The MFDM Foundation

The MFDM Foundation The MFDM Foundation is a 501(c)(3) public charity that supports conferences related to MFDM

This page is intended for information regarding the rare condition, Mandibulofacial dysostosis with Microcephaly.

02/13/2026

Happy Valentines Day!
Show some love to our Families by making The MFDM Foundation your chosen nonprofit for your Kroger Community rewards!
If you need assistance signing up for this please contact us!

Today, on Rare Disease Day, we stand together in solidarity with families around the world affected by rare conditions. ...
02/28/2025

Today, on Rare Disease Day, we stand together in solidarity with families around the world affected by rare conditions. At the MFDM Foundation, we are dedicated to raising awareness for Mandibulofacial Dysostosis with Microcephaly (MFDM), a rare genetic disorder that affects fewer than 200 individuals worldwide.

Through our efforts, we strive to provide support, community, and resources to those impacted by MFDM. From our private family support groups to our conferences, we create a space for families to connect and share their experiences. Together, we are stronger.

On this Rare Disease Day, we honor the strength of our MFDM families and all rare disease warriors. Join us in spreading awareness and advocating for rare disease research. Together, we can make a difference.

To learn more about MFDM, visit [MFDMfoundation.org](https://www.mfdmfoundation.org)

The MFDM Foundation serves families that are affected by Mandibulofacial dysostosis with Microcephaly.

09/15/2024

Join us all September long!

That’s a wrap! Thank you to every single person who made this happen! We couldn’t have done this without the Cincinnati ...
06/23/2024

That’s a wrap!
Thank you to every single person who made this happen!
We couldn’t have done this without the Cincinnati Childrens Genetics, the research department, ENT, Plastics, The Center for Clinical and Translational Science, BMCP, Abby
Turnwal for our Sibling workshop!
Thank you to 1633 designs for donating our banner and hosting our T-shirt shop! And for Zo Bugs bands for bringing some bands for our members!
Special thank you to Kings Island cares program for donating tickets to our attendees this weekend, Biggby Coffee for donating coffee, and Holtman's Donuts for donating donuts!
Thank you to Oticon medical and MedEl for sending information on bone anchored hearing solutions and some fun items for our families!
Thank you to my Beta Sigma Phi Sisters for helping to stuff bags for our members.
And thank you to my family and friends for volunteering and supporting me on this amazing journey!

The 2024 MFDM foundation Conference is available to view at this link. Thank you!
06/22/2024

The 2024 MFDM foundation Conference is available to view at this link.
Thank you!

Our new logo has just been released for The MFDM Foundation! If you would like to order any merch 1633 Designs is hostin...
05/19/2024

Our new logo has just been released for The MFDM Foundation!
If you would like to order any merch 1633 Designs is hosting a shop for us for the next 2 weeks!
Happy shopping!

Thank you to Biggby Coffee - Loveland, OH for donating coffee for our upcoming 2024 MFDM Foundation Conference! Our fami...
04/10/2024

Thank you to Biggby Coffee - Loveland, OH for donating coffee for our upcoming 2024 MFDM Foundation Conference! Our families will be so thankful to have delicious coffee the morning of the conference!

Thank you to Kings Island for sponsoring tickets for our upcoming 2024 MFDM Foundation Conference! We are so thankful th...
04/08/2024

Thank you to Kings Island for sponsoring tickets for our upcoming 2024 MFDM Foundation Conference! We are so thankful that our families attending the conference will be able to enjoy a day at our favorite park!

01/28/2024

If you have a Kroger plus card you can help our nonprofit!
Simply pick the MFDM Foundation under community rewards. Our nonprofit will then get rewarded for your normal shopping!!
This is totally free to you, but this helps our MFDM Families!

https://www.kroger.com/i/community/community-rewards

160 days until The MFDM Foundation Conference in Cincinnati, Ohio! Our families are so excited to learn more about Mandi...
01/14/2024

160 days until The MFDM Foundation Conference in Cincinnati, Ohio!
Our families are so excited to learn more about Mandibulofacial Dysostosis with Microcephaly, help with research, connect with other families, and create memories!

We are currently looking for a team of Sign language interpreters to volunteer for the conference. Please share!

Please contact [email protected] for more information!

The MFDM Foundation is a 501 (c)(3) Nonprofit that was started by a Mother of a child diagnosed with Mandibulofacial Dysostisis with Microcephaly (MFDM) in 2015. Her loneliness and longing for community drove her to build a group for others to find answers and belonging. At that time only sixty kn....

Happy New year! This year we would love your support! There are many ways you can help our nonprofit. •Share our page •S...
01/04/2024

Happy New year!
This year we would love your support! There are many ways you can help our nonprofit.
•Share our page
•Sign up for Kroger Community Rewards and select MFDM foundation as your nonprofit
•Post a Facebook fundraiser for the MFDM Foundation for your birthday
•Share our website MFDMfoundation.org

These things will only cost you time, but will help so many families!

The MFDM Foundation is a 501 (c)(3) Nonprofit that was started by a Mother of a child diagnosed with Mandibulofacial Dysostisis with Microcephaly (MFDM) in 2015. Her loneliness and longing for community drove her to build a group for others to find answers and belonging. At that time only sixty kn....

Address

Cincinnati, OH
45140

Website

https://rarediseases.org/gard-rare-disease/mandibulofacial-dysostosis-with-microcephaly/

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