Sweet William's Way with Krabbe

Sweet William's Way with Krabbe William is an 12 year old with early infantile Krabbe Leukodystrophy. He had a stem cell transplant at 5 months old to slow the progression of the disease.

William is the son of Robert and Abbey (Glasgow) Branch. He was diagnosed with Krabbe Leukodystrophy at the age of 5 months old. Krabbe is a tragic, progressive terminal genetic disorder. The only treatment at this time is a stem cell transplant that needs to be caught at birth, but most do not know until its too late for treatment. Learn more about Newborn Screening at www.huntershope.org. We are here to educate and share our story.

Hope you all had a Happy Father's Day weekend! 💙We went bowling, played baseball and ended it with a trip to see family...
06/22/2026

Hope you all had a Happy Father's Day weekend! 💙

We went bowling, played baseball and ended it with a trip to see family. ☺️

Tuesday, he gets his cast removed for new X-rays. Hopefully he can keep it off, and is healing well! Or, he may need another replaced. TBD!

Saturday morning baseball! ⚾ 🌞 Thank you to all that came out to cheer on the Davenport Challenger League!
06/13/2026

Saturday morning baseball! ⚾ 🌞

Thank you to all that came out to cheer on the Davenport Challenger League!

🥳 William had a wonderful birthday weekend! First, thank you to all that have sent him cards and gifts! We have one fr...
06/08/2026

🥳 William had a wonderful birthday weekend!

First, thank you to all that have sent him cards and gifts! We have one from almost every single state and that's pretty amazing! He will be sending everyone a little something in return... at some point ☺️.

🏥 We started the weekend off with visiting his Ortho surgeon for a healing check-in. Everything is healing as expected and he will have his cast removed in 2.5 weeks with new X-rays, then a reassessment.

That night, he attended Unified Bowling 🎳 where we saw a lot of familiar friendly faces, then Challenger Baseball ⚾ the next morning where he again had a group of fans 🥹🌟👏🏽, then a small birthday party at our home 🏡, and finally opening up all of the cards, presents and packages and blowing out candles on his Monster Truck birthday cake. 🎉

We even had a friend "Card My Yard" (pic below) and got lots of Happy Birthdays from our amazing neighbors! 😄

🏫 He starts summer school tomorrow just a few hours a day, and we will continue trying to have some relaxing fun time doing some other things he loves to do. 🌞

Thank you for making his weekend so special, despite being in a big fat uncomfortable cast!! 💪🏽

If you would still like to send him a card, please feel free to do so! We celebrate at some level almost all month! Please see previous posts for wishlist and address. 💙

I'm pretty emotional at every birthday and holiday for that matter. William makes things better and we are so blessed to be his parents. ☺️

Few updates on our guy!🎂 There are just a few days left to check out William's birthday Wish List (and other random medi...
05/31/2026

Few updates on our guy!

🎂 There are just a few days left to check out William's birthday Wish List (and other random medical supplies not covered by insurance):

https://www.amazon.com/hz/wishlist/ls/148PXOH9RZ40L?ref_=wl_share

💌 Birthday cards can also be mailed to:
William Branch
PO Box 62
Davenport, IA 52805

💚 Monetary donations sent directly to William:
https://www.paypal.me/sweetwilliamsway

He is turning 12! 🥳

🏥 Last week, William's pediatric orthopedic surgeon manipulated his leg in clinic and placed a hard cast. We go back end of this week to see how he is healing.

William chose the cast color. Go Cubs, Go! 💙 He's so tough...

🎒 Thank you for thinking of our kiddo! He is officially now a 7TH GRADER. He will start summer school next week! 🥹

⚾ Picture below is William at his Challenger Baseball game! He loves to play! Thankful for the opportunities we have in the QCA.

William has a fractured leg. ☹️ And a few weeks before his 12th birthday.....Will you help us make this birthday extra ...
05/28/2026

William has a fractured leg. ☹️ And a few weeks before his 12th birthday.....

Will you help us make this birthday extra special? He loves receiving cards. 💌

William Branch
PO BOX 62
Davenport, IA 52805

He has had to miss the last week of 6th grade and a baseball game, so some cheering up is in order.

We go to his Ortho tomorrow to make sure all is healing well. He is comfortable but just bummed. ☹️

🥹 Proud parent moment. He did well at his school recognition assembly earning of 1st honors, then we headed straight ou...
05/23/2026

🥹 Proud parent moment. He did well at his school recognition assembly earning of 1st honors, then we headed straight out the door for physical and occupational therapy (enter his disgruntled look...its hard work!)

He is one of the most inspirational people I've ever met.

Nine more sleeps and we have a 7th grader.

Promise we have fun sometimes 😆. Challenger Baseball game tomorrow morning! Hooray for 3-day weekends and summer time!!! 🌞



🎁 William's 1️⃣2️⃣TH birthday wishlist is ready for viewing!💌 Cards can also be mailed to:PO Box 62Davenport, IA 52805We...
05/16/2026

🎁 William's 1️⃣2️⃣TH birthday wishlist is ready for viewing!

💌 Cards can also be mailed to:
PO Box 62
Davenport, IA 52805

We will celebrate the first week of JUNE!

I remember our peds nurses in Pittsburgh and Salt Lake City. One took the time to answer my questions about where to ge...
05/12/2026

I remember our peds nurses in Pittsburgh and Salt Lake City. One took the time to answer my questions about where to get my hair cut. Another didn't laugh at our Minion fart thing, which made it more funny. Another was so loud with her PPE she woke up the entire room every night. 😆

Others I remember their patience as they were teaching us now to insert a feeding tube into our new baby and how to HepLock and care for central lines, through our tears and trembling hands.

And how all of our peds nurses are able listen to a child that doesn't speak traditionally.

Their compassion is unmatched.

They make us smile with their unique personalities and great big hearts.

We remember all of them. 💜

🏫 Approaching the last month of 6️⃣th grade for this guy. 🥹🤧 He had a pretty rough respiratory illness this past month b...
04/22/2026

🏫 Approaching the last month of 6️⃣th grade for this guy. 🥹

🤧 He had a pretty rough respiratory illness this past month but he's all better now. We stayed home and did ALL the therapies 24/7 and he rested and healed well. Go Team William! 🩺

⚾ 🎳 He is signed up for summer school, the Unified Bowling League and Challenger Baseball for the summer. 🌞

📆 We are planning another visit to the United Leukodystrophy Foundation Scientific Symposium in Chicago which we are very excited about! We can't wait to see our Leukodystrophy family in June. 💜

🎂 And he turns 1️⃣2️⃣ in less than 2 months!

We are SO proud. ☺️

William's Challenger Baseball schedule. Team Rotary! He's playing with the 12+ year olds this year 🥹!
04/10/2026

William's Challenger Baseball schedule. Team Rotary! He's playing with the 12+ year olds this year 🥹!

Address

PO BOX 62
Davenport, IA
52805

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