Vulvar Cancer Awareness Forum

05/25/2026

𝙒𝙝𝙮 𝙔𝙤𝙪’𝙧𝙚 𝙎𝙚𝙚𝙞𝙣𝙜 𝙩𝙝𝙚 “𝘼𝙄 𝙄𝙣𝙛𝙤” 𝙇𝙖𝙗𝙚𝙡 𝙤𝙣 𝙎𝙤𝙢𝙚 𝙤𝙛 𝙊𝙪𝙧 𝙂𝙧𝙖𝙥𝙝𝙞𝙘𝙨

Facebook sometimes adds an “AI info” label to images, even when the content itself is 100% real and human‑submitted. We want to explain what that means so our community can stay focused on what truly matters: education, awareness, and support.

Here’s what’s actually happening:

➡️ Design apps like the one we use to create our graphics include built‑in AI features (such as layout tools, background removers, or text suggestions).

➡️ Facebook’s detection system automatically flags any image created with tools that contain AI components.

➡️ The label does not mean the story, question, or content is not real or AI‑generated.

It simply means the graphic design tool used to format the post uses AI somewhere in the background.

Every question, story, and message we share comes directly from real people in our community. The graphic is just the wrapper, the heart of the content is human.

✨️ 𝙊𝙐𝙍 𝘾𝙊𝙈𝙈𝙄𝙏𝙈𝙀𝙉𝙏 ✨️

We will always be transparent, responsible, and mission‑focused. Our goal is to keep the spotlight on awareness, education, survivorship, and support, not on a technical label that Facebook applies automatically.

If anyone ever have questions about our content, we’re here. But we hope this helps clear up confusion so we can keep the conversation centered on what truly matters.

05/25/2026

Vulvar cancer is real and it is far more common than most people realize. It is often missed and misdiagnosed, which delays detection and treatment.

🔍 We encourage everyone to make monthly vulvar self‑exams a consistent part of their personal health routine.

➡️ Sharing this information can help someone receive a diagnosis sooner — and that can save a life.

Please take a moment to share this post and help raise awareness. 💌

05/18/2026

✨️ QUESTION OF THE DAY ✨️

05/18/2026

We’re celebrating Sabrina Silas today. She completed her radiation treatment and rang that victory bell with courage and grace. 🔔🎊

Let’s surround her with love in the comments and lift her up as she steps into this new chapter of healing and recovery. 💜🙏🏼

05/07/2026

We’re thrilled to share that is leading a groundbreaking clinical trial for Lichen Sclerosus. Dr. Krapf is truly one of the leading experts in this field - a clinician with unmatched passion, precision, and a relentless drive to transform LS care and treatment options for patients everywhere.

This is a major step forward for the LS community, and subsequently our community as well

For full details, see below. 💜

Still dealing with itching, burning, or tearing down there? 💔

You don’t have to just “live with it.”

We’re enrolling for a lichen sclerosus clinical study exploring a non-steroid treatment option ✨

📍 Tampa area
💌 email [email protected]

Let’s see if you qualify 💗

05/07/2026

When a patient reaches NED, finishes treatment, or enters remission, many assume their life “goes back to normal.”

Remission isn’t the end of care, it’s a transition into a new, medically complex phase called survivorship. The crisis may be over, but the impact of cancer and its treatments continues in ways most people never see.

Patients move from active treatment to ongoing surveillance: scheduled exams, imaging, labs, and specialist follow‑ups that can last for years.

At the same time, late and long‑term effects begin to surface — neuropathy, lymphedema, pelvic floor dysfunction, sexual health changes, chronic pain, fatigue, and organ‑specific complications from surgery, radiation, or chemotherapy. They are part of the clinical reality of survivorship.

Emotionally, many patients experience cancer‑related PTSD, fear of recurrence, hypervigilance, and anxiety that often intensifies after treatment ends. When the world expects them to “move on,” they’re navigating trauma their bodies and minds are still processing.

Care also becomes more fragmented. Survivors often juggle oncology, gynecology, primary care, pain management, mental health, and rehabilitation. This care coordination is ongoing and necessary — not optional.

And while medical needs increase, support often decreases. Friends and family assume the hardest part is over, leaving survivors to manage a new normal that is anything but simple.

NED doesn’t mean normal. It means adapting to a changed body, managing chronic symptoms, attending constant appointments, and living with uncertainty — all while trying to rebuild life after cancer.

Treatment may end, but the journey doesn’t. Survivorship deserves the same understanding, validation, and support as diagnosis and treatment.

04/28/2026

Let’s Talk About Cancer PTSD.

A cancer diagnosis doesn’t end when treatment ends. Even in remission, many survivors carry invisible wounds—fear, anxiety, hypervigilance, medical trauma, and the emotional aftershocks of everything they’ve endured. This is often called cancer‑related PTSD, and it is far more common than people realize.

Cancer changes your body, but it also changes your mind, your sense of safety, and the way you move through the world. Scans, symptoms, anniversaries, and even certain smells or places can trigger overwhelming memories. None of this means you’re “weak.” It means you’re human.

If you’re struggling, please know this:

• You are not alone.
• Your feelings are valid.
• Your mental health matters just as much as your physical health.

Reaching out for help—whether through therapy, counseling, support groups, or talking with someone you trust—is an act of strength, not shame. Healing is not just about surviving cancer; it’s about reclaiming your peace, your joy, and your sense of self.

💜 You deserve care.
💜 You deserve support.
💜 You deserve to feel whole again.

If you find yourself struggling with the symptoms listed on the graphic, please reach out for help today. 🙏🏾

04/28/2026

04/26/2026

Post Credit:

04/26/2026

04/24/2026

'Women are dying of embarrassment'⁣
⁣
GP, educator, and health content creator Dr Aziza Sesay joined BBC Radio London’s Jacqueline Shepherd to discuss destigmatising shame around women’s health - particularly the language we use. It’s all part of her mission to tackle inequality in women's health.⁣
⁣
Reel Credit:
⁣