Kasen’s Medical Journey

07/23/2026

I got over 50 reactions on my posts last week! Thanks everyone for your support! 🎉

07/14/2026

Good morning!!

UPDATE: Kasen’s Boston visit couldn’t have gone better. His echo, ekg, and labs looked amazing!! He is almost 5’5 and is now 102 lbs. Doctor Williams said he is “rocking it”. Hearing this is so amazing. He has had a long journey and will continue to push himself to get stronger and always give his best not just for himself but for his donor. He’s a pretty amazing kid. Thank you God for blessing Kasen with this beautiful and strong heart so he can live his life to the fullest.

Today was lab day- just checking levels of his immunosuppression meds. So up bright and early. 🌅🌄

KASEN STRONG 💙🙏💙

07/14/2026

Good morning!

If you missed this please click the link below and consider donating to Kase’s charity where all proceeds benefit Boston Children’s Hospital Heart Center Extraordinary Needs fund. This is so important to Kasen. Thank you for supporting his cause. God bless. 💙💙🙏🙏🙏🫀🫀🫀

I'm fundraising for Boston Children's life-saving work. Will you support my efforts? Visit my fundraising page to donate.

06/30/2026

Back for his 3 month check in. 🙏💙🙏

06/12/2026

With Boston Children’s Hospital – I just got recognized as one of their top fans! 🎉

06/10/2026

Please keep sharing and register today!! ♥️♥️

04/23/2026

A heartbreaking message from an Alabama teenager is making its way across social media tonight.

Will Roberts is fighting osteosarcoma - an aggressive bone cancer — and after 16 months of treatment, he says the options are running out.

In a video (shared in comments below) Will speaks directly to anyone willing to listen. He’s asking people to share his story and tag Donald Trump and Robert F. Kennedy Jr. in hopes of getting their attention.

His family has identified a treatment — DeltaRex-G — that could offer a chance, but they say the cost is overwhelming.

Will’s message is simple and powerful: he wants a chance to live.

If you feel moved, take a moment to share his story and help it reach someone who can make a difference.

04/23/2026

UPDATE:

Kase had labs done last week and everything looked great!! 🙌 The CMV finally came back undetected. ♥️ With such great labs and his immunosuppression being where it needs to be they don’t need labs again until his Boston visit on June 30th. You can imagine how excited Kase is as he has been going every two weeks. He is thriving and he is almost as tall as me now. Doctors are very happy with his progress. He has been playing basketball with his cousin and just enjoying being a kid something that was so hard to do when he was so sick. Can you believe he is approaching having his new heart for 1.5 years…crazy right!! But we are so blessed to have such a brave, courageous, resilient, respectful, and caring kid. He has been through so much and he just appreciates the life he has been given. Yes can he be a stubborn, opinionated kid 💯 but we will take it. He’s a teen and he’s just learning and discovering his own way. We continue to thank God, and thank his donor for this beautiful gift of life. 🫀🫶🙏