Doylestown Fibromyalgia & ME/CFS Community and Support Group

09/04/2026

I apologize for the late notice but I needs to reschedule the meeting for next Friday, Sept 11th. I woke up with migraine and can't get it tapped down.

09/04/2026

😎💜 Join us TONIGHT for our Virtual Support Meeting!💜🏖️🌊
▪️WHEN: Friday, September 4, 2026
▪️TIME: 7 to 9 PM EST
▪️WHEN: Zoom

HOW TO JOIN:
The Zoom Invite Link was posted this morning in two locations.

🔺 (1) If you're signed up for our Meeting Reminders list, check your inbox! If you missed the 6am deadline, you can still subscribe to start receiving invites in your inbox next month --> https://bit.ly/DFCNewsletter

🔺 (2) Check our Private Facebook Group.
If you're not a member, you can still request to join. We review requests about 10 minutes before the meeting. --> http://bit.ly/DFCFacebookGroup

⚠️After asking to join, please check Messenger and answer the security question to avoid any delay. We'll approve your request and send you a message with the link.

🚨If you still need help, feel free to send us a message on this page or text Rebecca. Her number is available in the private group.

Hope to see you there! 😘

08/10/2026

"Nobody feels normal, but everyone looks normal on paper." 💬

​Dr. Erin Nance (Little Miss Diagnosis) just released a video proposing a theory—the Cellular Barrier Permeability Theory (CBPT)—to explain the overlap between EDS, POTS, MCAS, and chronic systemic symptoms.

​She suggests that instead of single organ damage, signaling alarms triggered at fragile barrier sites keep the body stuck in chronic stress response.

​Does this "connecting the dots" concept resonate with your experience?

If you don't already follow her on YouTube, you should. She's a real breath of fresh air and a supportive member of the medical community.

​🔗 https://youtu.be/xQAqNL02v2o?is=y5qiUlUR0yCaA8nj

Enjoy the videos and music you love, upload original content, and share it all with friends, family, and the world on YouTube.

08/09/2026

Can't wait to hear what they learned from the conference!

08/09/2026

08/08/2026

🧠 A New NIH Study on ME/CFS Fatigue

A small new NIH study measured brain and muscle activity during exertion and concluded that ME/CFS fatigue likely originates in the brain rather than the muscles.

However, given the tiny sample size (15 patients) and controversial author notes on "perceived exertion," it raises as many questions as answers.
​Read the full breakdown below 👇/

08/08/2026

Aug 8 is severe ME Awareness Day! How will you spread awareness?

Tomorrow is Severe ME Day. We are honored to help amplify the stories and shares of those with Severe ME. It does help us see it if you tag us: .

Social media is favoring hashtags less but they are still useful in helping us find content. You can also use terms in your text so they are picked up as keywords.

Some possible hashtags - and this list is by no means exhaustive:





We will be resharing mainly on platforms that do best with that- Facebook stories, Instagram stories and reposts, Bluesky reposts mainly.

We are so pleased to share our 2026 Severe ME Artists Project tomorrow. We try to keep any participation requirements as simple as possible to keep it as open as possible to those with severe ME. If you submitted this year- or any previous year- and you feel up to sharing about your submission- tag us in that too. We would be happy to share.

Remember to take care of you. If that means taking a break or sitting this year out, that is okay. It is never an easy day. Practice whatever self-care can look like to you. Holding all in love.

Allies we greatly appreciate you joining in and sharing the stories of those with Severe ME. The effort on their part to share costs them - sometimes deeply.

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08/07/2026

We're live on Zoom!

08/07/2026

😎💜 Join us TONIGHT for our Virtual Support Meeting!💜🏖️🌊
▪️WHEN: Friday, August 7, 2026
▪️TIME: 7 to 9 PM EST
▪️WHEN: Zoom

HOW TO JOIN:
The Zoom Invite Link was posted this morning in two locations.

🔺 (1) If you're signed up for our Meeting Reminders list, check your inbox! If you missed the 6am deadline, you can still subscribe to start receiving invites in your inbox next month --> https://bit.ly/DFCNewsletter

🔺 (2) Check our Private Facebook Group.
If you're not a member, you can still request to join. We review requests about 10 minutes before the meeting. --> http://bit.ly/DFCFacebookGroup

⚠️After asking to join, please check Messenger and answer the security question to avoid any delay. We'll approve your request and send you a message with the link.

🚨If you still need help, feel free to send us a message on this page or text Rebecca. Her number is available in the private group.

Hope to see you there! 😘

07/07/2026

You do not need to be in a flare for MAST testing