Take Back My Life

Take Back My Life Musings, raw refections, advocacy, healing and examining according to my moral compass My name is Briana Beaver, and I'm taking back my life!

I have been overcoming extreme and extraordinary obstacles since my birth. An hour after I was born, I died. I was resuscitated, but the event left me with permanent brain damage, resulting in Cerebral Palsy. When I was 9 years old, I mysteriously started to experience health problems that included gastrointestinal, pulmonary, metabolic, and neurological symptoms. But I never let this stop me. I p

ursued my passions, and did my best to live a normal life. I graduated high school in 3 years, and in 2011 I graduated from Chico State, Summa Cum Laude, with a degree in Sociology. It was then that my health became even worse. The pain became horrifically intense. I had extreme sensory overload, so that every stimulus - sight, sound, and smell - everything caused pain. I was so mysteriously debilitated that I was unable to eat or drink. By summer 2012 I was in Stanford Hospital, wasted away to 75 lbs. The pain was so torturous that I welcomed the thought of death. In December of 2014, my medical mystery was finally given a name: Lyme Disease. Since then, I have undergone an extremely expensive battery of treatments, none of which are covered by insurance. I have improved, but I’m still incredibly medically fragile. I’m currently unable to read for more than 10 minutes at a time, and can’t use a computer or TV for any length at all. I had to dictate this message because I’m unable to write it myself. However, I desperately needed to share how deeply I’m committed to moving forward. It’s time for me to FINALLY take back my life! My family is organizing the Take Back My Life campaign to help pay for the extremely expensive treatments Briana direly needs, but isn’t covered by insurance. For more information on Briana’s journey to health, and to donate toward her treatment, visit:

http://gofund.me/pvpq2k

To better understand the devastating and debilitating symptoms of Lyme Disease, please visit www.lymedisease.org/

I actually did it!From the beginning of the truly unexpected, wild journey to Dartmouth, I’ve felt supremely out of plac...
05/31/2026

I actually did it!

From the beginning of the truly unexpected, wild journey to Dartmouth, I’ve felt supremely out of place.

I vividly recall throwing my head back with confusion when I first read the application.

“What does this even mean? There’s no way I can fill this out!”

Gradually, I returned to the application with less self-criticism, somehow managing to evade the constant barrage of inadequacies that circle through my mind like tumbling chaotic hula hoops with no rhythm.

At every interval of the journey to Dartmouth, I’ve felt as though I don’t belong. As one of the only patients who will be presenting at an international medical conference, I’ve revisited time and time again the bittersweet trill of rage regarding the shortcomings of medicine. I’ve wondered what could actually possess me to willingly want to engage with providers, with the system that has made me feel wrong. Always.

And, simultaneously, I’ve realized this is exactly why I want to do this.

When I received the presentation requirements about a month ago, I literally cried. “There’s no way I can pull this off! I’ve come this far to only come this far!”

I debated emailing the scientific committee to inform them I would need to forfeit my space, feeling miserably incapable of completing these tasks because this my complicated relationship with sensory processing problems, lack of technological acumen and history with medical conference presentations.

Gradually, with help, creativity, encouragement and support, I completed the required presentation tools and submitted them as of today.

I ACTUALLY DID IT!

I’m not sharing this information with you all as a token of inspiration or demonstration of the tired anthem of “trying harder“ or “you are stronger than you think,” nauseating propaganda.

I am simply recounting the chaotic journey that all started in the emergency room one year ago that prompted me to reconsider the dichotomy I’ve created in the name of self-preservation. I have been thinking that while well- intentioned, perhaps my attempts to ensure survival have put some people on the wrong side of goodbye. I am marveling at the unfurling of a creative process that began because a doctor recognized my humanity and in turn, I recognized his.

Whatever happens or doesn’t happen as a result of my presentation at Dartmouth, I am recognizing that I’ve already won.

THIS is winning.

“I really appreciate the idea of Care Cards because someone who has a disability or a chronic health condition may have ...
05/30/2026

“I really appreciate the idea of Care Cards because someone who has a disability or a chronic health condition may have a medical complication that is embarrassing to explain in person. In light of the reality that just going to the doctor is stressful enough for anyone under any circumstances, Care Cards provide an amazing service to both disabled people and people who suffer from chronic health conditions because the Care Card can explain an individual’s specific medical condition without forcing the individual to explain his or her specific medical condition in person.

