22Q Texas, Inc.

03/25/2026

Donna M. McDonald-McGinn, MS, LCGC, Founding Board Member of the International 22q11.2 Foundation (22q.org), Chair of the 22q11.2 Society (22qsociety.org), Director of the 22q and You Center at the Children's Hospital of Philadelphia ([email protected]), and Professor of Clinical Pediatrics at the Perelman School of Medicine of the University of Pennsylvania, has authored an article entitled "22q: The Missing Piece" in Helen: The Journal of Human Exceptionality, raising awareness for 22q in the wake of February’s Congenital Heart Disease Month. It follows the journey of the International 22q11.2 Foundation’s Director, Carol Cavana's son Louis, and discusses symptoms associated with chromosome 22q differences and the importance of early detection and coordinated multidisciplinary care.

Read the full article here: https://helenjournal.org/march-2026/22q-the-missing-piece

02/28/2026

1 in 10 Americans—our friends, neighbors, coworkers, classmates, and loved ones—lives with a rare disease.

Follow us, the National Organization for Rare Disorders, NORD, to support them this . Learn more at rarediseaseday.us.

02/04/2026

A heartfelt thank you to Joeris General Contractors, LLC who made a generous donation to 22q Texas!

Joeris has a wonderful tradition of raising funds and supporting local organizations that their staff are passionate about. We are honored to be chosen as a recipient of their community giving, and this means the world to our families.

As a 100% volunteer-run organization, 22q Texas is dedicated to supporting families living with or loving someone affected by 22q11.2 deletion syndrome. Our mission is to create a community of support for our families and provide resources, raise awareness across medical, educational, and public communities, and ensure that individuals with 22q are seen, supported, and empowered to thrive. Every dollar we receive goes directly toward programs that change lives and create meaningful impact for our families.

Donations like this from Joeris make our work possible. Without the generosity and support of community partners who believe in our mission, we simply couldn't do what we do.

To the team at Joeris and the staff members who championed 22q Texas – thank you from the bottom of our hearts. We are so grateful for your partnership and commitment to making a difference.
Together, we are building a stronger, more inclusive community for individuals with 22q and their families. Thank you, Joeris! 💜

12/18/2025

11/26/2025

We just released the 4th Edition of our 22q Glossary! This update includes 294 terms and expanded sections on the immune system, sleep, and the brain/nervous system. Visit the Health Conditions Explained section on our website—or scan the QR code—for more information. https://22q.org/symptoms-care/health-conditions-explained/
The International 22q11.2 Foundation would like to thank everyone who has contributed to the development of the 22q Glossary.

11/20/2025

🌟 Exciting News for Our 22q Texas Families! 🌟
At camp this year, we shared something BIG — our new Membership Toolkit community is LIVE!

This platform is designed to bring ALL of us together — even those who aren’t on Facebook — so everyone can stay connected, access resources, and be notified of local regional events throughout the year.

✅ Ready to join? It’s easy!
1️⃣ Go to https://22qtexas.membershiptoolkit.com/login
2️⃣ Create your account and verify your email
3️⃣ Complete your family profile
4️⃣ Start exploring and connecting!

💡 Tip: Bookmark the site or download the Membership Toolkit app for quick access.
Let’s build a strong, supportive community for ALL 22q Texas families. Register today and invite others to join! 💜

11/17/2025

11/01/2025

Are you READY? We’re ready to provide families with valuable resources and information to help better understand the challenges and complexities of 22q differences.
Throughout this month, we’ll be sharing vital links, tools, and stories to support you and your child on your 22q journey.
Join us in spreading the word! Share our posts, raise awareness, and help make 22q a household name.
This is our opportunity to make a difference—let’s spread the word so everyone understands 22q differences!

09/18/2025

TODAY'S THE DAY! Please consider supporting 22Q Texas, Inc. for North Texas Giving Day- you can donate here: https://www.northtexasgivingday.org/22qtexas
Your donation to 22q Texas helps families just like yours, who also happen to be living with 22q11.2 chromosome differences.

22q Texas, Inc. is a volunteer-run organization building community and providing support and activities for families affected by 22q11 chromosome differences (i.e. 22q11.2 deletion/VCFS/Velocardiofacial Syndrome/Di George syndrome, 22q11.2 duplication, triplication & dis...

09/18/2025

TODAY'S THE DAY! Please consider supporting 22Q Texas, Inc. for North Texas Giving Day- you can donate here: https://www.northtexasgivingday.org/22qtexas
Your donation to 22q Texas helps families just like yours, who also happen to be living with 22q11.2 chromosome differences.

09/10/2025

We are 22q Texas and we'd love your continued support! North Texas Giving Day giving is open until 9/18/2025 & you can donate here: https://www.northtexasgivingday.org/22qtexas
Your donation to 22q Texas helps families just like yours, who also happen to be living with 22q11.2 chromosome differences.