Sunstone Health

Sunstone Health Our mission is to end the 7-year Diagnostic Odyssey with data precision and fierce advocacy. The system isn't delivering. We are. The system is broken.

Because "be patient" isn't a treatment plan. Families with genetic diseases deserve answers, not a 7-year loop of uncertainty. We’re Sunstone Health, and we’re here to break the Diagnostic Odyssey. We use data precision to find the answers the system misses, turning years of waiting into 12 weeks of clarity. We’re the fix. We believe every family deserves a champion. At Sunstone Health, we’re figh

ting to end the chaos of the healthcare system by providing the genetic answers families need in weeks, not years. If you’re tired of fighting the status quo alone, you’ve come to the right place. Stop the chaos. Start the healing.

07/30/2026

There's a version of the healthcare crisis that never shows up on a bill. Families paycheck to paycheck, trying to figure out how they'll manage the next hospital charge. Parents staying up until 2 or 3 in the morning researching their child's condition, then going to work overtired and stressed. The financial cost is real. The invisible cost is harder to measure and often larger.

When you take that weight off a family, you can't calculate the value on a spreadsheet. But you can absolutely see it in their outcomes.

Every family caring for a child with a complex condition is running two full-time jobs at once. Their actual work. And the exhausting, unpaid labor of navigating the healthcare system on their child's behalf.

→ Late-night research sessions no one else sees

→ Coordinating appointments between specialists who don't talk to each other

→ Advocating for care that should have been coordinated by the system itself

→ Absorbing the emotional cost of a system that isn't working for them

When someone finally steps in to carry that burden alongside the family, the change isn't just emotional relief. It shows up in measurable ways. The family sleeps. The parents perform better at work. The relationships in the household stabilize. The child gets more consistent care because the adults around them aren't running on empty.

Then something else happens that most healthcare economists underestimate. As the family gets the right care faster, the volume of care they need begins to drop. Fewer specialist visits. Fewer emergency escalations. Fewer avoidable interventions.

That's the double return. You improve the quality of the family's life immediately. You reduce the ongoing cost of their care meaningfully. Both benefits compound over time.

The dollar value on the family's relief is impossible to fully calculate.

The reduction in service utilization is completely measurable.

Add them together and you get a picture of what better healthcare actually looks like when it works. Less strain on the family. Less cost to the plan. Better outcomes for the child.

That's not just a nice story. That's the model that finally makes the math work for everyone in the equation. That's model that you get with Sunstone Health.

07/29/2026

For families navigating a complex diagnosis, the most expensive part of the journey isn't the diagnosis itself. It's the waiting. The bouncing from specialist to specialist. Each visit carries a real cost, and those costs compound in ways families rarely calculate until they're deep into the process.

Every specialist visit has a price tag. Every month of waiting has a hidden cost too. Together, they add up faster than most families realize.

The typical journey through the healthcare system for a hard-to-diagnose condition looks the same for almost every family. See one specialist. Get referred to another. Wait weeks or months for the next appointment. Repeat.

→ Each visit generates copays and out-of-pocket costs

→ Each visit consumes time off work for parents and caregivers

→ Each month of waiting is another month the underlying condition progresses

→ Each transition between specialists loses context and forces re-explanation

The financial cost is only the visible layer. Underneath it sits the true expense. Lost work. Emotional exhaustion. Delayed intervention that lets the condition worsen. Marriage strain. The compounding weight on siblings and extended family.

None of that shows up on an insurance statement. All of it hits the family harder than the actual medical bills.

That's why compressing the timeline matters so much. Every month you can remove from the diagnostic journey is a month of costs avoided, damage prevented, and family stability preserved.

The specialists aren't the problem. The disconnected, sequential, waiting-heavy structure of the journey is.

Fix the structure. Compress the timeline. Let families get answers in weeks instead of years, and the costs, financial and otherwise, drop dramatically.

That's the version of healthcare families actually deserve and receive with Sunstone Health.

