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Maryland Sickle Cell Disease Association

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Maryland Sickle Cell Disease Association

The Maryland Sickle Cell Disease Association, Inc.

(MSCDA) seeks to seeking to improve the lives of persons affected by Sickle Cell Disease in Maryland by promoting advocacy, education, research and excellent healthcare delivery.

04/24/2026

HBCU & Divine 9 Night at The Yard ⚾️
Come see me in the warehouse.
MSCDA will beat the warehouse sharing info on SCD and SCT + supporting a blood drive with the American Red Cross.
Bands. Step teams. Culture.
Friday, April 24
Pregame starts at 5:30 PM
Stop by our table.

04/23/2026

This evening, we will honor the life and legacy of our beloved friend, advocate, and sickle cell warrior, Mr. James Capers. ✨❤️

Please join us at the conclusion of our support group as we come together as a community to reflect, remember, and celebrate the impact James made through his strength, advocacy, and unwavering spirit. ✨🙏🏾

All are welcome as we take this time to honor him with love and gratitude.
—
Maryland Sickle Cell Disease Association (MSCDA)

04/22/2026

Save the Date 📅 ✨

Join the Maryland Sickle Cell Disease Association for our 20th Anniversary Annual Education Conference

Saturday, June 27, 2026
Baltimore, Maryland

From Discovery to Delivery
Advancing the Sickle Cell Treatment Pipeline

This milestone year marks two decades of advocacy, education, and impact in the sickle cell community. We are bringing together healthcare professionals, community leaders, advocates, and families for a powerful day of learning, connection, and forward movement in care.

More details, speakers, and registration information coming soon.

Stay connected. Stay informed. Stay empowered.

AdvancingCare SaveTheDate

04/20/2026

Join us this Thursday for our MSCDA Monthly Support Group 💙
We are honored to welcome Vertex Pharmaceuticals for an informative discussion on gene therapy and what the future of sickle cell treatment may look like.
This virtual gathering is a supportive space for individuals living with sickle cell disease, caregivers, and families to learn, share, and connect.
Thursday, April 23, 2026
5:00 – 7:00 PM
Virtual via Zoom
Meeting ID: 886 8347 9519
Passcode: 773489
Presenter: Ms. Shanta Robertson
Associate Director of Hematology Marketing, Vertex Pharmaceuticals
Topic: Vertex Gene Therapy Overview for Sickle Cell Disease
All are welcome. Please share with anyone who may benefit from this conversation.
HealthEquity

04/07/2026

Virtual Town Hall Gene Therapy: Education, Access and Support in Decision Making".

You'll Learn About:

Cell and Gene Therapy in Sickle Cell
Lyfgenia by Genetix
Casgevy by Vertex

Making care and therapy decisions
Supportive services available to assist you while learning about CGT, when making decisions, and during therapy.

03/31/2026

🎓 Scholarship Opportunity for the Sickle Cell Community

The Vertex Foundation Scholarship for SCD & TDT Scholars is now accepting applications!

This program provides $5,000 in financial support to individuals living with sickle cell disease (SCD) or transfusion dependent beta thalassemia (TDT), as well as eligible family members including siblings, spouses, children, and caregivers pursuing higher education.

Eligible programs include:
2 year degree programs
3 year degree programs
4 year degree programs

Graduate programs
📅 Application Deadline: May 6, 2026
📣 Award notifications: June 2026

Apply here:
https://scholarshipamerica.org/scholarship/vertexfoundationscdtdt/
Please share with anyone who may benefit from this opportunity.

EducationMatters

03/30/2026

❤️ Community in Action ❤️

Our Program Manager, Petronella Barrow, proudly represented the Maryland Sickle Cell Disease Association (MSCDA) while supporting the Kappa Alpha Psi Fraternity Blood Drive at Mount Calvary Baptist Church in Rockville.
She was joined by dedicated Health and Wellness members Hettie Fleming and Karen Ducker, demonstrating the power of partnership in advancing community health and awareness.

Blood donation plays an essential role in supporting individuals living with Sickle Cell Disease, as many rely on regular transfusions as part of their care. Events like this help ensure that lifesaving blood is available when it is needed most.

MSCDA remains committed to collaborating with organizations and community leaders to increase awareness, encourage donation, and improve health outcomes for those affected by Sickle Cell Disease.
Thank you to the Kappas, Mount Calvary Baptist Church, and all who donated and supported this important effort

Together, we make a difference. 🩸💪🏾

HealthEquity CommunityHealth StrongerTogether

03/27/2026

🌊 Safe Swimming with Sickle Cell – Water Safety Matters 🏊🏾‍♀️
Did you know that swimming can be a safe and enjoyable activity for individuals living with Sickle Cell Disease when proper precautions are taken? Learning water safety skills helps reduce risk, build confidence, and create opportunities for fun, fitness, and community inclusion.

