AADC Family Network

10/23/2025

https://aadcnews.com/columns/from-quiet-listener-advocate-every-story-matters-aadc-awareness-day/?fbclid=IwY2xjawNnEPxleHRuA2FlbQIxMQABHp-hr-2W35I2TVU27JPn1MW7oXYm8EwiHGV14gV2LgiesYZWcC3NYBZTpAwo_aem_TGv0AJaEsd2SE-pG-49N5A

Columnist Richard E. Poulin III writes about how his experience with AADC deficiency helped him embrace his role in awareness and advocacy.

08/27/2025

Families with an AADC child… 🦋

We are preparing for AADC Awareness Day on October 23, 2025, and would love to include ALL of our incredible children in this year’s tribute.

✨ For those who have received gene therapy, we want to celebrate your amazing progress and milestones.

💜 For those still waiting, we want to honor your bravery, resilience, and the daily fight for treatment.

Together, we can show the world our children’s strength, their hope, struggles, and why every child deserves a chance for gene therapy.

If you would like your child included, please reach out to Kelly or DM (direct message) her for more information on how to send photos/videos.

11/17/2024

Amazing News:
PTC Therapeutics Announces FDA Approval of AADC Deficiency Gene Therapy - Click on link for Press Release.

11/17/2024

Breaking News
FDA Approves Life-Changing
Gene Therapy for AADC - USA

10/22/2024

Gentle Reminder:

Tune in tomorrow at 11am LIVE for our 5th annaual Awareness Day. We have a touching program you don’t want to miss!

10/06/2024

09/23/2024

https://www.facebook.com/100081584906812/posts/516940101035482/?

05/15/2024

Wow!! How amazing is this press release....We are one step further to saving so many young lives. Hard work pays off!

The Investor Relations website contains information about PTC Therapeutics, Inc.'s business for stockholders, potential investors, and financial analysts.

10/23/2023

Thank you, Rylae! You are a warrior. Teach RARE