07/28/2026

Knowing how to manage your child's condition has a value no parent can put a number on. The relief itself is priceless. But there's a second layer of value in this work that most families don't fully appreciate until they're inside it.

Participating in this process isn't just helping your own child. It's directly investing in the future of healthcare for every child who comes after.

When a family participates in advanced diagnostic and treatment programs, their contribution stretches far beyond their own household. Every data point matters. Every case adds to the collective understanding. Every family who moves through the process leaves the system better prepared for the next family walking through the same door.

→ Your child's case advances the science for children who share similar conditions
→ Your family's experience improves the protocols the next family will benefit from
→ The interventions tested today become the standard of care tomorrow
→ Every step forward compounds into faster, better outcomes for future patients

It's no longer just about surviving your own family's journey. It's about contributing to a future where fewer families have to endure what yours did. Where the seven-year average diagnostic timeline shrinks. Where the fragmented specialist maze becomes something less exhausting for the parents who come next.

Recognizing that is one of the most powerful gifts inside the experience. It transforms a difficult journey into meaningful work. It gives the sleepless nights, the endless research, and the emotional toll a broader purpose that extends beyond any single household.

Managing your child's condition well is the immediate return.

Investing in the future of healthcare for all children is the compounding one.

That combination makes participating in this process one of the highest-value uses of a parent's time. You're not just navigating a system for your family. You're helping build the system that finally works for every family that follows.

07/27/2026

A child with a rare disease costs somewhere between seven and ten times what a typical child costs when they get sick. That's not a slight uptick. It's a massive multiplier that reshapes budgets for families, employers, and health plans. The bigger problem is what all that money actually buys.

Seven to ten times the cost isn't producing seven to ten times the outcomes. It's producing a black box of receipts nobody can trace back to actual health.

The financial burden alone is enormous. Families feel it in copays, out-of-pocket expenses, and the countless hours of lost income spent navigating appointments. Employers feel it in the health plans they sponsor. Every single one of them absorbing costs at multiples they never planned for.

→ Rare disease care generates 7-10x the spend of typical pediatric care

→ Families face financial strain that most employer benefits weren't designed to absorb

→ Employers see the invoices without any visibility into what they're buying

→ Nobody in the system can point to health outcomes that justify the spend

The most damaging part is the visibility problem. Employers describe it accurately. A black box of receipts. Money flowing out. Care flowing to families. But no clear line of sight into whether that care is actually helping children get healthier.

The result is a system where the highest-cost patients are also the ones most likely to be underserved by the very care they're paying for. Bad for their health. Bad for their families. Bad for the plans footing the bill.

That's the gap that has to be closed. Not by capping the spend arbitrarily. By ensuring the spend produces measurable, meaningful improvements in health.

Rare disease children deserve care that matches the cost of delivering it.

Families deserve confidence that their financial sacrifices are producing real results.

Employers deserve visibility into what they're actually funding.

Fix the outcomes and the cost math starts to make sense. Bring in Sunstone Health to help close the gap.

07/21/2026

Every doctor is already doing research on their patients. Looking things up. Trying to figure out the right next step for a case that sits outside their immediate expertise.

We just take that part of the equation off their hands entirely.

𝗣𝗿𝗲𝗰𝗶𝗼𝘂𝘀 𝗼𝗳𝗳𝗶𝗰𝗲 𝘁𝗶𝗺𝗲 𝘀𝗽𝗲𝗻𝘁 𝗮𝘀𝗸𝗶𝗻𝗴 "𝘄𝗵𝗮𝘁 𝗱𝗼 𝗜 𝗱𝗼 𝗵𝗲𝗿𝗲" 𝗶𝘀 𝘁𝗶𝗺𝗲 𝗻𝗼𝘁 𝘀𝗽𝗲𝗻𝘁 𝗼𝗻 𝘁𝗵𝗲 𝗽𝗮𝘁𝗶𝗲𝗻𝘁. That gap does not stay empty. It gets filled by delay, by uncertainty, by referrals that take weeks, or by decisions made with less confidence than anyone in that room deserves.

