Beat Dystonia

Beat Dystonia Founded by Rogers Hartmann. DYSTONIA is an incurable brain disorder akin to Parkinson's. She has appeared on Oprah,THE TODAY SHOW, TED Talks,… Zero overhead.

Rogers Hartmann has created worldwide awareness about Dystonia and Parkinson’s. All donations are allocated for research and awareness.

06/02/2026

"Resilience is not something you are born with, it's something you choose every day. This is something that connects us as a community."
Salvatore Caruso, Board Member of Associazione per la Ricerca sulla Distonia (ARD) and Dystonia Europe, could sadly not be here with us in person today, but shared an incredibly powerful video testimony with us. How we wish you could have been here to feel the impact your words had on the people here, Salvatore, and no doubt on those watching from home too.
If you missed Salvatore's presentation you will be able to catch it soon on our YouTube channel. For now you can tune in there to watch the rest of our speakers live: https://www.youtube.com/watch?v=n-nM5G4Ygm4

06/02/2026

Our conference begins! We are live from Malmo, Sweden, via the Dystonia Europe YouTube channel. Watch the days events, featuring:

🔸 Salvatore Caruso (Person living with , Board Member of Associazione per la Ricerca sulla Distonia (ARD) and Dystonia Europe)
🔸 Prof dr Marina de Koning-Tijssen (Expertise Centre Movement Disorders,
Dep. of Neurology, University Groningen, the Netherlands)
🔸 Dr. Jonathan Ellenbogen (Consultant Neurosurgeon, Honorary Clinical Senior Lecturer, Alder Hey Children’s Hospital, Royal Manchester Children’s Hospital & Salford Royal Hospital)
🔸 Prof Bo Biering-Sørensen (Director, Clinical Associate Professor, Senior Consultant, Neurological Department, Copenhagen University Hospital), Heike Unger (Physiotherapist)
🔸 Prof Andreas Puschmann (Professor in neurology, Lund University, Neurologist, Skåne University Hospital) and Prof Chi Wang Ip (Deputy Director, Department of Neurology and Professor of Translational Neurology, University Hospital Wuerzburg)

👉️ Watch live now at https://www.youtube.com/watch?v=n-nM5G4Ygm4

Huge thanks to Ipsen and Merz Therapeutics, who have made this important day possible 🧡

https://bodydiaries.beehiiv.com/p/his-hands-could-read-electricity-until-one-dive-they-went-silent?utm_source=bodydiarie...
05/31/2026

https://bodydiaries.beehiiv.com/p/his-hands-could-read-electricity-until-one-dive-they-went-silent?utm_source=bodydiaries.beehiiv.com&utm_medium=newsletter&utm_campaign=his-hands-could-read-electricity-until-one-dive-they-went-silent&_bhlid=7941afaddf82b0d3643a0157080f3cd01e6934ae

Even if this doesn’t apply to movement disorders RIGHT NOW, this is a wonderful piece based on human experience and then segues into fascinating studies about neural pathways and nerve damage. And needing to know your TRUE B12 levels for neurological health! You HAVE to ask your doctor about it to get the true values of your blood test results. Not just what is considered “normal”.

For thirty years, Ray's hands were his instruments. Eighty feet underwater, in zero visibility, welding pipeline seams by feel alone — his fingers knew metal temperature, weld pool texture, the exact vibration of a bead pulling right. Then the tingling started. And the hands that had never lied to...

Still chugging along…plenty of years since my second Deep Brain Stimulation surgery to “fix” frayed wires. Lucky me. Sti...
05/31/2026

Still chugging along…plenty of years since my second Deep Brain Stimulation surgery to “fix” frayed wires. Lucky me. Still practicing mindfulness, meditation and physical therapy. Wholly committed to helping others with movement disorders AND looking forward to the International Dystonia Convention in Seville, Spain in 2027. My foundation will once again be providing financial support for interested researchers and doctors, so they can attend. More information to come on this!

