Inflammatory Breast Cancer (IBC) Research Foundation

05/23/2026

Do you know we have an e-newsletter? Admittedly it's rather sporadic in nature but it's certainly worth reading! Here's a link to the most recent issue. Check out what's happening in !!

Email from Inflammatory Breast Cancer Research Foundation Educating about IBC through conferences, films and blog posts!     Late Spring 2026   Raising Awareness for IBC at NCoBC 2026 -Thelma P. Brown

05/11/2026

Reminder....the IBC Support Group meets this week on Thursday, May 14. Great opportunity to meet others dealing with IBC and receive guidance from a professional counselor. Register at the link below.

Join our free monthly IBC Online Support Group to connect with others, share experiences, and find expert-guided emotional support. Hosted virtually, this group offers a safe space to discuss IBC symptoms, treatments, side effects, and real-life coping strategies.

05/10/2026

Thinking of all the mothers who are struggling through treatment, worried about their families and what's ahead. Know that we're here to help, support and encourage you. It's our goal to improve the lives of those facing with better treatment & survival.

04/25/2026

The Inflammatory Breast Cancer Research Foundation is excited to share that , Dying for a Cure is nearing completion and preparing for release in the fall. This film was inspired by Anya Silver's experience with metastatic IBC and the relationship she developed with others facing metastatic disease. Anya was a member of the IBCRF Board, an award winning poet and educator. https://www.facebook.com/share/p/1DFJNE7cN8/

We’ve been waiting to share this.

Introducing IV: Our Lives

Produced by World on Fire Films and written and directed by Andrew Silver, in association with the Inflammatory Breast Cancer (IBC) Research Foundation, this documentary film brings together powerful real stories that demand to be heard.

This project represents exactly the kind of work we’re committed to making. Honest, human, and driven by purpose.

This is just the beginning. There’s a lot more coming.

Follow World on Fire Films for updates on IV: Our Lives and future projects currently in development.

03/19/2026

We congratulate Ginny (our Exec Director) on celebrating her 32nd cancerversary on March 18, 2026!! When she was diagnosed in 1994, survival was 12-18 mo. With no family history of cancer, she didn't know about and thought all breast cancer had a lump. Since that time she has dedicated her time and talents to making sure people know about and works to help people advocate for themselves when faced with a cancer diagnosis.

03/19/2026

If you have been diagnosed with brain metastases and/or leptomeningeal disease (LMD) and would like to share your experience to help improve research and patient support, please click the link below to submit your interest. A survey link will be sent to you individually via email shortly after.

Link: https://surveys.sago.com/survey/selfserve/1819/g0db/260318?list=7 #?

03/05/2026

The Dana-Farber Cancer Institute IBC program is offering a patient forum on April 11, at 10 am. EDT. This open to patients, family members and others who provide support to those facing IBC. If you'd like to participate, click on the link and register for the forum.

Join us on Saturday, April 11, at 10 a.m., for our 8th Annual Inflammatory Breast Cancer Patient Forum. This free virtual forum will provide information about inflammatory breast cancer for patients, their friends and loved ones, and healthcare professionals. All are welcome!

03/01/2026

is every day for those of us diagnosed with . Our disease falls under the Office of Rare Diseases at NIH. While breast cancer isn't rare, there are subtypes of that are unique and require specialized treatment. Inflammatory Breast Cancer (IBC) Research Foundation works daily to raise the profile and needs of patients worldwide. Visit our website at www.ibcresearch.org to learn more.

02/17/2026

Do you know if you have dense breast tissue? Having dense breasts means it's harder to find abnormalities like cancer on a mammogram. It's hard to pick up on a mammogram anyway, so if you add dense tissue, it's even harder. Talk to your Dr. about additional screening and visit My Density Matters for more information.

02/14/2026

Today is and February is . It's important to pay attention to your body and follow-up when something doesn't seem right. Many chemo treatments can cause heart damage. While celebrating today, enjoy that dark chocolate but don't forget to get those regular check-ups for your heart health!