I LIVE LUPUS

I LIVE LUPUS I am a LUPUS WARRIOR! I fight an ugly war inside my body every single day... I may not win this battle, but I will NOT go down without a FIGHT

Having lupus makes my everyday life challenging. When my lupus is active, symptoms of joint stiffness, pain, extreme fatigue, confusion, or depression can make simple tasks difficult, and sometimes impossible. It's not easy to describe a disease with symptoms that are so varied and yet often not visible, whose effects can range from manageable to life-threatening, and whose course is sporadic, alt

ernating between periods of wellness and flare. Explaining lupus is made even more difficult because the causes of lupus are unknown. People around me may not realize how much discomfort and pain I'm experiencing, or may not know that I am sick at all because I don't have visible signs of disease...but it's hard living with LUPUS!

“MAY”
05/10/2026

“MAY”

04/28/2026
02/04/2026

This , learn about the link between and cancer. In our podcast episode on The Expert Series, Dr. Sasha Bernatsky discusses potential increased risks of certain cancers in people with lupus, along with her recent research on cancer risks in a large SLE cohort.

🎧 Listen to the episode here: https://buff.ly/ZPeCb4g

JANUARY 💜
01/09/2026

JANUARY 💜

LUPUS.ORG We recognize that losing a loved one to   is an unimaginable pain and deserves a special space to find encoura...
04/01/2025

LUPUS.ORG

We recognize that losing a loved one to is an unimaginable pain and deserves a special space to find encouragement and solace.
Join our first virtual support group for those who are grieving. Connect with others who understand - and share, reflect, and honor your journey.

Lupusorg - We're conducting a global survey to understand how   affects the body, especially the kidneys. If you have lu...
03/07/2025

Lupusorg - We're conducting a global survey to understand how affects the body, especially the kidneys. If you have lupus or care for someone who does, share your experience to help advance research and awareness

www.lupus.org/instagram

Lupusorg •January is  O, a good reminder about the importance of blood donation and how   affects the blood. Blood disor...
01/21/2025

Lupusorg
•January is
O, a good reminder about the importance of blood donation and how affects the blood. Blood disorders are common with lupus, often impacting platelets and red and white blood cells. Click the link in our bio to learn more.

Lupus.org 🚨 We've updated our guidewith new resources to support people with   impacted by the  . It includes tips for b...
01/15/2025

Lupus.org 🚨
We've updated our guide
with new resources to support people with impacted by the . It includes tips for building an emergency lupus kit, guidance on obtaining medications, disaster preparedness and recovery resources, and safety considerations for poor air quality (LINK IN BIO). New resources will be added as they become available.

11/15/2024

A heartfelt thank you to my kids for loving & supporting me through my battles. I especially want to thank my caregiver, my daughter. I know it’s hard to care for someone fighting lupus & cancer. Know that I appreciate you so much. You deserve your flowers 💐 for National Caregivers month 😘
I love💜love you babygirl

💜. 🥰. 🙏🏽.

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