Surround yourself with positive and loving people at all cost!❤️

05/20/2026

Take a moment to read below.

05/20/2026

We are delighted to announce that Mr Jonathan Ellenbogen, a Consultant Neurosurgeon working between Alder Hey Children’s Hospital, Liverpool, Royal Manchester Children’s Hospital and Salford Royal Hospital, Manchester, will be among the speakers at 2026. Mr Ellenbogen is one of the few neurosurgeons in the UK who has a Deep Brain Stimulation (DBS) practice for movement disorders in both children and adults.
He will discuss 'Understanding DBS in Dystonia: Current Uses and Future Innovations.'

Dystonia Day takes place in Malmö, Sweden on Saturday, May 30 and everyone is welcome! Register to attend at https://dystonia-europe.org/2026/03/dystonia-day-2026-in-malmo-sweden/

05/20/2026

Looking to meet others with in a relaxed and welcoming setting?

Our Dystonia UK support group meet ups are a chance to chat, share experiences, and connect with people who understand what living with dystonia can be like.

Upcoming meet ups:

-Edinburgh informal meet up with our North East group coordinators: 23rd May, 12pm, Toby Carvery Edinburgh West

-Lancashire & Fylde: 28th May, 2-4pm, Fairhaven Lake Café, Lytham St Annes

-North East: 12th June, 12pm, Toby Carvery, Newcastle upon Tyne

-East Yorkshire: 26th June, 2-4pm, Morrisons Community room, Bridlington

-Lancashire & Fylde: 25th June, 2-4pm, Fairhaven Pub, Lytham St Annes

To book your spot please email [email protected], and to find out more, visit www.dystonia.org.uk/your-local-support-group.

05/20/2026

🚀 Today we've launched the My Neuro Survey Data Tool!

The tool brings together key findings from My Neuro Survey and NHS waiting times data to show where neurological care is working, where it is falling short and where action can make a real difference.

Your experiences matter. By turning real-life experiences into evidence for change, we can help to put the realities of the neurological community at the centre of efforts to improve care.

Use the new My Neuro Survey data tool to explore neuro care in your area.

https://bit.ly/4tVHzOC

05/20/2026
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12/15/2025

👏🏻

🧠⚡ The Body Talks to the Brain: Peripheral Electrical Stimulation, Neuroplasticity, and How We Use ARPwave at theFNC

For decades, electrical stimulation was viewed as a muscle or pain tool.

Something you used after surgery.
Something you used for sore backs or weak muscles.
Something peripheral.

But modern neuroscience is now confirming something functional neurologists have understood for years:

➡️ The fastest way to change the brain is often through the body.

A recent peer-reviewed review published in Clinical Neurophysiology examined how peripheral transcutaneous electrical stimulation influences not just pain — but cognition, attention, memory, and higher-order brain function.

And what this research shows aligns directly with how we approach neurological rehabilitation at The Functional Neurology Center.



🔬 What This Research Reviewed

This article analyzed a wide range of studies examining non-invasive electrical stimulation applied to the body (not the head) and its effects on brain performance in:

• Healthy individuals
• Aging populations
• Individuals with mild cognitive impairment
• Neurological and pain-related conditions

The key focus was peripheral nerve stimulation, meaning stimulation delivered through the skin to sensory and motor nerves — similar in category to therapies like TENS, but broader in concept.



🧠 What the Science Found

Across multiple studies, the authors identified consistent trends:

1️⃣ Memory Is the Most Affected Cognitive Domain

Peripheral electrical stimulation showed the strongest evidence for improving:
• Working memory
• Verbal memory
• Short-term recall

This suggests that sensory input from the body can influence memory circuits in the brain, even without direct brain stimulation.



2️⃣ Attention & Executive Function Are Also Impacted

Several studies demonstrated improvements in:
• Sustained attention
• Cognitive flexibility
• Processing efficiency

These functions rely heavily on fronto-parietal networks, which are highly sensitive to incoming sensory information.