→ Bringing specialty knowledge directly to the patient removes the friction between the question and the answer

→ The physician stays in the relationship while the expertise fills the gap they should not have to cover alone

→ Working alongside the doctor rather than around them means the patient gets both the relationship and the depth

→ Time saved in the office compounds across every patient that follows, not just the one in front of them today

The research burden that currently sits on physicians for complex cases is real and it is being absorbed in ways that cost everyone. It costs the doctor time. It costs the patient accuracy. It costs the system efficiency that nobody is measuring but everyone is paying for.

Specialty brought directly to the patient is not a workaround. It is what the system should have been designed to do from the beginning.

The right expertise, already there, before the appointment runs out of time.

That is the difference between a physician guessing and a physician deciding.

07/20/2026

The entire point of a healthcare system is to keep people healthy and get them healthy when they are not.

When it consistently fails to do that the frustration is not an overreaction. It is the correct response to a system that has drifted from its only purpose.

𝗧𝗵𝗮𝘁 𝗳𝗿𝘂𝘀𝘁𝗿𝗮𝘁𝗶𝗼𝗻 𝗶𝘀 𝘄𝗵𝗮𝘁 𝗱𝗿𝗶𝘃𝗲𝘀 𝗽𝗲𝗼𝗽𝗹𝗲 𝘁𝗼 𝗯𝘂𝗶𝗹𝗱 𝘀𝗼𝗺𝗲𝘁𝗵𝗶𝗻𝗴 𝗯𝗲𝘁𝘁𝗲𝗿. Not to replace the system entirely but to build the parts of it that are missing. The navigation. The support. The path that gets a family from where they are to where they need to be without requiring them to carry the full weight of figuring it out alone.

→ Stress absorbed by families navigating a broken system is stress stolen from the life they are trying to live

→ People who have already built solutions to parts of this problem are the fastest path to families getting real help

→ You should not have to become an expert in healthcare administration just to get your child the care they need

→ The goal is simple: get people down the path so they can go live their lives

There are people who have spent years mapping this terrain, building tools, creating support structures, and connecting families to the resources that exist but were never made findable. That work is already done in many places. The problem is access and awareness, not availability.

Being part of that solution means one less family sitting in a parking lot feeling alone. One less parent spending their evenings researching instead of being present with their kids. One less person carrying stress that a better system would never have handed them in the first place.

You deserve to live your life. Not manage a maze.

Sunstone Health exists to help you navigate the imperfect system and get answers.

07/17/2026

At the family level the incentive is simple. You want your kids to be happy and healthy. Full stop.

At every other level of the healthcare system the incentives are different and most of them are not pointing in the same direction yours is.

𝗗𝗼𝗰𝘁𝗼𝗿𝘀 𝗮𝗿𝗲 𝗿𝗲𝘄𝗮𝗿𝗱𝗲𝗱 𝗳𝗼𝗿 𝘃𝗼𝗹𝘂𝗺𝗲. Insurers are rewarded for minimizing payouts. Hospital systems are rewarded for procedures. Pharmaceutical companies are rewarded for prescriptions. None of those incentive structures have your child's happiness and health as their primary output. They have it as a byproduct at best and an afterthought at worst.

→ Competing incentives inside the system do not cancel each other out, they create friction that the family absorbs

→ A doctor with eleven minutes per appointment is not withholding care, they are operating inside a system that priced their time that way

→ An insurer denying a referral is not being cruel, they are responding to incentives that reward denial over approval

→ The family sits at the end of every one of these competing forces with no advocate whose incentive is purely aligned with theirs

The system is not broken in the way most people mean when they say that. It is working exactly as its incentives designed it to work. The problem is that the incentives were never organized around the outcome that matters most to the people inside it.

Your incentive as a parent is the clearest and most urgent one in the entire chain. Happy and healthy kids.