The medical service of Care Cards also acknowledges the harsh reality that considering that doctors who work in emergency rooms do not have the time to listen to their patients’ long-winded explanations of their complicated medical issues, the Care Cards accommodate both patients and doctors by explaining the patients’ complicated medical issues in writing so that doctors will not be subjected to the unrealistic expectation that they actually have the time to listen to their patients’ explanations of their complicated medical conditions.

Care Cards represent a simple but powerful solution to allow doctors and patients to build rapport in a draconian medical system in which many doctors adhere to the antiquated notion that doctors should maintain their distance from their patients and should not get too emotionally invested in their patients’ life situations or get too close to their patients emotionally. Care Cards have the ambitious goal of building a bridge to our collective humanity, and I hope that regardless of every person’s individual personal medical conditions, more people will recognize that Care Cards can provide a tremendous benefit to all patients who visit emergency rooms across the country.”

Benjamin Ashley

Be still my heart! The Care Cards Poster is HERE! I can’t thank Wilson Printing & Signs enough for their incredible gene...
05/30/2026

Be still my heart! The Care Cards Poster is HERE! I can’t thank Wilson Printing & Signs enough for their incredible generosity in donating these beauties! They are gorgeous! Now let’s paint the town with CARE!

"As an individual who lives with multiple complex/rare conditions, I frequently encounter medical professionals who are ...
05/29/2026

"As an individual who lives with multiple complex/rare conditions, I frequently encounter medical professionals who are unfamiliar with my unique healthcare needs. I believe Care Cards can bridge that gap by providing timely, specific, and pertinent information in the moments where having the right guidance is critical. More insight equals less mistakes, which will ultimately save lives.”

Daniel Hodges, JD, MHA
President & Cofounder
Peaces of Me Foundation

https://handsacrosshumanityfdn.home.blog

Introducing the “Care Cards Tour Guide!” This user-friendly poster provides a leisurely stroll through everything you ma...
05/25/2026

Introducing the “Care Cards Tour Guide!” This user-friendly poster provides a leisurely stroll through everything you may want or need to know about Care Cards. From the history that inspired us, to the purpose and suggested ways to use them, this is the one-stop breezy jaunt through the path thus far.

Care Cards may be helpful in:

• patient advocacy
• trauma-informed care
• disability community access
• chronic illness support
• provider burnout
• human-centered medicine

+ MORE!

The QR code provides access to the downloadable PDF so anybody can print and try Care Cards. Please feel free to share this post to spread the word!

In preparation for my neurology appointment this week, I reviewed pages and pages of test results. Amongst a truly exhau...
05/24/2026

In preparation for my neurology appointment this week, I reviewed pages and pages of test results. Amongst a truly exhausting list of tests and ordering physicians, I recognized a now familiar name and today’s date, only from one year ago.

I met Ben in the ER exactly one year ago today. WILD! When I later posed a spontaneous series of questions to him about health equity, challenges to providing the best quality of care in the ER and what might make it better, I never could have imagined this unforeseen collaboration.

Now, here I am preparing to present our collaborative resource at Dartmouth in a little over a month!

In honor of this truly unexpected evolution of events, I’m re-sharing the story I submitted to Enloe outlining the day it all began in the ER. Although the hospital remained unmoved and seemingly immune to my heartfelt letter about the unfortunate erasure of my story at the ceremony, ultimately, the person whose validation matters most shared his appreciation.

In this private gesture of gratitude, I realized that my initial motivation for submitting the story to “teach the system” a lesson was grandiose and naive from its inception. Authentic compassionate and human connection doesn’t demand public adoration or applause from a sea of strangers. Teachable moments aren’t manufactured in captive audiences. Instead they thrive on the threads of spontaneously that accompany raw moments of unchosen vulnerability, that greet you when you least expect them, beneath the piercing sun setting ablaze a landscape of cracked asphalt.

My lifelong infatuation with cajoling society into falling in love with me enough to cultivate social change suddenly seems frivolous. Maybe recognizing moments of genuine connection, compassion and spontaneous togetherness are in fact the ethereal markings of love in this life, after all.

Here’s my submission:

As a frequent flyer in the hospital and somebody with a long history of chronic complex health conditions, my experiences with Ben have changed not only how I feel about medicine but also how I feel about myself.

“Hi, I’m Ben,” the doctor says, reaching to shake my hand.

“Hi, Ben… That’s what you want me to call you?“

He smiles the kind of all-encompassing grin that tugs on his eyes. He eases me back onto the gurney, inquiring with a cultured patience that I’ve never seen in the emergency room, about what’s been going on.

