IgG4ward

10/15/2026

What would you like to ask an IgG4-RD expert? Bring your questions to TexasJAM.

Join Dr. Adam Kilian and the IgG4ward! Foundation on November 14 in Austin for a day of learning and connection with patients, caregivers, families, and medical experts.

Hear from Dr. John Stone about the history and evolution of IgG4-RD, join expert discussions on diagnosis, treatment, and monitoring, and choose smaller breakout sessions on topics that matter to you.

Sessions will explore organ involvement, fatigue and brain fog, understanding how treatments work, and the daily realities of living with IgG4-RD.

Caregivers are an important part of the day, too. In “Caregiving in IgG4-RD: Supporting a Loved One,” Katharine M. Provencher, MSW, the Foundation’s Director of Advocacy and Community Engagement, will join Dr. Sanjay Chabra and Dr. Christopher Parker for a conversation focused on supporting someone you love.

Throughout the day, you’ll have opportunities to ask questions and meet others in the community, followed by an interactive “Ask the Experts Anything” session.

Whether this is your first JAM or a chance to reconnect, we look forward to welcoming you.

📅 Saturday, November 14, 2026
🕗 8:00 a.m.–5:15 p.m.
📍 University of Texas at Austin, Dell Medical School

Registration is required. Explore the program and register:
https://igg4ward.org/events/texasjam-in-person-community-event/

10/14/2026

Four days in Cambridge. Two important gatherings. One community moving IgG4-RD forward.

From October 8–11, The Charles Hotel in Cambridge, Massachusetts, became a gathering place for the international IgG4-related disease community as the IgG4ward! Foundation hosted the 6th International Symposium on IgG4-Related Disease and the IgG4ward! CamJAM.

The three-day Symposium brought together physicians, researchers, and healthcare professionals from around the world to share scientific knowledge, discuss emerging research, and explore ways to improve the diagnosis, treatment, and care of people living with IgG4-RD. These important conversations reflected both the progress being made and the work still ahead.

On Sunday, October 11, the focus shifted to CamJAM, where patients, caregivers, families, and medical experts came together for a day of learning, sharing experiences, and connecting with one another.

Throughout the day, attendees learned directly from physicians experienced in IgG4-RD, participated in breakout discussions, asked questions, and shared their own perspectives on living with or caring for someone with this complex disease.

But some of the most meaningful moments happened beyond the presentations.

For some, it was their first opportunity to meet another person living with IgG4-RD. For others, it was a chance to reconnect with familiar faces, share experiences, and spend time with people who understand.

These connections matter.

What made these four days particularly meaningful was the opportunity to bring together the international scientific community and then create a space where patients and caregivers could engage directly with medical experts and one another.

The research and scientific discussions at the Symposium and the lived experiences shared at CamJAM are deeply connected. Both play an important role in advancing our understanding of IgG4-RD and improving the lives of those affected by it.

We extend our sincere appreciation to Amgen, Zenas BioPharma, Acepodia, Sanofi, and Spero Therapeutics for their support of the 6th International Symposium. We also thank Amgen and Zenas BioPharma for their support of CamJAM.

To the physicians, researchers, speakers, patient ambassadors, volunteers, and everyone who joined us, thank you for sharing your knowledge, experiences, and time.

And to our patients and caregivers, thank you for continuing to help shape and strengthen this community.

We look forward to sharing more from both events in the weeks ahead and continuing the conversations and connections that began in Cambridge.

The events may have ended, but the conversations, connections, and work continue.

10/09/2026

Your generosity. Two matching gifts. More hope in action. 💙

Hope in Action launches today! From October 9 through January 8, two generous families will each match your donation dollar for dollar, up to $150,000 per family. While matching funds remain:

• $25 becomes $75.
• $100 becomes $300.

For those affected by IgG4-related disease (IgG4-RD), a donation is a tangible expression of hope. Your generosity puts that hope into action.

It helps us provide advocacy, education, and support, and connect patients and caregivers with others who understand life with this disease. It also allows us to expand disease awareness globally, facilitate groundbreaking research, and continue serving as the trusted source of truth for the IgG4-RD community.

Last year, our community raised more than $300,000 during our first year-end fundraising campaign. This year, our goal is more than $600,000.