Every other incentive in the system needs to be mapped, understood, and navigated on your behalf by someone whose only stake in the outcome matches yours.

That alignment is rarer than it should be. It is also the only thing that actually moves the needle for your family.

Sunstone Health exists for that very reason: to help families like yours.

07/16/2026

Everyone in the healthcare ecosystem eventually agrees on the same core truth.

𝗣𝗮𝘁𝗶𝗲𝗻𝘁𝘀 𝗻𝗲𝗲𝗱 𝗿𝗲𝗮𝗹 𝗮𝗻𝘀𝘄𝗲𝗿𝘀, 𝗮𝗻𝗱 𝘁𝗵𝗲𝘆 𝗻𝗲𝗲𝗱 𝘁𝗼 𝗳𝗲𝗲𝗹 𝘀𝗲𝗲𝗻 𝘄𝗵𝗶𝗹𝗲 𝗴𝗲𝘁𝘁𝗶𝗻𝗴 𝘁𝗵𝗲𝗺.

I sit in rooms with pharmaceutical companies, clinical trial coordinators, patient advocates, CHROs, and patients themselves. Different agendas. Different priorities. Different pieces of the puzzle. But every one of them recognizes the same thing about what people actually need when they walk into a doctor's office.

The patient shows up hurting. They've already been through the internet, which was terrifying. By the time they reach the appointment, they need a diagnosis. They need a treatment plan. They need a clear path forward that actually works for their situation. Solutions are the whole reason they came.

Alongside that, they need to feel like the person delivering those solutions actually sees them. Not because being seen replaces getting answers, but because guidance without care lands differently than guidance delivered by someone who understands the weight the patient is carrying into that room.

Both matter. And the healthcare system tends to fail on both fronts at once. Patients leave without answers, and without the sense that anyone was really looking at their specific situation.

I know this from both sides. I've built Sunstone Health to help families actually get to answers. And I've lived the experience as the father of a son who's been on this journey for almost 11 years.

𝗪𝗵𝗮𝘁 𝘀𝘁𝗶𝗹𝗹 𝘀𝘂𝗿𝗽𝗿𝗶𝘀𝗲𝘀 𝗺𝗲, 𝗲𝘃𝗲𝗻 𝗮𝗹𝗺𝗼𝘀𝘁 𝗮 𝗱𝗲𝗰𝗮𝗱𝗲 𝗶𝗻, 𝗶𝘀 𝗵𝗼𝘄 𝗺𝘂𝗰𝗵 𝘄𝗲𝗶𝗴𝗵𝘁 𝗜 𝘀𝘁𝗶𝗹𝗹 𝗰𝗮𝗿𝗿𝘆.

Our situation is relatively under control. We have a diagnosis. We have a treatment plan. We have specialists who understand what's happening. On paper, we're one of the lucky families. And yet the weight doesn't fully lift. It just gets easier to carry.

That's the reality of parenting a child with a chronic or complex condition. The stress doesn't disappear even after the answers arrive. You just build the capacity to hold it. And most families don't have anywhere near the support system, or the answers, needed to reach that point in the first place.

The healthcare system needs to grapple with this honestly. Patients aren't just diagnoses waiting to be closed out. They're humans searching for solutions while carrying invisible weight. The best care delivers on both. Real answers, delivered by someone who recognizes what the patient has been through to get to that appointment.

Solutions come first. But the way they're delivered shapes whether families walk out feeling like they can finally move forward, or like they just cleared one more hurdle in a race that never ends.

The system that gets both right is the one families will trust for generations.

07/15/2026

My son has been struggling to breathe for two weeks. It sounds like he's underwater when he inhales. He's such a trooper about it, still up and playing, but you can see how uncomfortable he really is.

