The LAM Foundation

10/16/2026

For Dr. Rosa Estrada-Y-Martin, caring for people living with LAM is about much more than treating a rare lung disease. It is about listening, building trust, sharing knowledge, and helping patients navigate decisions that can change their lives.

A board-certified, fellowship-trained pulmonologist and professor at McGovern Medical School at UTHealth Houston, Dr. Estrada-Y-Martin has been the LAM Clinic Director since 2015 and has become a trusted resource for patients and colleagues across the LAM community.

“Medicine is a vocation, not a career,” she says. “Since I was 6, I always knew that I wanted to be a physician.”

Learn more about Dr. Estrada-Y-Martin at https://www.thelamfoundation.org/dr-rosa-estrada-y-martin-a-clinician-who-brings-compassion-to-patient-care/

10/15/2026

Thank you for the strong start to the 18th Annual Laps for LAM!

As of today, we have:
* 2 Teams
* 10 Fundraisers
* More than $2,500 raised in honor of the LAM Community

Together, we are keeping the tradition started by Peggy Haupt alive as we take our laps this October.

Now all this great momentum needs is you.

Let's move this October.

Whether you walk, run, row, bike or swim, you can take your laps wherever you are, whenever it works for you. Set a goal, rally your friends and family, and help us reach our $18,000 fundraising goal.

A goal of 180 laps is encouraged in honor of the average number of laps Peggy has completed each year. And with a suggested donation of just $1 per lap, every lap will make a difference.

Start your laps today or donate: https://give.thelamfoundation.org/event/laps-for-lam-2026/e843766

10/14/2026

What a wonderful weekend of connection and learning for LAM patients in Northern California!
Patients came together to share time, build connections, and learn more about topics including LAM and hormone replacement, exercise, and fatigue.
A big thank-you to LAM Liaison Susan Jacobs and LAM Clinic Director Dr. Stephen Ruoss for their warm hospitality and for sharing their time and expertise with the group. We’re so grateful for the LAM community and the connections that make us stronger together.

Check our events calendar to see upcoming webinars, meetings, and gatherings: https://www.thelamfoundation.org/events/

10/13/2026

The next COPD Foundation OxyTalk is tomorrow, Wednesday, Oct 14, 4:00 pm - 5:00 pm ET

Join the oxygen community the second Wednesday of every month for this virtual coffee hour! OxyTalk is open to anyone on supplemental oxygen. It’s an opportunity to ask questions of a respiratory therapist and hear from others on supplemental oxygen. Please feel free to send any questions ahead of time to [email protected], or just stop by to enjoy some time together.

Register: https://us06web.zoom.us/meeting/register/tZEvf-uhpjoqG9fhEov5dwfjSS__bf6BGfj0?fbclid=IwY2xjawLOZu9leHRuA2FlbQIxMABicmlkETF5RE1CTXE3ZjZFWVVrVVVJAR51K5N5vmvSJJZ20LaPRNm5skq7QX_8xqpamq9-iVWLPPgw1jw-gjto82grFA_aem_PEuRfTsWnun8k_aXBDx6mg&mc_cid=a5f441ae64&mc_eid=10d95f45e0 #/registration

10/12/2026

Recording Now Available!

Understanding Your Test Results

Dr. Adrian Shifren discusses standard tests that are a routine part of the evaluation of LAM patients, including what they mean, which of the many numbers are important, and when to start treatment. With featured guest Dr. Aamir Ali, Chief Medical Officer of TrilliumBiO, presenting on LAMair™, an innovative VEGF-D blood test now available to physicians and patients nationwide.

Watch Recording: https://ow.ly/5igu50ZWOGT

10/09/2026

It's Lung Transplant Awareness Day!

Did you know The LAM Foundation has a transplant support group? The Circle of Hope (COH) Transplant Support Program is designed to support those members of our community navigating not only LAM but the prospect of a lung transplant as well. Our program offers virtual support meetings, educational webinars with experts in the field, tissue donation education, and one-on-one guidance through peer mentoring.

Learn more: https://ow.ly/Tjfq50ZW6vm

10/09/2026

Thank you to all who are already taking their lap! It's not too late to join them!

Whether you walk, run, row, bike or swim, you can take your laps wherever you are, whenever it works for you. Set a goal, rally your friends and family, and help us reach our $18,000 fundraising goal.

A goal of 180 laps is encouraged in honor of the average number of laps Peggy has completed each year. And with a suggested donation of just $1 per lap, every lap will make a difference.

Not ready to take laps? You can still be part of the tradition by making a donation to support The LAM Foundation and the women and families who depend on our community.

Get moving. Get your friends involved. And don’t forget to tag your Laps for LAM photos with on social media.

Every lap. Every dollar. Every person moving us closer to a world without LAM.

https://give.thelamfoundation.org/event/laps-for-lam-2026/e843766

10/06/2026

Attention those interested in participating in Rare Disease Week on Capitol Hill in March 2027: Travel reimbursement applications are due in one month.

RARE Disease Week 2027 Travel Reimbursement Applications Are Now Open!

Join us March 2–4, 2027, in Washington, DC, as advocates from across the country come together to share their stories and make their voices heard by Members of Congress. Whether you’re new to advocacy or a seasoned advocate, all are welcome!

To help make participation possible, the RARE Foundation is offering a limited number of travel reimbursements for individuals and caregivers attending RARE Disease Week.

Application deadline: Friday, November 6, 2026.
Learn more and apply here: https://bit.ly/4jo7fku

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10/05/2026

It is with sadness that we announce the passing of Karyn Schad. Karyn served on the Board of Directors development committee in the early 2000’s and was an avid fundraiser and supporter of The LAM Foundation. She was a woman of great courage and is remembered for her generosity of heart, optimistic outlook, and mentorship of others. A glimpse into her journey from diagnosis to transplant and the love shared by her husband through it all can be found in the book “A Taste of Air” by Richard Schad. We extend our heartfelt condolences to Richard, her children, grandchildren, and numerous family and friends who will sorely miss her.

Celebrate the life of Karyn Schad, leave a kind word or memory and get funeral service information care of Crist Mortuary & Cremation and Mountain View Memorial Park.

10/05/2026

Tonight! Don't forget to register!

Registration is open for the next LAMposium in your Living Room

Dr. Adrian Shifren will discuss standard tests that are a routine part of the evaluation of LAM patients, including what they mean, which of the many numbers are important, and when to start treatment.

Featured guest: Dr. Aamir Ali, Chief Medical Officer of TrilliumBio, will showcase LAMair™, an innovative VEGF-D blood test now available to physicians and patients nationwide.

Please submit your questions on this topic to [email protected] by September 28, 2026

Register: https://www.thelamfoundation.org/event/lamposium-in-your-living-room-7-8-pm-et/