3️⃣ The Brain Changes Even When the Stimulation Is Peripheral

One of the most important findings:

➡️ Brain networks reorganize in response to peripheral stimulation.

The authors describe changes likely driven by:
• Ascending sensory pathways
• Thalamic gating
• Cortical network modulation
• Neuroplastic adaptation

This means the brain is not passive — it actively responds to the quality of input it receives from the body.



🔁 Why This Matters Clinically

Many patients struggling with:
• Post-concussion symptoms
• Chronic pain
• Brain fog
• Dizziness
• Fatigue
• Poor coordination
• Cognitive slowing

are not dealing with brain damage — they are dealing with disrupted input.

When sensory input is noisy, inconsistent, or suppressed, the brain adapts in maladaptive ways.

And this is where functional neurology differs from traditional approaches.



🧠 Functional Neurology Perspective

At theFNC, we don’t ask:
❌ “Where does it hurt?”

We ask:
✔️ “What information is the brain receiving — and how well is it processing it?”

The nervous system is an input-dependent system.

Change the input → change the output.

Peripheral electrical stimulation is powerful because it:
• Amplifies sensory signaling
• Improves timing and coordination
• Enhances motor-sensory integration
• Drives neuroplastic change



⚡ Where ARPwave Fits In

ARPwave is a direct-current electrical stimulation system designed to influence both the muscular system and the nervous system simultaneously.

At theFNC, ARPwave is not used as a passive modality.

It is used as a neurological training tool.

ARPwave Helps Us:

• Improve motor unit recruitment
• Reduce protective inhibition
• Restore normal movement patterns
• Increase proprioceptive accuracy
• Improve circulation and tissue health
• Reduce aberrant pain signaling
• Drive active neuroplastic change

Unlike traditional stimulation, ARPwave is often paired with:
• Movement
• Postural challenges
• Gait tasks
• Cervical and vestibular integration
• Visual-motor coordination

This is critical — because the brain learns best during movement.



🧠 How ARPwave Supports Brain Function

The article highlights mechanisms that align directly with ARPwave-based rehab:

🔹 Ascending Sensory Activation

Electrical stimulation activates peripheral afferents that project into:
• Spinal cord
• Brainstem
• Thalamus
• Cortex

This creates global brain engagement, not isolated muscle activation.



🔹 Neuroplastic Reinforcement

When stimulation is paired with movement:
• Motor maps reorganize
• Sensory prediction improves
• Efficiency increases
• Cognitive load decreases

This helps explain why patients often report:
• Clearer thinking
• Better coordination
• Reduced fatigue
• Improved tolerance to activity



🔹 Pain as a Brain Problem

Pain is not just tissue damage — it is a perception created by the brain.

By improving:
• Input quality
• Movement confidence
• Neural efficiency

ARPwave can help down-regulate pain without suppressing the nervous system.



🧩 Clinical Conditions Where This Matters Most

This approach is especially powerful for individuals with:

• Post-concussion syndrome
• Chronic pain syndromes
• Cervicogenic dizziness
• Vestibular disorders
• Brain fog and fatigue
• Poor balance or coordination
• Post-surgical neurological inhibition
• Athletes with performance plateaus

In many of these cases, the brain is protecting, not broken.



🧠 The Bigger Picture

This research reinforces a core truth:

🧠 The brain is shaped by the signals it receives.

Peripheral electrical stimulation — when applied strategically and paired with movement — can influence:
• Brain networks
• Cognitive efficiency
• Motor control
• Pain perception
• Recovery capacity

At The Functional Neurology Center, ARPwave is one of several tools we use to restore better input, allowing the brain to reorganize itself more effectively.



🌟 Final Takeaway

You don’t always need to stimulate the brain directly to change it.

Sometimes, the most powerful path to brain recovery is:

➡️ Through the body.



📍 The Functional Neurology Center – Minnesota
🌐 theFNC.com
🧠 There Is Hope.

DC DACNB

https://www.sciencedirect.com/science/article/pii/S0278584625000442









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