SITUS Foundation

09/01/2026

A Night We’ll Never Forget 📸⚾️

Thank you to and the for inviting SITUS Foundation to Strike Out the Stigma in support of mental health awareness.

Our board, friends, and family came together to support this important cause — and we had the incredible opportunity to meet Randy Foye, an accomplished athlete who also lives with situs inversus.

For our foundation, this moment was about so much more than baseball.

As a parent, I remember wondering whether my child would ever meet another person with his condition. Situs inversus is incredibly rare, and the chance to meet someone who shares this diagnosis felt almost unimaginable.

Then we met Randy.

To see someone who has lived with situs inversus, pursued an extraordinary career, and is now using his voice to inspire others was incredibly powerful. Randy, thank you for showing our community what is possible and for helping us remind families that a rare diagnosis does not have to limit their dreams.

Meeting you was a moment we—and especially our family—will carry with us for a very long time. ❤️

We are deeply grateful for your invitation, your openness, and your willingness to collaborate with SITUS Foundation to support and inspire the situs inversus community.

Here’s to striking out stigma, creating connections, and building a future where no one feels alone in their diagnosis.

Thank you, Randy. We can’t wait to see where this collaboration takes us next! ❤️⚾️

08/26/2026

💙 Color, Learn & Empower! ❤️

We’re excited to share our SITUS Foundation Situs Inversus Coloring Pages—created especially for children and families living with situs inversus.

These kid-friendly pages are a fun way to learn about anatomy, express creativity, and help children better understand their unique bodies. 🖍️🫀

They can also be a helpful tool to bring to doctor’s appointments—giving children something engaging to do while helping families and healthcare providers start conversations about situs inversus.

✨ Color it. Learn from it. Bring it to an appointment. Share it with a friend.

Our pages include a visually accurate depiction of situs inversus and a right-sided heart, presented in a way that is approachable and easy for kids to understand.

Because being different is something to understand and celebrate—not something to hide. ❤️

You are unique. You are strong. You are not alone.

Download, print, color, and share! Will be available on our website starting tomorrow 8/27/26🎨

08/26/2026

💙 Meet Our Medical & Scientific Advisory Board: Beth Karasin, DNP, APN, AGACNP-BC, RNFA, CNOR (E)! ❤️

We are proud to introduce Beth Karasin, a doctoral-prepared, board-certified Adult-Gerontology Acute Care Nurse Practitioner with more than 20 years of experience across clinical, academic, and administrative settings.

Beth is a published author, peer reviewer, and specialist in quality improvement, peri-operative care, and neurosurgical patient care. She is passionate about research and education and advancing both the nursing profession and the delivery of high-quality patient care.

In her current role, Beth works on a quality improvement team and as a neurosurgery nurse practitioner, collaborating independently and as part of a multidisciplinary team.

Beth joined the SITUS Foundation Medical & Scientific Advisory Board because she shares our commitment to improving awareness and understanding of rare conditions among patients, families, and healthcare providers.

We are incredibly grateful to have Beth's expertise, passion, and commitment as part of our growing Advisory Board! 🌟

Please join us in welcoming and celebrating Beth Karasin! 👏

Rare Diagnosis. Real Impact. Stronger Together.

08/23/2026

Randy Foye Speaking 🎥

What an incredible evening at Strike Out the Stigma! ⚾️❤️

A huge thank you to and the for inviting SITUS Foundation to be part of this powerful event in support of mental health awareness.

Hearing Randy Foye speak from his own experience as an elite athlete living with situs inversus was truly inspiring. He shared powerful insights about the importance of mindset, attitude, resilience, and the choices we make in shaping our future.

As someone who has experienced the journey of raising a child with situs inversus, it was incredibly meaningful to hear Randy speak openly about his experience and the perspective he has gained throughout his life and career.

His message went far beyond the baseball field — reminding us that our diagnosis does not define our potential. ❤️

Thank you, Randy, for using your platform to inspire others and for helping us continue to strike out the stigma surrounding mental health and rare conditions.

We are so grateful for this opportunity and look forward to what we can accomplish together!

Philadelphia Phillies Citizens Bank Park
https://www.instagram.com/reel/DcY08RXug_H/?igsi=MTNqeXNyN2s2bGFtag==

08/18/2026

⚾️ SITUS Foundation is heading to Citizens Bank Park! ❤️

We’re proud to attend Strike Out the Stigma on Friday, August 21 at 5:30 PM, followed by the Phillies game! ⚾️

We’ll be coming together to raise awareness, break down stigma, and support stronger mental health communities. We’re also excited to hear Randy Foye speak and share in this important conversation.

