IgG4ward

06/02/2026

📍 Montreal, we're coming to see you!

If you or a loved one are living with IgG4-related disease (IgG4-RD), we invite you to join us at the Montreal Patient Day for Rare Neuroinflammatory & Related Disorders on June 13.

The IgG4ward! Foundation is proud to partner with The Sumaira Foundation for this special day dedicated to education, connection, and community. Attendees will have the opportunity to engage with clinicians, researchers, patient advocates, caregivers, and others navigating rare diseases, while also participating in dedicated IgG4-RD programming throughout the event.

Whether you're newly diagnosed, a long-time patient, or supporting a loved one, this event offers a unique opportunity to:
✨ Connect with others in the IgG4-RD community
✨ Hear from leading experts and clinicians
✨ Learn about the latest research and developments
✨ Ask questions and gain valuable insights for your journey

This free event is open to patients and caregivers from Montreal and across Quebec. Lunch will be provided, and bilingual programming will ensure everyone can fully participate.
📅 June 13
⏰ 11:00 AM – 6:00 PM EDT
📍 Montreal, Quebec
🎟️ Register today: https://www.eventbrite.com/e/1986690663254?aff=oddtdtcreator

We look forward to connecting with you in Montreal!

05/28/2026

Introducing the IgG4ward! Academy 💙

A new educational library designed to bring trusted IgG4-RD education together in one place for patients, caregivers, physicians, and healthcare professionals.

The Academy features self-paced chapters focused on diagnosis, treatment, specialists, immune system function, and organ involvement - along with videos, scientific references, and interactive learning experiences designed to make complex information easier to understand.

This is just the beginning, with additional chapters and educational modules already in development.

🔗 Learn more about the IgG4ward! Academy: https://tr.ee/ePMVfB

05/28/2026

Join us in Montreal! June 13, 2026 for a FREE patient day!

🇨🇦 Meet the experts in Montreal! ✨

Join us on Saturday, June 13th for our upcoming Patient Day for Rare Neuroinflammatory & Related Disorders presented in collaboration with Dr. Adil Harroud (McGill University) and in partnership with Muscular Dystrophy Canada and IgG4ward!

📍 Free in-person event
🗓 Saturday, June 13, 2026
🔗 Register here: www.tinyurl.com/TSFMontreal

Attendees will have the opportunity to learn directly from leading experts and ask questions during live sessions featuring:

🌺 Dr. Hugues Allard‑Chamard
🌺 Dr. Philippe-Antoine Bilodeau
🌺 Dr. Paul Giacomini
🌺 Dr. Adil Harroud

We’re bringing together patients, caregivers, families, researchers, clinicians, and advocates from the CIDP, MG, MOGAD and NMOSD communities for a day of education, connection and support.

05/27/2026

📅 Reminder: Our support group meets tomorrow, Thursday, May 28, from 5:00–6:00 PM ET.

Join us for connection, encouragement, and conversation in a supportive space.

🔗 Registration required: https://tr.ee/YI0XeI

Please note: This group is not open to industry professionals.

05/26/2026

We are still reflecting on the incredible experience that was IgG4ward! EuroJAM at University College London. 💙

On behalf of Dr. Stone and myself, thank you to everyone who traveled from around the world to join us - from Australia, Iceland, Serbia, Spain, France, across North America, and beyond. Together, we welcomed more than 150 members of the IgG4-RD community, including patients, caregivers, family members, physicians, researchers, advocates, and industry partners.

Hosted by IgG4ward! alongside Dr. Emma Culver, this gathering reminded us all how meaningful it is to come together, share experiences, learn from one another, and continue building a stronger global IgG4-RD community.

A heartfelt thank you to our incredible speakers and global experts who dedicated their time and expertise to help educate and inspire our community throughout the event.

We are also incredibly thankful to our sponsors and partners - including Amgen, Zenas, and Sanofi - for their support in helping bring this global community together. Your commitment to advancing education, advocacy, and care for those affected by IgG4-RD is deeply appreciated.

As both a caregiver and Director of Advocacy & Community Engagement for the Foundation, it was especially meaningful to witness the connections, conversations, and support shared throughout the weekend.

In the weeks ahead, we look forward to sharing photos, reflections, and recorded sessions from EuroJAM so these important conversations and insights can continue reaching the broader community.

Thank you all for being part of something so special. 💙🌏💙

— Katharine M. Provencher
IgG4ward! Foundation

05/21/2026

IgG4ward! is officially in London ahead of kicking off the EuroJAM tomorrow 🇬🇧

Looking forward to joining people living with IgG4-RD, their carers, advocates, clinicians, and experts from specialties around the world for important conversations around IgG4-related disease.

Grateful to be part of a global community working to learn from one another and move care 4ward together.

Will we see you at the EuroJAM this weekend?

05/18/2026

Earlier this month, Patient Ambassador Andy reminded our community that mental health deserves attention throughout the rare disease journey.

For many people living with IgG4-RD, support can come from simply feeling understood by someone who truly gets it.

As one person in our community shared:
“Once I met someone else with IgG4-RD and realized there was this whole community out there, I felt a weight lift. This journey had felt incredibly isolating for a long time, and being able to connect with people who truly understand has made such a difference.”

Connection matters.
Community matters.

Throughout Mental Health Awareness Month, our community continues creating spaces for support and connection, including this month’s support group on May 28.

No one should have to navigate this alone.

💙💚

05/14/2026

We’re excited to officially announce IgG4ward! BayJAM, taking place July 11 at Stanford University. 💙

In this video, Dr. Matt Baker of Stanford University - host of BayJAM alongside the IgG4ward Foundation - shares an invitation to the IgG4-RD community to join us for a day centered on education, conversation, and connection.

This one-day event will bring together patients, caregivers, physicians, researchers, advocates, and industry leaders for expert-led sessions, breakout discussions, and opportunities to connect with others who understand the realities of living with IgG4-related disease.

Attendees will hear from experts at Stanford, Mayo Clinic, and Massachusetts General Hospital and have the opportunity to ask questions directly to specialists working across the field.

If you weren’t able to attend EuroJAM this year, we hope you’ll consider joining us at BayJAM.

Please feel free to share this post with others in the IgG4-RD community who may be interested.

📍 Stanford University
📅 July 11
🔗 https://tr.ee/bWDUUn

05/12/2026

For many people navigating rare disease, finding answers and feeling understood can take time.

That is one of the reasons EuroJAM matters so deeply to our community.

On May 22 - 23, patients, caregivers, healthcare providers, researchers, and advocates from around the world will come together to share experiences, learn from one another, and continue raising awareness for IgG4-RD.

These conversations help create connection, support, and understanding for those impacted by rare disease.

There is still time to join us for IgG4ward! EuroJAM. Registration link: https://tr.ee/kYXWXM

We are grateful for everyone who continues helping move this work forward together.

05/11/2026

Last week, many of you connected with Andy’s reminder that we have to make mental health a priority.

Living with or caring for someone with a rare disease can take an emotional toll in ways that are not always easy to recognize while you are in the middle of it.

This Mental Health Awareness Month, we want to remind our community that emotional well-being matters too for patients, caregivers, and healthcare providers alike.

Whether support looks like rest, connection, honest conversations, or simply knowing you are not alone, those moments matter.

As part of that support, our monthly support group will be held on May 28 for those navigating IgG4-RD together.

We are grateful for this community and the space it continues to create for support and understanding.