Help us Pave the Path 4ward!

Donate today using the link below or scan the QR code in the image:
https://igg4ward.org/get-involved/donate/

09/30/2026

A personal invitation and a glimpse into the CamJAM program from Katharine Provencher, our Director of Advocacy and Community Engagement. 💙

Join us on October 11 at The Charles Hotel in Cambridge, Massachusetts, for a day of learning and connection for people living with IgG4-related disease, caregivers, and loved ones.

The program includes conversations about diagnosis, recognizing flares, and partnering with your physician, along with opportunities to ask specialists your questions during the live expert Q&A.

Katharine will also lead “Life Beyond the IgG4-RD diagnosis,” a patient panel exploring everyday life with IgG4-RD and what has helped along the way. As a caregiver to her husband, Andy, she knows how much it can mean to connect with others who understand.

Whether you’re coming with someone or on your own, we’d love to welcome you.

Take a closer look at the day and find registration information:
https://igg4ward.org/resources/what-to-expect-at-igg4ward-camjam-on-october-11/

09/29/2026

What can the community expect at CamJAM? Our newest blog takes you inside the day.

On October 11, join the IgG4ward! Foundation in Cambridge, Massachusetts, to learn from IgG4-related disease (IgG4-RD) specialists and connect with other patients and caregivers.

From understanding blood tests and treatment options to recognizing flares, the program explores questions that matter long after diagnosis. Smaller breakout sessions and an Ask the Experts panel offer time to ask questions and take part in conversations relevant to you.

Read “What to Expect at IgG4ward! CamJAM” for a closer look at the program and how to register:
https://igg4ward.org/resources/what-to-expect-at-igg4ward-camjam-on-october-11/

📍 The Charles Hotel, Cambridge, MA
📅 Sunday, October 11, 2026

Co-hosts Dr. Guy Katz and Dr. Cory Perugino of Massachusetts General Hospital share their invitation below. Whether you’re newly diagnosed or have lived with IgG4-RD for years, we hope you’ll join us.

Less than two weeks to go. Explore the day and reserve your place!

09/25/2026

There is always more to learn about IgG4-related disease, whether you’ve just heard its name or have been part of this community for years.

The IgG4ward! Academy is for patients, caregivers, family members, healthcare professionals, advocates, and anyone who wants to better understand IgG4-RD. Its nine chapters cover the disease, diagnosis, treatment, the specialists involved in care, and several types of organ involvement.

The graphic highlights chapters on the salivary and tear glands, pancreas, kidneys, lungs, and retroperitoneum. You can explore the chapters in order or go directly to a topic that interests you. Each is designed to help you learn at your own pace, with patient stories, common questions, and quizzes along the way.

Take a look, save the Academy for later, or share it with someone who would find it useful: https://igg4ward.org/education/

09/22/2026

Learning about IgG4-related disease means more when you can ask questions, share your experience, and connect with people who understand.

That’s what CamJAM is all about. 💙

Watch this invitation from Dr. Cory Perugino and Dr. Guy Katz of Massachusetts General Hospital, then join them and the IgG4ward! Foundation for a day together in Cambridge.

From understanding your diagnosis to navigating treatment and recognizing flares, CamJAM will make space for the conversations that matter to patients and caregivers.

📅 October 11, 2026
📍 The Charles Hotel | Cambridge, Massachusetts

Free for patients, caregivers, family members, and friends. Advance registration is required.

Explore the agenda and register:
https://igg4ward.org/events/igg4ward-camjam/

Know someone who could benefit from joining us? Please pass this invitation along.

09/17/2026

A new session from the IgG4ward! EuroJAM Educational Series is now available. 💙

Retroperitoneal fibrosis can affect the ureters, obstruct the flow of urine, and place kidney function at risk.

In Session 6, Dr. Archie Hughes-Hallett and Joanna Teles explain retroperitoneal fibrosis, back pain, urinary obstruction, stents, and kidney health using accessible language, a patient case example, and discussion with members of the EuroJAM community.

Watch the full session and explore the accompanying educational resource: https://tr.ee/64ZrcR

Please share this resource with others who may find it helpful.

09/16/2026