UNC Adult Cystic Fibrosis Center

UNC Adult Cystic Fibrosis Center The UNC Cystic Fibrosis (CF) Center partners with patients and families to provide comprehensive care for individuals with CF.

The UNC Cystic Fibrosis Center provides care based on a foundation of open communication, shared learning, and a desire to promote healthy and productive lives. Our center strives to be a leader in cystic fibrosis education, advocacy, research, quality improvement, and clinical outcomes to enhance the quality of life and normal life spans in all patients with cystic fibrosis.

CF Insights Survey: Complete by Sept 7th!
09/04/2026

CF Insights Survey: Complete by Sept 7th!

Have 10–15 minutes? That’s all it takes for you to help shape the future of cystic fibrosis care and support.

The Annual CF Insights Survey is open now through Sept. 7, and your perspective matters — whether you're living with CF, caring for someone who is, or a donor or volunteer.

This survey is your space to share the big picture: what's working, what's hard, and what would make a real difference right now. Share your feedback today!

This is the type of news that gets us up in the morning! 🫁🌹💜
08/21/2026

This is the type of news that gets us up in the morning! 🫁🌹💜

“If you believe in miracles, here’s one.”

Twenty years ago, a 16-year-old girl with cystic fibrosis underwent a second double-lung transplant at UNC. Today, she’s a 36-year-old mother who is breathing easily, living independently, and celebrating two decades since that life-changing surgery.

For transplant surgeon Dr. Thomas Egan, seeing her return to UNC 20 years later was a powerful reminder of why transplant medicine matters. He does not believe the program had previously seen a re-transplant recipient reach the 20-year milestone. Recent data show just how unusual her outcome is: five-year survival for patients with cystic fibrosis undergoing repeat double-lung transplantation is approximately 39%.

“So she is extremely lucky,” Egan said. “If you believe in miracles, here’s one.”

When asked what she would say to a 16-year-old facing a re-transplant today, she offered the perspective that only someone who has lived through it can provide: “It might be hard, but things will eventually get better. Life can be normal after transplant.”

08/17/2026

Have 10–15 minutes? That’s all it takes for you to help shape the future of cystic fibrosis care and support.

The Annual CF Insights Survey is open now through Sept. 7, and your perspective matters — whether you're living with CF, caring for someone who is, or a donor or volunteer.

This survey is your space to share the big picture: what's working, what's hard, and what would make a real difference right now. Share your feedback today!

07/18/2026

From bloating and constipation to stomach pain and discomfort, gastrointestinal (GI) issues can affect your daily life in ways that aren’t always visible.

Join a virtual, small-group discussion July 28 at 7 p.m. ET where adults with cystic fibrosis, parents, and caregivers can connect with others who understand. Share your experiences, learn from others, and get the support you need in a judgment-free space.

07/08/2026

The What's Your Gap Grant application closes July 10! Not exclusive to exercise, selected grant recipients receive up to $1,000 to help bridge the gap that cystic fibrosis has created in their ability to live the healthy lifestyle they desire.
Application details:
- Requires a video application in which applicants explain their challenges and how the grant will help support them.
- Open to people ages 13+ living with CF
- Maximum grant request is $1,000
- Those who have already received a BreatheStrong CF Exercise Grant during the 2026 calendar year are not eligible for a What's Your Gap grant.

Get full grant application details and apply at https://breathestrongcf.org/wyg

Closing The Gap Foundation

06/21/2026

Today, we honor the fathers, grandfathers, and father figures in the CF community. The caregivers, advocates, and everyday heroes who go above and beyond with love, strength, and compassion.

Whether you're cheering on a child living with cystic fibrosis or navigating your own CF journey as a dad, we see you, we thank you, and we stand with you. Your courage fuels our mission.

06/10/2026
Last weekend, some of our extraordinary CF physicians and nurses enjoyed a night out at the second annual Filotimo Found...
06/08/2026

Last weekend, some of our extraordinary CF physicians and nurses enjoyed a night out at the second annual Filotimo Foundation Gala raising funds for CF! Thank you Filotimo Foundation for your continued support of our patients!

06/05/2026

Happy 65 Roses Day! 🌹🫁💪

Our UNC Adult and Pediatric teams had a wonderful time at the Triangle Great Strides this year! Big thanks to the Cystic...
05/19/2026

Our UNC Adult and Pediatric teams had a wonderful time at the Triangle Great Strides this year! Big thanks to the Cystic Fibrosis Foundation - North Carolina Chapter Raleigh Office 👏🏻

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125 Mason Farm Road
Chapel Hill, NC
27599

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