🎟️ You can buy tickets online—come join us!

Let’s come together, have some fun, and STRIKE OUT THE STIGMA! ❤️⚾️

https://www.mlb.com/phillies/tickets/specials/strike-out-the-stigma/082126

08/04/2026

✨ Athlete Spotlight: Meet Hannes 🏔️🏃‍♂️

What does it take to run through the Alps with a rare condition? Strength, determination, and an unwavering belief that no diagnosis should define your limits.

We're honored to share the inspiring story of Hannes, an accomplished endurance athlete living with situs inversus. His journey is one of resilience, perseverance, and proving that extraordinary achievements are possible—even when your path is anything but ordinary.

Whether you're part of the rare disease community, a runner, or simply looking for inspiration, Hannes' story is one you won't want to miss.

📖 Read his full Athlete Spotlight on our website and celebrate the incredible individuals helping raise awareness for the situs inversus community.

You can read the full story here: https://situsfoundation.org/patient-stories/

06/30/2026

🏔️ Support Hannes on the Journey of a Lifetime! 💙

At the SITUS Foundation, we're proud to support members of our incredible community. We recently made a donation to help Hannes, an accomplished runner living with Situs Inversus, as he takes on the legendary Transalpine Run—an extraordinary multi-day race across the Alps.

Hannes' journey is a powerful reminder that a rare diagnosis does not define your limits. His determination, resilience, and passion inspire us all.

If you're able, please consider supporting Hannes as he pursues this incredible challenge. Every donation, share, and word of encouragement helps make a difference.

💙 Donate here:https://gofund.me/38c1aacda

06/30/2026

💙 You're never alone. Join our community. 💙

Living with Situs Inversus, Dextrocardia, Heterotaxy, Primary Ciliary Dyskinesia (PCD), or another related rare condition can feel isolating—but together, we can support one another.

Join the SITUS Foundation Virtual Support Group for Patients & Families to connect with others, share experiences, ask questions, and find encouragement in a welcoming community.

📅 Saturday, August 8, 2026
🕧 12:30 PM EST
💻 Virtual Meeting

Registration is free, Sign up today at www.situsfoundation.org

05/07/2026

Big conversations, real impact.

We were honored to sit down with the NIH to discuss our utilization of Kids First Data and how collaborative data sharing is unlocking meaningful insights into rare diagnoses—bringing visibility to conditions that have historically been overlooked or misunderstood.

In the rare community, time is everything. Yet the path from discovery to publication can take 1–3 years on average, and the journey from research to real-world clinical impact can stretch to over 15 years. These delays mean critical data often isn’t reaching patients, families, or providers when it’s needed most.

Through initiatives like Kids First, we’re helping shift that timeline—accelerating access to data, amplifying patient voices, and turning lived experiences into actionable knowledge.

Because faster data means faster answers. And for rare families, that can change everything.

https://commonfund.nih.gov/KidsFirst/highlights/using-kids-first-data-navigate-rare-disease-parents-perspective-kids-first

When a child is diagnosed with a rare condition, parents are often thrust into an unfamiliar world. For Dana Maier, a clinician and parent-advocate, the journey began when her child was diagnosed with situs inversus, a rare condition that reverses the location of organs in the body.

04/06/2026

🌍The SITUS Foundation is proud to announce that applications are now open for our International Donated Medical ID Bracelet Program.
Medical ID bracelets play an important role in helping individuals with situs inversus and related laterality conditions communicate critical medical information during emergencies.
Through the generosity of our community, we are able to provide a limited number of donated medical ID bracelets to individuals and families who may not otherwise be able to obtain one.
This program aims to support patients while also sharing the lived experiences of our community to raise awareness about situs inversus.
Program Highlights
• Open to international applicants with situs inversus or related conditions
• Children must be 3 years or older to participate
• Applicants must demonstrate financial need
• Selected recipients will be invited to share their situs inversus story in a SITUS Foundation community highlight
• Adult recipients will be able to select from two bracelet design options
Because bracelets are limited, applications will be reviewed carefully to ensure they reach those who need them most.
📄 Apply here: https://situsfoundation.org/philanthropy/