New England Hemophilia Association

09/04/2026

Last month, we came together at Trombetta's Farm in Marlborough, MA, for a fun-filled afternoon of mini-golf, lunch, ice cream, and plenty of time to connect with others in our community!

We were also thrilled to welcome professional golfer Perry Parker, who shared his inspiring story of not letting his hemophilia hold him back from competing at the highest level. Before hitting the greens, Perry offered attendees tips and tricks to help improve their swing, then put those lessons into action during a round of mini-golf! Learn more about our other upcoming events: www.nehaevents.org.

09/03/2026

Big changes are coming to Medicaid in January, and now is the time to understand what those changes could mean for you!

On Wednesday, September 9, public policy experts from the National Bleeding Disorders Foundation (NBDF) and Artemis Policy Group are hosting a webinar to help you learn about the changes, NBDF's efforts on the state and federal levels, and what community members need to do to prepare. Sign up below.

Big changes are coming to Medicaid in January, and you should be ready.

09/02/2026

On Thursday, September 17 at 6 PM, we are hosting an educational dinner with Sanofi at Boqueria in West Hartford, CT.

During dinner, attendees will learn about a product approved to treat both hemophilia A and hemophilia B with and without inhibitors. This event will include viewing a nationwide broadcast featuring a healthcare practitioner and a patient. Learn more and register below.

On Thursday, September 17 at 6 PM, we are hosting an educational dinner at Boqueria in West Hartford, CT.

09/01/2026

Last weekend, more than 30 men came together for our 4th Annual Men’s Retreat at Mount Snow Resort in Vermont. Our agenda focused on connection, mindfulness, and physical and emotional wellness, while creating opportunities for meaningful conversations and new connections.

Highlights included workshops on how roles change over your lifespan, joint health and aging with a bleeding disorder, educational breakout sessions, and a scenic lift ride or hike to the summit of Mount Snow. Attendees also enjoyed time to relax and connect, an evening reception with our sponsors, a lively casino night, and Sunday morning sessions focused on reflection, mindfulness, and sharing experiences.

Thank you to our Presenting Sponsor, CSL Behring, for helping to make this event possible. Learn more about our other upcoming events: www.nehaevents.org.

08/31/2026

As of today, 31 members of our community have qualified to receive a Factor Club Medal at our Unite Walk on September 26! Medal recipients will receive special recognition at our Walk as a thank you for their commitment and hard work.

It is not too late to earn one for yourself! Any individual registrant, including team members, captains or individual walkers can receive medals, as long as their individual profile has raised at least $500. Learn more and see where you stand at www.nehawalk.org.

08/30/2026

We’re less than one month away from our Unite for Bleeding Disorders Walk! While the Walk is our largest fundraiser of the year, it’s also our largest celebration, and we can’t wait to have you there with us on Saturday, September 26!

In this video, you’ll get a glimpse of the fun, family-friendly activities we have planned for this year’s Walk. Bring your friends, family, coworkers, and neighbors to Prowse Farm in Canton, MA, and join us for a day of community, celebration, and support for the bleeding disorders community.

Register, start a team, or make a donation at www.nehawalk.org.

08/28/2026

On Friday, September 11 at 7 PM, join us for a virtual educational presentation focused on the power of advocacy and speaking your truth.

Our speaker, Kate Smethurst, is both a mother of children with hemophilia and someone who was diagnosed with hemophilia herself later in life. She has been an active member of the New England bleeding disorders community for nearly a decade. Kate will share tips and tools to help you feel prepared to speak your truth and advocate effectively, whether you’re advocating for yourself or on behalf of someone else. Sign up below!

On Friday, September 11 at 7 PM, we are hosting a virtual educational presentation with Novo Nordisk to help you better understand the power of self-advocacy and speaking your truth.

08/24/2026

We are proud to celebrate Dr. Nathan Connell of the Boston Bleeding Disorders Center on being named the 2026 Physician of the Year by the National Bleeding Disorders Foundation!

As a physician, Dr. Connell provides compassionate, expert care and supports patients through every step of their bleeding disorder journey. Beyond the exam room, he continues to be there for patients and families by sharing his expertise and educating and empowering others by presenting at our events and retreats and leading sessions at national and international conferences. His dedication to our community makes a meaningful difference in so many lives. Please join us in congratulating Dr. Connell on this incredible and well-deserved recognition!

08/20/2026

We’re just one month away from NEHA Night with the New England Revolution at Gillette Stadium on Saturday, September 19!

Grab your family and friends, get your tickets, and join us for a night of soccer, fun, and community. NEHA attendees will sit together, and $10 from every ticket purchased through our link will be donated directly to our community. Learn more and get your tickets: www.newenglandhemophilia.org/events/revs26

08/19/2026

Back to school time is here! We’ve put together a Back to School Toolkit with resources to help you prepare for the new school year and make sure teachers and school staff understand your child’s bleeding disorder.

From customizable resources for educators to information about IEPs and 504 plans, field trips, extracurricular activities, and transitioning to a new school, there’s something for students at every stage. Explore our Back to School Toolkit and start the school year prepared: https://mailchi.mp/newenglandhemophilia.org/bts26