EDS Connective

09/16/2026

❓Have YOU gotten it yet?

🔎 Search your inbox and keep an eye out 👀 so you don’t miss the notification when it’s your turn.

If you haven’t received your invitation for Early Access to the EDS Connective platform yet, the email will be coming your way soon.

✅ To help make sure it reaches your inbox:

1. Add [email protected] to your contacts

2. If you use Gmail and find an EDS Connective email in your Promotions tab, drag it to your Primary inbox

3. Search your inbox for EDS Connective and check the spam/junk folders

We can’t wait to welcome you to the platform! ❤️‍🩹


In case you haven’t heard the latest, EDS Connective is now live. We’re starting with a limited number of Early Access Program participants, adding more people each week. If your name is on the waitlist, watch your email for your invitation to get started. If you haven’t signed up yet, visit the link in our bio. 👆We expect it will take a few months to work through our waitlist before we open to everyone.

🦓 EDS Connective is a virtual health platform that facilitates evaluation and diagnosis of hypermobile Ehlers-Danlos Syndrome (hEDS) and Hypermobility Spectrum Disorder (HSD) via independent telehealth providers, including screening and potential referral for genetic testing for other forms of EDS and connective tissue disorders. We are not a healthcare or telehealth provider. Content shared here is for informational and educational purposes only and does not constitute medical advice. Individual results vary. Always consult your physician or other healthcare professional regarding medical decisions.

09/10/2026

What is a “Body Like Mine”. For me personally I am AFAB (she/her), Autistic and I have a diagnosis of hEDS (hypermobile ehlers Danlos Syndrome) and Dysautonomia. I raise two ND girls with bodies like mine and we are on a mission to change the landscape of Irish healthcare for my kids, your kids and those of of you out there with bodies like ours. I include some quotes from the recent freely downloadable publication by Maggie Buckley that is well worth reading. Head over to EDS Connective and you can download this from the link in their bio. There are some great contributors to this book and it’s lovely free resource and guide whether your at the start of your journey or somewhere already on this “road less travelled” that we all walk, hobble or roll on together 👣 Follow for more. We are just getting started ✨

08/31/2026

🎉 We are LIVE - starting with a small number of Early Access Program participants, and adding more people each week.

👀 If you are on the waitlist, watch your email for your invitation to get started.
If you haven’t signed up yet, visit the link in our bio. 👆
We expect it will take a few months to work through our waitlist before we open to everyone. 🗓️

🙏 Thank you for celebrating this with us.
We’re so honored to bring this platform to the community who has waited far too long to be believed. 🩷💪🏼🦓

📲 EDS Connective is a virtual health platform that facilitates evaluation and diagnosis of hypermobile Ehlers-Danlos Syndrome (hEDS) and Hypermobility Spectrum Disorder (HSD) via independent telehealth providers, including screening and potential referral for genetic testing for other forms of EDS and connective tissue disorders. We are not a healthcare or telehealth provider. Content shared here is for informational and educational purposes only and does not constitute medical advice. Individual results vary. Always consult your physician or other healthcare professional regarding medical decisions.

08/27/2026

📣 How can you turn your lived experience into something meaningful❓

That question is how EDS Connective came to exist 🩷🦓

🎤 This is legendary advocate, author, and EDS Connective advisor Maggie Buckley presenting on the future of advocacy at .danlos .

➡️ Tag someone you admire for their advocacy!



EDS Connective is a virtual health platform that facilitates evaluation and diagnosis of hypermobile Ehlers-Danlos Syndrome (hEDS) and Hypermobility Spectrum Disorder (HSD) via independent telehealth providers, including screening and potential referral for genetic testing for other forms of EDS and connective tissue disorders. We are not a healthcare or telehealth provider. Content shared here is for informational and educational purposes only and does not constitute medical advice. Individual results vary. Always consult your physician or other healthcare professional regarding medical decisions.

08/21/2026

📣 Ever heard something like this?
💬 Tell us below.

📕 In the chapter on co-occurring conditions in our free ebook, When Your Body Needs More Care, Dr. Alan Hakim of The Ehlers-Danlos Society walks through the many symptoms and conditions that may be connected to EDS.

