03/15/2026
Hey guys . Edgar had a repeat bronch Friday . It went well far as afterwards. They listened and did a low volume bronch using less fluid . He recovered great .
We were treated very nasty by nurses sadly . This place is god awful and so trashy , their nurses are pure trash with the way they treat patients . Anyways we are consulting with the transplant facility in Philly for possible transfer ! Fingers crossed !
No rejection was detected !!!! Thank god ! Treatment worked but this will be monitored closely as it can come back and be even worse next time .
We did have some other results come in showing other stuff , I’ll update once Hopkins calls with that and what they will do .
We are currently at Easton er , getting ultrasound of his arm as he’s got signs of blood clot . He stopped his clotting meds as it’s been 6 months . I called this actually & told him this is a bad idea and that I didn’t agree with them stopping the meds . He’s super high risk for them . The procedure alone could have caused clots outside of already being high risk . He has a blood clot in his neck as I was typing this as they were doing the u/s . They are treating him from home for now .
Please keep prayers coming as life has no been quite “ normal “ . We are trying to adjust to a new normal & it’s been hard to say the least .
I’ve def learned to let stupid things go and enjoy life as we can every day . Things have not been smooth at all . If anything at all could happen , it’s happened . I’ve learned to let the sink full of dishes not worry me as it normally does , laundry piling up not bother me as time is more important.
My job , my bosses & co workers have been such a huge support system for me and him as well . Always asking how he’s doing , checking in with me . I’m blessed for my job and the ppl I work for and with ! Never felt so at home with a job as I do here at Preston Toyota ! This was not a job/position I ever imagined myself in and it falling In my lap as it did was gods way of showing me I can do anything I put my mind too .
Thank you to all our amazing friends and family for the support in every way possible ! Please continue to pray for him !
My kids , thank you and mama loves you all so much ! I’m blessed with the perfect family. We have been down in every way possible but my kids helped me in more ways then they even know ! I love you kids more than life itself !
Much love Edgar and Amber
