GBS-CIDP Foundation International

06/26/2026

Join us for Seattle Community Day on July 25 and connect with experts, patients, and caregivers in your local community—because no one should navigate this journey alone.

Featured Sessions:
• GBS|CIDP myths & misinformation
• Emerging CIDP therapies

& so much more...

Learn more:

GBS|CIDP Foundation International Community Days are free, one-day educational events for individuals living with GBS, CIDP, MMN, and related conditions — and for those who ...

06/23/2026

A meaningful win for our global community!

After 15 months of advocacy, we are relieved to share that reimbursement criteria for immunoglobulin (Ig) treatment for CIDP and MMN in Turkey have been restored.

This important outcome helps ensure continued access to essential treatment for patients and families affected by these conditions.

We are deeply grateful to the patients, healthcare professionals, and partners—including PPTA and Kedrion—who came together to support this effort and advocate for change.

Read the full story here:

After 15 months of global advocacy, immunoglobulin (Ig) reimbursement criteria for CIDP and MMN in Turkey have been restored, improving access to essential treatment through global collaboration.

06/23/2026

On August 24, Miles for GBS , his wife, and several close friends will travel to France as he takes on Mount Ventoux in honor of his GBS journey. Through this climb, he hopes to raise funds and awareness to help ensure that others affected by GBS have access to the care, resources, and support they need on their own road to recovery. The funds he raises will provide financial assistance for patients diagnosed with GBS to ensure they have access to the care, resources, and support they need on their own road to recovery.

Support Miles & find out more: https://go.gbs-cidp.org/gbs26

06/22/2026

The GBS|CIDP Foundation International is proud to share that novel consensus key terms for managing CIDP have been published in Neurology Journal® — helping create a shared language between patients and healthcare professionals.

For years, terms like response to treatment, relapse, and remission have been interpreted differently across care and research settings. Through our Leadership Collaborative, patients and global experts came together to define these terms and move toward more consistent care, stronger communication, and improved readiness for future clinical research. This work reflects what’s possible when patient voices and medical expertise lead together.

Press Release: https://www.gbs-cidp.org/2026/06/novel-key-terms-for-managing-cidp-published-in-neurology-journal/

Learn more about the Leadership Collaborative and how this initiative is shaping the future of care: https://www.gbs-cidp.org/gbscidp-leadership-collaborative/

GBS|CIDP Leadership Collaborative Workshop Every other year, the Foundation collaborates with key leadership from the Global Medical Advisory Board (GMAB) to identify an emerging issue disrupting treatment, care, or innovation for individuals living with GBS, CIDP, MMN, or related conditions. Throug...

06/17/2026

GBS-CIDP Foundation International is excited to share the first edition of the GBS|CIDP Global Update, our new bi-annual newsletter that highlights the incredible work happening around the world. Inside, you’ll discover stories of impact, regional initiatives, global partnerships, and the inspiring individuals helping ensure that no one walks this journey alone.

Check out the first edition of the GBS|CIDP Global Update below and see the impact our global community is making around the world!

06/15/2026

Highlights from the Peripheral Nerve Society (PNS) meeting in Maastricht, Netherlands.

From connecting with attendees at the GBS|CIDP Foundation booth, to bringing together past, current, and new GMAB members, to Nancy and Richard presenting priorities on the main stage as part of the Inflammatory Neuropathy Consortium—it was a valuable time spent advancing collaboration and elevating the patient voice.

06/13/2026

The GBS-CIDP Foundation International is proud to represent our global community at the Peripheral Nerve Society (PNS) in Maastricht, Netherlands.

06/12/2026

Did you know it’s been 110 years since Guillain-Barré Syndrome was first identified?

To honor this milestone, the GBS|CIDP Foundation created the GBS110 patient story archive to help share real experiences from our community around the world.
Whether you are a GBS patient or care partner, your voice can help raise awareness, inspire others, and ensure no one faces GBS alone.

We want to hear from YOU! Share your story today: https://thegbs110.com/

Learn more about the GBS|CIDP Foundation International: www.gbs-cidp.org

06/12/2026

At eight years old, Ashley was diagnosed with Guillain-Barré syndrome and spent nearly a year in the hospital after losing the ability to walk. Despite doctors believing she would never walk again, her mother helped her slowly regain my mobility through years of dedication and recovery. Today, Ashley is a licensed professional counselor, using her experience to help others find resilience, healing, and hope.

▶ Learn more about Ashley and her journey with GBS: https://www.gbs-cidp.org/patient-stories/ashley-pettway/