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Unsteadyandready Hey Erin here Diagnosed with ALS at 23

10/15/2026

I’m not the only one who feels loss when a fellow ALS warrior dies. My mom just looks at me a little harder and a little longer, with a little more love in her eyes.

All I can do is keep on keeping on.

ALS is winning this war and I’ve lost some meaningful people this year and it isn’t fair. Darin, Sarah, Brooke, Leah, Steph, Carly, Iomar, Eric Miss you all so much 🙏🏼 thank you for helping me see the best in humanity, the fight continues because of the work you put in.

10/13/2026

ALS is something we have.
Fabulously spectacular creatures are who we still are.

10/09/2026

Out of all the adventures I’ve had since being diagnosed with ALS, this was my first and by far the BEST!

It was a total blast!! I honestly didn’t think they could get my body into that race car, but they did! And everyone I met that day was so kind, loving, and had the biggest hearts. ❤️❤️

RACING for ALS is the real deal. Grassroots fundraising that goes directly toward helping people living with ALS. They were so incredibly kind to me, and I will never forget them or that weekend.

And here’s the BEST news! Thanks to the generosity of so many people, they just reached their fundraising goal this year and were able to help 75 people living with ALS get the support they need!

That’s 75 lives made a little easier because people cared enough to do something.

Fast cars. Big hearts.

Thank youuuu🥰 all my friends helping me spread the word about ALS. My message has always been clear.  ALS can hit anyone...
10/07/2026

Thank youuuu🥰 all my friends helping me spread the word about ALS. My message has always been clear. ALS can hit anyone out of the blue. Whether you’re wise in years, or still in college (like me) And it’s still terminal. We still have work to do and I need you! Keep helping, keep pushing, keep commenting and liking and sharing. Believe me, there are tons of people who don’t know even the first thing about it. Xoxo Erin

10/07/2026

I have the phrase “mom help me” programmed into my eye gaze

Erin here. I have ALS. ALS is a terminal disease however I also have the will to keep living, so I guess I will do whatever I can do for as long as I can, while ALS keeps happening in the background.

Btw what would I do without my mom?
Don’t wanna find out

10/06/2026

My daughter has the worst disease known to man and yet every morning she wakes up smiling.

I had no idea what I was  doing when I was first diagnosed,  so I just watched Brooke. Just by sharing her life she made...
10/02/2026

I had no idea what I was doing when I was first diagnosed, so I just watched Brooke. Just by sharing her life she made me feel normal. So many layers of feelings I have right now. Most is gratitude and loss.

Dear Brooke, thank you for being my tutorial, and for being so GD funny. My mom and I would watch your reels at night and just giggle. You made this disease feel so absurd and somehow do-able.

No one matches you

thank you for letting us in and letting us all be a part of your journey. You are pure magic.

RIP Brooke Eby

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