KobeStrong VOGM Journey

KobeStrong VOGM Journey Welcome, we are the Lewallen's. We created this page to have somewhere central to update on our litt

June 11, 2021 “the VOGM is closed.”  June 11, 2026 Kobe is a joy and a blessing. It’s was the first sign of Hope that ma...
06/12/2026

June 11, 2021 “the VOGM is closed.” June 11, 2026 Kobe is a joy and a blessing.

It’s was the first sign of Hope that maybe just maybe he would be coming home. We had faith, but on this day five years ago we finally felt some hope too. His VOGM remains closed and stable, and we head back to Boston tomorrow as Kobe meets with cardiology in Boston.

Hey guys if anyone wants these Kobe strong shirts before the walkathon on Sunday, please reach out. If you don’t want sh...
06/08/2026

Hey guys if anyone wants these Kobe strong shirts before the walkathon on Sunday, please reach out. If you don’t want shirts and want to donate directly to the Boston Children’s Hospital the link is there too! Can’t wait!

💙🦁⚡️ Boston Marathon Fundraiser ⚡️🦁💙

Kobe was born with a rare brain vascular condition called Vein of Galen Malformation (VOGM). As a newborn, he endured 7 brain surgeries and spent 160 days in the NICU fighting for his life.

But from day one, Kobe showed us what true strength looks like. 💙
That’s where was born.

This year, we are honoring his warrior spirit through the Boston Marathon fundraiser, and we created these special edition shirts inspired by Kobe himself — our little Thor warrior with the heart of a lion. 🦁⚡️

These shirts are more than just apparel.
They represent:
✨ strength
✨ resilience
✨ hope
✨ and every impossible battle Kobe has overcome

🩵 Fundraiser Shirts: $15 for sizes S-XL, $17 for 2-3xL $19 for 4-5xl
Payments can be sent to https://venmo.com/u/ShaeLewallen

Please specify sizes and quantity. Shipping is available for $7 per order. Please send shipping address

(All proceeds go toward supporting the marathon fundraiser efforts.)

💙🦁⚡️   Boston Marathon Fundraiser ⚡️🦁💙Kobe was born with a rare brain vascular condition called Vein of Galen Malformati...
05/27/2026

💙🦁⚡️ Boston Marathon Fundraiser ⚡️🦁💙

Kobe was born with a rare brain vascular condition called Vein of Galen Malformation (VOGM). As a newborn, he endured 7 brain surgeries and spent 160 days in the NICU fighting for his life.

But from day one, Kobe showed us what true strength looks like. 💙
That’s where was born.

This year, we are honoring his warrior spirit through the Boston Marathon fundraiser, and we created these special edition shirts inspired by Kobe himself — our little Thor warrior with the heart of a lion. 🦁⚡️

These shirts are more than just apparel.
They represent:
✨ strength
✨ resilience
✨ hope
✨ and every impossible battle Kobe has overcome

🩵 Fundraiser Shirts: $15 for sizes S-XL, $17 for 2-3xL $19 for 4-5xl
Payments can be sent to https://venmo.com/u/ShaeLewallen

Please specify sizes and quantity. Shipping is available for $7 per order. Please send shipping address

(All proceeds go toward supporting the marathon fundraiser efforts.)

💙🦁⚡️   Boston Marathon Fundraiser ⚡️🦁💙Some of you have followed Kobe’s journey since the very beginning… and some may no...
05/27/2026

💙🦁⚡️ Boston Marathon Fundraiser ⚡️🦁💙

Some of you have followed Kobe’s journey since the very beginning… and some may not know his story yet.

Kobe was born with a rare brain vascular condition called Vein of Galen Malformation (VOGM). As a newborn, he endured 7 brain surgeries and spent 160 days in the NICU fighting for his life.

But from day one, Kobe showed us what true strength looks like. 💙
That’s where was born.

This year, we are honoring his warrior spirit through the Boston Marathon fundraiser, and we created these special edition shirts inspired by Kobe himself — our little Thor warrior with the heart of a lion. 🦁⚡️

These shirts are more than just apparel.
They represent:
✨ strength
✨ resilience
✨ hope
✨ and every impossible battle Kobe has overcome

🩵 Fundraiser Shirts: $15
(All proceeds go toward supporting the marathon fundraiser efforts.)

If you would like to:
🏃‍♀️ Sign up for the marathon
💙 Donate directly

You can use the link below:

https://secure.childrenshospital.org/site/TR/Walk/Walk?pg=team&team_id=17464&fr_id=2690&_gl=1*r50iif*_gcl_au*NjYwMjQxNDA0LjE3NzYwNDcwMzA.*_ga*MTQxNjM0NjY3My4xNzc2MDQ3MDMw*_ga_9CLEPMNM3Y*czE3Nzk5MDM0ODEkbzE3JGcwJHQxNzc5OTAzNDg3JGo1NCRsMCRoMA..&cap_id=3176059

Thank you to everyone who has loved, prayed for, supported, and fought alongside Kobe over the years. Every share, purchase, donation, and prayer means more than we can ever explain.

Support KobeStrong Eversource Walk for Boston Children's Hospital June 14, 2026 | 18 Days to Go! Donations support: Neonatal Intensive Care Unit Fund Raised So Far: $570 Fundraising Goal: $1,500 Why We Walk Team Roster Amount Raised Placeholder Text -- will be replaced by the actual body. Lorem ipsu...

The Kobester is officially 5 years old!!!!!!! Thank all of you guys for being here for this journey. We love you.
03/18/2026

The Kobester is officially 5 years old!!!!!!! Thank all of you guys for being here for this journey. We love you.

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Boston, MA
02115

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