It’s not ❌ just bendy joints and stretchy skin - EDS can affect EVERY system in the body. ❤️‍🩹

Download the free ebook at the link in bio.☝🏼

📕 Ebook Disclosure: Written by Maggie Buckley, advisor to EDS Connective. Medically reviewed by Dr. Dacre Knight, advisor to EDS Connective. Contributions by Dr. Alan Hakim, who serves as an advisor to EDS Connective. Advisors may receive compensation or reimbursement for expenses related to their advisory services. Contributions also by Jeannie Di Bon, who serves as both an advisor to EDS Connective and a business partner through The Zebra Club, and Dr. Melissa Koehl, business partner to EDS Connective through Chimera Health.

🦓 EDS Connective is a virtual health platform that facilitates evaluation and diagnosis of hypermobile Ehlers-Danlos Syndrome (hEDS) and Hypermobility Spectrum Disorder (HSD) via independent telehealth providers, including screening and potential referral for genetic testing for other forms of EDS and connective tissue disorders. We are not a healthcare or telehealth provider. Content shared here is for informational and educational purposes only and does not constitute medical advice. Individual results vary. Always consult your physician or other healthcare professional regarding medical decisions.

08/19/2026

That’s it. That’s the post. 🦓



EDS Connective is a virtual health platform that facilitates evaluation and diagnosis of hypermobile Ehlers-Danlos Syndrome (hEDS) and Hypermobility Spectrum Disorder (HSD) via independent telehealth providers, including screening and potential referral for genetic testing for other forms of EDS and connective tissue disorders. We are not a healthcare or telehealth provider. Content shared here is for informational and educational purposes only and does not constitute medical advice. Individual results vary. Always consult your physician or other healthcare professional regarding medical decisions. Learn more at our website at the link in bio. ☝🏼

08/18/2026

We’re WEEKS from launch 🚀
Waitlist link in bio for early access 👆



🦓 EDS Connective is a virtual health platform that facilitates evaluation and diagnosis of hypermobile Ehlers-Danlos Syndrome (hEDS) and Hypermobility Spectrum Disorder (HSD) via independent telehealth providers, including screening and potential referral for other forms of EDS and connective tissue disorders. We are not a healthcare or telehealth provider. Content shared here is for informational and educational purposes only and does not constitute medical advice. Individual results vary. Always consult your physician or other healthcare professional regarding medical decisions.

08/17/2026

❌ Rarely step 1.
🏁 Not a finish line.
✅ A midpoint.

An EDS/hEDS/HSD diagnosis is rarely where the journey begins, and it doesn’t signal the end, either. It’s a midpoint where we can reset our goals, expectations, and gather better resources so that the next leg of the journey is a little bit easier.

🎤Angie Kinane, FNP-C tells us why diagnosis matters for her and her patients at the UVA Health Ehlers-Danlos Syndromes and Hypermobility Disorders Clinic.



EDS Connective is a virtual health platform that facilitates evaluation and diagnosis of hypermobile Ehlers-Danlos Syndrome (hEDS) and Hypermobility Spectrum Disorder (HSD). We are not a healthcare or telehealth provider. Content shared here is for informational and educational purposes only and does not constitute medical advice. Individual results vary. Always consult your physician or other healthcare professional regarding medical decisions.

08/12/2026

REASON 1️⃣4️⃣: A clear diagnosis helps your providers, too!

❤️‍🩹 Actually knowing what we’re dealing with helps us understand our own bodies, but it also helps give our doctors and care team more of the information they need to make the best decisions to support us— and, just as importantly— to avoid advice, treatments, and procedures that can hurt us.

🤗 Really enjoyed our conversation with at the .danlos conference. This certified health & wellness coach has lived experience and an is an engaging content creator to follow!

❓Still trying to get answers about suspected hEDS or HSD? 🔜 We are WEEKS away from launching our early access program.
🦓 EDS Connective pairs you with expertly trained doctors who evaluate for hEDS and HSD diagnosis and may refer for genetic testing for other types of EDS and connective tissue disorders - all via telehealth, 100% online, available in all 50 US states. Get on our waitlist at the link in bio! ☝🏼☝🏼☝🏼



EDS Connective is a virtual health platform that facilitates evaluation and diagnosis of hypermobile Ehlers-Danlos Syndrome (hEDS) and Hypermobility Spectrum Disorder (HSD). We are not a healthcare or telehealth provider. Content shared here is for informational and educational purposes only and does not constitute medical advice. Individual results vary. Always consult your physician or other healthcare professional regarding medical decisions.

08/08/2026