Dialysis travel with Vanessa

Dialysis travel with Vanessa A page were dialysis patients and families can share travel stories, insights and tips.

07/29/2026

Home hemodialysis friends- this is for you!! FDA is looking for your input-

๐Ÿ“ฃ Your voice matters to the FDA!
Are you โ€” or someone you care for โ€” living with End-Stage Renal Disease (ESRD) and receiving home hemodialysis? We want to hear from you.

๐Ÿ—“๏ธ FDA Patient Listening Session: ESRD & Home Hemodialysis
๐Ÿ“… Monday, September 28, 2026 | 1:00 โ€“ 2:30 p.m. ET

What to expect: A small group of patients and caregivers will share their firsthand experiences with FDA staff, covering topics like treatment choices, quality of life, device usability, independence, telehealth support, and education needs โ€” all to help improve the home hemodialysis experience.

Who can apply: Patients and caregivers living with ESRD who are currently receiving home hemodialysis. Participants will be selected to represent a range of ages, locations, symptoms, and disease severity.

Space is very limited! Interested in participating? Complete our brief interest survey by August 10, 2026:
https://qualtricsxmjqffz4ktl.qualtrics.com/jfe/form/SV_4I4l693LoSCxaGW

Help the FDA better understand what it's like to live with ESRD and receive home hemodialysis.

Share your experiences about End Stage Renal Disease (ESRD) and home hemodialysis

Friends please take a listen to the podcast I did with KidneyTalk! ๐Ÿ’š๐Ÿ’š
06/05/2026

Friends please take a listen to the podcast I did with KidneyTalk! ๐Ÿ’š๐Ÿ’š

KidneyTalk - From Surviving to Leading: An Unexpected Path

05/08/2026

Thank you ! We are so grateful to your 2026 Boston hackathon winners!

Happy to say that my passion project with our amazing team at The Kidney Connective just won   place at the Harvard scho...
04/12/2026

Happy to say that my passion project with our amazing team at The Kidney Connective just won place at the Harvard school of public health hackathon for innovation with AI! transplant startup

Viva Espaรฑa ๐Ÿ‡ช๐Ÿ‡ธ
03/13/2026

Viva Espaรฑa ๐Ÿ‡ช๐Ÿ‡ธ

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