When he asks about my history of medical conditions, I cackle with involuntary maniacal laughter that reveals my state of exhaustion and extensive matriculation within the strange parallel universe of medicine.

“How much time do you have?“

“I’m here all night. Give it to me!“

This unusual interaction with a doctor is further noteworthy as we continue to talk; to dialogue like peers, both of us offering unexpected tidbits of humor and sarcasm. He seems riveted by my existence, attentive to every symptom, even those going beyond the acute reasons for my visit.

I am flabbergasted by the genuine attention, kindness and even love that seems to spin from his being, bathing this beige hospital room with a kind of opalescent levity that shines.

We work in tandem, eventually agreeing to order further testing that will reveal I have E. coli, two strains of which can, apparently make you miserable and extremely ill.

After the diagnosis has been made and the treatment begun, I find myself thinking of other questions I wished I could’ve asked him. I casually express my desire to run into him at the local health food store I typically frequent, wondering what it might be like to see him in “real life.”

And then, it happens. In between exhausting visits to the hospital, we happen to somehow be in the same place at the same time. He bursts through the double doors of the store, flip-flops slapping the asphalt as he makes a b-line for me.

“Briana!” He says, his face breaking into the warmest of grins, personifying sunshine itself.

“Ben!” As he wraps his arms around me, I can scarcely believe this is happening. I lean into him, marveling at this moment, surveying him as he peers into my face with his crystalline eyes.

His attentiveness, kindness and love seems to multiply in the parking lot, and we methodically move through a series of follow-up questions, the same ones I was wishing I could ask him in this exact scenario. I can’t help but laugh hysterically when he offers to recheck some body parts, here, in the parking lot, under the sweating sunshine.

“Are you going to charge my insurance for this?”

His already effervescent presence ascends higher. We both crack up, brushing up against each other like the oldest of friends, embracing with visceral familiarity.

Something foreign and unprecedented doubles beneath the surface of my exhaustion, a sensation I could never anticipate feeling in the presence of a doctor, with the kind of person who destroyed me on the day I was born. Something a lot like love.

Before parting ways, he tells me that should I need to return to the emergency room, to ask for him specifically and that he will come out to the waiting room and find a way to get me in faster. His magnetic blue eyes drink me in as though I am the most marvelous creature, as though all of my broken bits are intact, perfect.

In the coming days, I will think of him often, attempting to piece together what feels like an unforeseen long overdue completion of a healing cycle. I will ponder the incredible and seemingly impossible transformation of the enemy into the friend, and I will allow myself to luxuriate in the fact that I just love this guy, Ben.

Love.

It’s the last thing I would ever expect to find in the hospital, and again, in the parking lot of the grocery store.

Maybe, just maybe, the unfurling of the fist I’ve had choked around the fear of medicine, trauma, and my own humanity, has loosened enough to be a little more free.

Now that’s what I call good medicine.

In preparation for my neurology appointment this week, I reviewed pages and pages of test results. During this, I realiz...
05/24/2026

In preparation for my neurology appointment this week, I reviewed pages and pages of test results. During this, I realized that today, one year ago, I met Ben in the ER. Now, here I am preparing to present our collaborative resource at Dartmouth. Life is such a trip!

05/20/2026

I did it!

My appointment with the neurologist yesterday was equally exhausting and positive. From the moment I stepped out of the car and was surprised to be greeted by the doctor as I made my way to her office, to her atypical perceptiveness to my extreme fatigue throughout the 3-hour appointment, she seemed attuned to the real life manifestations of the patients she works with. The most accurate synopsis I can offer is that she did not need a Care Card.

Those of you who also experience sensory processing challenges, chemical sensitivities and MCAS would have been delighted to step in to this carefully designed office. Many offices claim to be fragrance free, but this space literally was. Embracing a functionally minimalist design, there was not a painting or diploma to be hung on the wall, no carpet, genuine hardwood floors and all of the ideal low stimulation characteristics I often think of but rarely see in practice.

I will need some time to process all of the information. However, for the first time in what feels like a lifetime, I think I’ve connected with a doctor who understands what feels like my nervous system pandemonium and can contribute something new and innovative to help me. (I will share more details when I’ve had some time to recover.)

I’m surprisingly grateful to have made this trip. I’m also unsurprisingly grateful to everybody who contributed to make this possible. Thank you.

05/17/2026

Would anybody with graphic design skills be interested in volunteering your time to help me create the visual poster presentation for the Dartmouth conference?

Address

1010 Mangrove Ave Ste D Chico, California 95926
Chico, CA

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