Surviving Scleroderma; Adriana's Journey

Surviving Scleroderma; Adriana's Journey This page is dedicated to bringing awareness to the monstrous autoimmune disease currently affecting my life, known as Scleroderma.

Thank you for joining me as I document my life, health, and journey along the way.

08/01/2024

Thank you for visiting our page! We're fundraising for a cause that's very important to us - finding a cure for scleroderma. Register, donate and walk with us on August 6 in Waubonsie Lake Park in Aurora. We'd love to see you there!

🦋 We got this 👊🏼
06/29/2024

🦋 We got this 👊🏼

08/15/2023

Endoscopy time 🙏🏼

01/05/2022

Hello 🌍, I’m sorry for not keeping everyone updated on my recovery. So far, things have been ok. I was put back on Cellcept for a few months because my rheumatologist thought I relapsed since I started showing signs of skin tightening on both arms. However, it appears to have stopped. My skin score everywhere else has improved!!! 🙌🏼. I am still trying to adjust to my new norm, and enjoying my family and friends as much as possible! Stay safe, and healthy……

It’s been a long, not so easy journey!!! Full of struggles, emotions, anxiety, depression, sadness…. But, I am here!!!! ...
07/27/2021

It’s been a long, not so easy journey!!! Full of struggles, emotions, anxiety, depression, sadness…. But, I am here!!!! Strong, positive, and full of faith…. Happy Rebirthday to me 07/27/2020 ❤️🦋🙏🏼🙌🏼

07/14/2021

Hello 🌎,

Today, last year I had my line put in! I clearly remember the pain and discomfort 😔 I would do all over again 🦋 Duke gave me a second chance at life ❤️ thank you all for all the support 🙏🏼

05/21/2021

Hello everyone! I am sorry I haven’t posted in a long time... I have been trying to focus on healing, getting stronger, and healthier. I can’t say it has been easy because it hasn’t. I suffer with anxiety, and sometimes feel depressed! Having a transplant is super harsh on your body, soul, and mind.... I continue to stay optimistic.....

10/21/2020

Hi 🌎

I know I haven’t been on here for some time now. Things have been very difficult for me these past few weeks. I was admitted into the hospital the day after I was given the shots because I developed a fever. The fever lasted 5 days. I was finally discharged 9 days later with extreme joint pain. Doctors indicated the pain would last a week or two (Side effect of the shot). However, it’s been way over 2 weeks and I am barely feeling less pain. I don’t wish this pain on anyone.. It truly has been the scariest time in my life. A lot of things start to run through your mind “Am I going to get better, worse?!?!?!?!” I have an appointment with Duke in two weeks. Hopefully they can shed some light 🦋

I hope everyone is well. I love you all ♥️ Thank you for the support, for the calls, and text messages. Keeps me feeling alive 🦋

09/25/2020

Hi 🌎

Sorry I haven’t been posting. I haven’t been feeling well. My WBC has gone down to 1.0. I’m at the hospital getting more blood work done, and getting a shot that will help boost 🤦🏻‍♀️ the WBC count. 🦋🙏🏼

09/10/2020

Finally home ♥️

09/04/2020

Therapeutic 🦋

Address

1040 N Lake Shore Dr
Chicago, IL
60611

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