𝗪𝗲 𝘄𝗲𝗿𝗲 𝗮𝘁 𝗼𝘂𝗿 𝗱𝗼𝗰𝘁𝗼𝗿'𝘀 𝗼𝗳𝗳𝗶𝗰𝗲 𝗿𝗲𝗰𝗲𝗻𝘁𝗹𝘆 𝘄𝗵𝗲𝗻 𝘀𝗼𝗺𝗲𝘁𝗵𝗶𝗻𝗴 𝗿𝗲𝗺𝗮𝗿𝗸𝗮𝗯𝗹𝗲 𝗵𝗮𝗽𝗽𝗲𝗻𝗲𝗱.

One of the nurse practitioners said, "I had a patient with PFAPA years ago. I actually know what this is."

That single sentence was extraordinary to me. Because when we were at rheumatology at Boston Children's Hospital, one of the top pediatric hospitals in the country, the specialist we were speaking with didn't know what PFAPA was.

A nurse practitioner at a general practice recognized a rare condition that a specialist at a leading children's hospital had never encountered. Not because Boston Children's isn't excellent. It absolutely is. But because rare disease knowledge is scattered across the medical system in ways that make no logical sense. The person who happens to know the answer might be a nurse in the office you visit every year, while the specialist you flew across the country to see has no idea.

That's the reality of navigating rare disease as a parent:

→ You cannot assume the biggest hospitals have all the answers
→ You cannot assume the specialists know your specific condition
→ You cannot assume the system will connect the dots
→ You have to be an active advocate for your child at every step

𝗕𝗲𝗶𝗻𝗴 𝗽𝗮𝗿𝘁 𝗼𝗳 𝘁𝗵𝗶𝘀 𝗲𝘅𝗽𝗲𝗿𝗶𝗺𝗲𝗻𝘁 𝗼𝗳 𝗿𝗮𝗿𝗲 𝗱𝗶𝘀𝗲𝗮𝘀𝗲𝘀 𝗶𝘀 𝗵𝘂𝗺𝗯𝗹𝗶𝗻𝗴 𝗮𝗻𝗱 𝗲𝘅𝗵𝗮𝘂𝘀𝘁𝗶𝗻𝗴 𝗮𝘁 𝘁𝗵𝗲 𝘀𝗮𝗺𝗲 𝘁𝗶𝗺𝗲. You become the coordinator of your child's care. You become the person tracking symptoms across specialists who don't communicate with each other. You become the one connecting the dots that a fragmented system leaves scattered.

This is why services like Sunstone Health exist. Because families should not be the ones bearing the weight of a diagnostic scavenger hunt across institutions. The knowledge to help these kids exists somewhere in the system. Getting it into the right hands, at the right time, in front of the right doctor, is the problem worth solving.

Nurse practitioners recognizing rare conditions in a small office while specialists at world-class hospitals miss them isn't a criticism. It's a reflection of how randomly medical knowledge is distributed. Fixing that randomness is what changes outcomes for families like mine.

07/14/2026

For some families the map is everything. Show them where to go and they will get there on their own.

For others the map is not enough. They are exhausted, they have three other kids, and knowing the path exists does not mean they have the capacity to walk it.

𝗧𝗵𝗮𝘁 𝗶𝘀 𝘄𝗵𝗲𝗿𝗲 𝘄𝗲 𝗽𝗶𝗰𝗸 𝘆𝗼𝘂 𝘂𝗽 𝗮𝗻𝗱 𝗰𝗮𝗿𝗿𝘆 𝘆𝗼𝘂 𝗱𝗼𝘄𝗻 𝘁𝗵𝗲 𝗽𝗮𝘁𝗵. Not because the family is incapable. Because their bandwidth is already consumed by everything else that does not stop just because a diagnosis arrived.

→ The map removes the feeling of being on an island and gives families a direction to move in immediately
→ Carrying someone down the path means doing the navigation work so they can stay focused on their child
→ Both forms of support are valid and the right one depends entirely on what the family can actually carry right now
→ Meeting people where they are is not a service feature, it is the only way support actually works

The goal has never been to make every family navigate the same way. It has been to make sure no family is left standing still because the support they received did not match the support they actually needed.

Give people the map. And for the ones who need more than that, be willing to make the journey with them.

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