Amyloidosis Foundation

06/12/2026

Don’t miss out, join on June 30, 2026, at 15:00 CEST for this insightful and engaging webinar on building safer care through patient-pharmacist partnerships.

As healthcare systems grow increasingly complex, pharmacists play a critical role in ensuring patient safety through effective medication management, patient education, and collaboration across healthcare teams. This webinar, by World Patients Alliance, organized in collaboration with the International Pharmaceutical Federation (FIP), will bring together pharmacists, patient advocates, and healthcare experts to explore how stronger partnerships between patients and pharmacists can contribute to safer, more effective, and patient-centred care.

The discussion will also highlight the importance of shared decision-making, health literacy, and patient engagement in reducing medication-related risks and improving health outcomes.

REGISTER HERE 👇🏼

As health care systems grow increasingly complex, pharmacists are key members of the patient care team. This webinar, in collaboration with the World Patients Alliance, will explore how pharmacists contribute to safer care through medication management, patient empowerment, and interprofessional col...

06/09/2026

🌟TOMORROW'S SESSION🌟
Wednesday, June 10, 6:00 PM – 7:00 PM America/New_York

What is the Role of Maintenance Treatment in AL Amyloidosis?

Join us to understand the role of maintenance treatment in managing AL Amyloidosis. Learn how ongoing therapy can help manage symptoms and improve quality of life. This session will provide insights into treatment options and support resources, helping you navigate your health journey with confidence.

Ben Derman is a hematologist-oncologist specializing in plasma cell disorders, including amyloidosis, multiple myeloma, MGUS, and POEMS syndrome. He uses advanced therapies such as CAR T-cell therapy and stem cell transplantation, with research focused on MRD, quality of life, treatment outcomes, and reducing racial disparities in care.

To Register: https://us06web.zoom.us/meeting/register/2SrZ0DPwQaGG343Bp4Xl6g

Zoom Meeting ID: 87498490256

06/07/2026

Join us for the Amyloidosis Foundation Run-Walk-Bike-Roll Virtual Event! 🚴‍♀️🏃‍♂️🚶‍♀️♿

From June 1 through September 8, you can participate from anywhere while helping raise awareness and support for those affected by amyloidosis. Choose your activity, set your pace, and make every mile matter!

Whether you run, walk, bike, or roll — every step and every mile helps bring hope to patients and families facing this disease.

📅 Event Dates: June 1 – September 8
🌎 Participate virtually from anywhere
💜 Support awareness, education, and research

Register today and invite your friends, family, and coworkers to join your team!
Click here 👉🏼 https://bit.ly/2026VirtualWalk

06/05/2026

🍩 Happy National Donut Day from the Amyloidosis Foundation! 🍩

Today’s a sweet reminder to take care of yourself and the people you love. While you’re enjoying your favorite donut, take a moment to check out the resources, support, and educational tools available through the Amyloidosis Foundation. From patient support to awareness and early detection information, we’re here to help every step of the journey.

Learn more, get connected, and spread awareness today. 💜
www.amyloidosis.org

06/02/2026

🌟TOMORROW'S SESSION🌟
Wednesday, June 3, 6:00 PM – 7:00 PM America/New_York

Cardiac Amyloidosis: New Strategies for Disease-Modifying Therapies

In this session Dr. Sarswat will present her approach to treat Amyloidosis patients with cardiomyopathy including managing symptoms.

Dr. Nitasha Sarswat is a cardiologist at UChicago Medicine specializing in advanced heart failure, transplantation, and cardiac amyloidosis. She combines clinical expertise with research to help patients better understand and manage the impact of amyloidosis on the heart.

To Register: https://us06web.zoom.us/meeting/register/PKBBXLBiTcSFqVOGUDP_vw

Zoom Meeting ID: 86202611160

06/01/2026

🚶‍♀️🚴‍♂️🏃‍♂️♿ The Amyloidosis Foundation’s Run-Walk-Bike-Roll starts TODAY! 💜

Whether you’re running, walking, biking, or rolling, every mile helps raise awareness and support for those affected by amyloidosis. Join us in moving for a cause, honoring patients and caregivers, and making an impact together.

Let’s get active, spread awareness, and show the strength of our community! 💪

Ready to participate? Lace up, gear up, and let’s roll!
REGISTER HERE👉🏼 https://bit.ly/2026VirtualWalk OR CLICK BELOW!

Walk or run or bike at your leisure to help raise awareness of amyloidosis, in your local park, or your neighborhood. Encourage your family and friends to register and participate.

05/30/2026

Anselamimab is an investigational, potential first-in-class anti-fibril therapy designed to improve organ function by reducing or depleting amyloid deposits in the tissues and organs of patients living with AL amyloidosis. By binding with specificity to targets within amino acids on misfolded amyloid fibrils, anselamimab promotes destruction and clearance of amyloid deposits, while sparing native free light chains from destruction. Anselamimab has been granted Fast Track Designation by the US Food and Drug Administration (FDA) and received Orphan Drug Designation from the US FDA, European Commission and the Ministry of Health, Labour and Welfare of Japan for the treatment of AL amyloidosis.

Read the full press release here:

CARES Phase III clinical program did not meet primary endpoint in overall light chain amyloidosis population, however, demonstrated anselamimab as potential first anti-fibril therapy in kappa light chain amyloidosis PUBLISHED 29 May 2026 Anselamimab demonstrated 62% improvement in survival and 71% r...

05/29/2026

💜 Join the Amyloidosis Foundation’s Virtual Run • Walk • Bike • Roll! 💜

From June 1 through September 8, you can move your way to help raise awareness and support for those affected by amyloidosis. Whether you run, walk, bike, or roll — every mile makes a difference!

✅ Participate from anywhere
✅ Set your own pace and goals
✅ Support patients, families, education, and research
✅ Share your journey and inspire others

Together, we can bring hope, awareness, and progress to the amyloidosis community.

Register today: https://bit.ly/2026VirtualWalk

05/26/2026

🌟TOMORROW'S SESSION🌟
Wednesday, May 27 6:00 PM – 7:00 PM America/New_York

How genes are inherited in ATTR, what a genetic counselor does, and demystifying genetic testing.

Join us to uncover the basics of genetic inheritance in ATTR amyloidosis, where we'll explain how genes play a role in this condition. Learn from genetic counselors about their role in guiding and supporting patients and families through the genetic testing process. This session aims to demystify genetic testing, making it more understandable and less daunting, and will provide you with the knowledge and confidence to discuss these topics with your healthcare provider.

Rachel is a board-certified genetic counselor at the University of Chicago. She sees patients in the Cardiovascular Genetics Clinic and the Amyloidosis Clinic as well as at-risk family members, to have personalized discussions on the impact of genetic testing in personal health choices. She is currently the president-elect of the Illinois Society of Genetics Professionals (ISGP) and was previously the co-chair of the Education Committee. As a part of her role within ISGP, she is working tirelessly to move legislation through the IL General Assembly to protect Illinois residents from genetic discrimination. Rachel is also an active member the National Society of Genetic Counselors (NSGC) and the Heart Rhythm Society (HRS).

To Register: https://us06web.zoom.us/meeting/register/KOssLNsvSZa5MKqkHnvb2A
Zoom Meeting ID: 84295306143

05/24/2026

The Amyloidosis Foundation offices will be closed tomorrow, Monday, May 25, in observance of Memorial Day. We will resume normal business hours on Tuesday, May 26. We appreciate your understanding and wish everyone a safe and meaningful holiday.