Cold water exposure, dehydration, and overexertion can sometimes trigger complications for individuals with Sickle Cell Disease.

That is why education, preparation, and guided instruction are so important. Programs like Safe Swimming with Sickle Cell help families understand how to safely enjoy aquatic activities while protecting their health.

Join us for a Swim Series Activation Water Safety Event at Howard University focused on awareness, prevention, and empowerment.

📅 Saturday, April 11, 2026
📍 Howard University Burr Gymnasium Pool
2400 6th St NW, Washington, DC
⏰ Session 1: 11:00 AM – 12:30 PM
⏰ Session 2: 1:30 PM – 3:00 PM

Participants will learn important safety tips, gain confidence in the water, and connect with experts committed to improving health outcomes in the Sickle Cell community.

✨ Featuring Olympic swimmer Maritza McClendon
🔗 Register today by scanning the QR code or visiting:
bit.ly/SWIM1922NER

Together we can promote water safety, education, and access for individuals and families impacted by Sickle Cell Disease.

SickleCellWarrior CommunityHealth MSCDA Swim1922 DiversityInAquatics 💙

03/24/2026

This Thursday we are bringing our community two powerful tools to help manage sickle cell disease in daily life.

Join us as we learn about the 7-5-30 Method — a simple memory tool designed to help protect your energy, improve sleep, and reduce added strain when living with SCD.

We will also be introduced to the SATA App, created to help individuals navigate crisis situations, manage daily care, and connect with community support.

Living with sickle cell disease requires tools, support, and shared knowledge. This session is designed to help you feel more confident managing your care and advocating for your needs.

Thursday March 26, 2026
5:00 PM – 7:00 PM EST
Virtual via Zoom

Use the QR code to register or join using the information below.

Meeting ID: 886 8347 9519
Passcode: 773489

We look forward to seeing you there and continuing to build strong, informed, and empowered community together.

PatientAdvocacy SickleCellWarriors CommunitySupport

03/19/2026

🚨 URGENT “SOS” Advocacy Alert – Act Within 24 Hours 🚨
We need your voice RIGHT NOW to help move SB 0421 forward in Maryland.
We are calling on all advocates, supporters, and community members to take action:
📢 Email or call Senator Brian Feldman within the next 24 hours to request his support for this critical legislation. You can also call the office and ask for a vote on SB 0421.
✍🏽 Sign the petition to show your support:
https://c.org/qPxFPzf7XM
Contact Information:
Caroline Hecker
Assistant to the Chair, Office of Senator Brian J. Feldman
Education, Energy, and the Environment Committee
Montgomery County, District 15
    •    Phone: 410-841-3169
    •    Fax: 410-841-3607
    •    Email: [email protected]
📢 Please also contact Senator Dalya Attar within the next 24 hours and ask for her support—and to bring SB 0421 up for a vote.
Senator Dalya Attar (District 41 – Baltimore City)
Education, Energy, and the Environment Committee
Annapolis Office:
122 James Senate Office Building
11 Bladen Street Annapolis, MD 21401
    •    Phone: 410-841-3697
    •    Toll-free in MD: 1-800-492-7122 ext. 3697
    •    Email: [email protected]
Why this matters:
Sickle Cell Disease (SCD) is a life-threatening blood disorder affecting over 5,000 Marylanders, many of whom rely on Medicaid. It disproportionately impacts the Black community and creates serious barriers not just in healthcare—but in education.
This legislation is about equity, access, and support. Inspired by a Maryland HBCU student who lacked academic support during a health crisis, this bill ensures colleges and universities are better equipped to support sickle cell warriors through:
✔️ Academic accommodations
✔️ Faculty and staff training
✔️ Coordination with healthcare providers
HB0060 already passed the House 131–4. Now we need action in the Senate.
📢 Call. Email. Share your story. Ask for a vote on SB 0421.

Address

8775 Centre Park Drive, Ste 701
Columbia, MD
21045

Opening Hours

Monday	9am - 5pm
Tuesday	9am - 5pm
Wednesday	9am - 5pm
Thursday	9am - 5pm
Friday	9am - 5pm

Telephone

+14104654822

Website

http://marylandsicklecelldisease.org/

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