Living with Cystic Fibrosis

Living with Cystic Fibrosis Information found on this site has not been evaluated or given by a doctor, it is strictly my opinio

05/28/2026

Explore the details: https://bit.ly/4wADtgW

Starting a family when you have CF often comes with extra questions. We explore how assisted reproductive techniques like IVF and genetic screening can help you navigate the journey to parenthood.

05/28/2026
05/28/2026

Wear Yellow Day 2026 is just around the corner, and we can't wait to see what you do to support the 11,000 people living with in the UK.

From bake sales to sponsored walks, tea parties to dress down days, just remember that whatever you do, do it in yellow! đź’›

Visit our website to find out more and sign up:

www.cysticfibrosis.org.uk/yellow

If organising your own fundraiser isn't for you, then consider signing up our new 5k challenge. Walk it. Run it. Wheel it. Any day in June. Every pound raised helps fund life-saving research and a brighter future for everyone with CF.

05/28/2026

“Cystic fibrosis is often described as an invisible battle — one that many people don’t understand unless they’ve lived it or loved someone who has. It’s a genetic condition that demands daily treatments, hospital visits, and a level of resilience that most people never have to consider. But CF doesn’t just impact the body — it profoundly shapes relationships, friendships, and social interactions.” - Carter Jones, an adult with cystic fibrosis

04/20/2026
04/20/2026

Watch Now: A Laughing Matter? Stand-Up Comedy & CF 🤣

Finding humor in difficult times can be a powerful coping tool. For people living with CF, it can bring levity to experiences that are often confusing, frustrating, and painful. In this podcast, Mimi Salonen, an adult with CF, shares how pursuing stand-up comedy became both a creative outlet and a way to fulfill a lifelong dream, all while raising awareness about CF and making audiences laugh along the way.

đź‘€ Watch on Youtube: https://youtu.be/Db2fuN06mmU
đź‘€ Watch on PodBean: https://www.podbean.com/pw/pbblog-6x5ju-17b502

Made possible with funding from Viatris, Vertex Pharmaceuticals, AbbVie, Genentech, Gilead Sciences, and ReCode Therapeutics.

04/20/2026

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