ET!
Message me for the link to sign up!

07/05/2026

Happy 250th birthday to the USA 🇺🇸💕
Hope you are having a safe and happy celebration🎆🎇

07/01/2026

Patient advocacy is not just telling your doctors what you need. Sometimes it is telling lawmakers. The changes don't happen unless we speak up! Want to know how to get involved? Ask me anything!

7 years ago I advocated for a hip replacement. It changed my life. Rheumatoid arthritis had destroyed my hip, taking my ...
06/28/2026

7 years ago I advocated for a hip replacement. It changed my life. Rheumatoid arthritis had destroyed my hip, taking my mobility with it. Thanks to my amazing surgeon, Dr.Brooks, I have spent the last 7 years gaining strength and doing the things I want to, on my own two feet. Because I asked for a second opinion.
How has advocacy changed your life?

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287 Godfrey Blvd
Bangor, ME
04401

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