06/19/2026
“ After 69,000 minutes of life in the neonatal unit, Michel and I had become complete strangers to this world.
There was no further contact from the hospital, no desire to know what had
become of us.
The whole new routine vanished, the flame of hope went out, the wave receded, taking with it what little
strength remained.
Within 10 days, a farewell ceremony was organized, to honor the arrival of our miracle before he slipped into the void.
How do you survive and heal after such a traumatic experience? How do you absorb such an accelerated fragment of life, come to understand your emotions, and above all, open
the floodgates enough to let the traumatic pieces rise to the
surface? Limiting the damage and finding meaning in that existence are their own challenges.
That is how, barely a year later, in 2020, after finding no organization able to support us,
we created Noah’s Ark Belgium, an association that began by supporting and accompanying parents in neonatal units.
Step by step, we became aware of the existing network.
First, GFCNI (Global Foundation for the Care of Newborn Infants), founded by Silke Mader, brought us into contact with our peers, a large international family in which everyone
has lived through a story connected to neonatology.
Meeting scientists such as Nils Bergman was a turning point in our understanding of our own story and in beginning our advocacy for zero separation.
Learning about developmental care, such as NIDCAP, made us realize the gap between knowledge and practice. A whole new world opened before us.
As parents, we believed that everything was being done for the best, for the very best for our baby. And yet the reality is different.
How many barriers are still in place to separate, rather than bring together?”
A Struggle for Life
Laetitia van der Elst
Noah's Ark Belgium
https://www.noahsark.be/
👉https://nidcap.org/wp-content/uploads/2026/06/Developmental-Observer_Vol19_No2_2026_FINAL.pdf