Doylestown Fibromyalgia & ME/CFS Community and Support Group

06/05/2026

🚨 TONIGHT'S MEETING UPDATE: Read before you head out! 🚨

We are so excited to see everyone in person tonight, Friday, June 5th, from 6:30 PM – 9:00 PM at Sam C.’s home! Remember, you are always welcome to arrive late or leave early depending on your energy levels—zero pressure.

Two important updates for today:

🔒 NEED THE ADDRESS?
To protect Sam's privacy, we aren't posting her street address publicly.

If you didn't RSVP in time to get the email but have a last-minute burst of energy and want to join us tonight, please text Rebecca, and she will send the location details straight to your phone! (It is located conveniently right next to Doylestown Hospital). Her text number is in the private Facebook group.

Or you can email us at [email protected], and we'll try to check it regularly today.

💻 ZOOM UPDATE:
Because we didn't receive any virtual RSVPs or expressions of interest this month, we will NOT be setting up the Zoom "Virtual Window" tonight.

Packing and setting up the hybrid tech takes a lot of extra physical energy, so we're going to leave the gear at home and focus entirely on the in-person gathering. If you were hoping to log on, we are so sorry to miss you, but we look forward to seeing you at our regular Zoom meetings!

🍇 FOOD: Light snacks and herbal mocktails from Sam's new company are provided. Bringing a snack to share is welcome but completely optional.

Rest up today, and we can't wait to see you face-to-face tonight! 💜

06/01/2026

🎉 RSVPs ARE OFFICIALLY OPEN! 🎉
Join us in person (or via Zoom) this Friday!

For the first time in years, the Doylestown Fibromyalgia and ME/CFS Community and Support Group (DFC) is stepping away from the Zoom screens for our June meeting!

One of our wonderful long-time members, Sam C., has graciously offered to host us at her home before she puts it on the market.

To make the most of the evening light, please note the slight time change so we can enjoy the sunset together:

📅 MARK YOUR CALENDAR

⏰ When:: Friday, June 5th, from 6:30 PM – 9:00 PM
(Listen to your body! You are always welcome to arrive late or leave early as needed—zero pressure and zero judgment here).

📍 Where: A private home conveniently located right next to Doylestown Hospital.

🌿 WHAT TO EXPECT

🍇 Food & Drink:
Casual, light snacks (cheese, gluten-free crackers, olives, nuts, and chips) will be provided. Sam will also be mixing up some refreshing herbal mocktails for us to try from her new herbal company! (Bringing a snack to share is welcome, but entirely optional.)

💻 WANT TO JOIN VIRTUALLY?
If you can’t make it in person, we are planning a Zoom "Virtual Window" so you can drop in and say hello. While you don't have to RSVP for Zoom, it would be incredibly helpful if you did! Setting up the hybrid tech takes some effort, so knowing whether people plan to log on helps me decide whether to bring and set up the equipment.

⚠️ How to RSVP & Privacy Details
To protect our members' privacy, the exact physical address will only be messaged/emailed to those who RSVP. We will send out a text or email the day before the meeting (Thursday, June 4th) with the exact location.

👉 https://form.jotform.com/261511913148150

💡 Not sure how you'll feel on Friday? If you want to wait and see how your body is pacing, go ahead and select the "In-Person (Tentative/Maybe)" option on the form. That way, you’ll still get the address sent to you just in case you feel up for it at the last minute!

Our "Soft RSVP" Policy: We completely understand how unpredictable chronic pain and fatigue can be. Please consider your RSVP a "soft" one. If you sign up but have a flare-up or your energy changes on Friday, it is 100% okay to change your plans. Your health always comes first!

Whether you’ve been with DFC since the hospital days or just joined us on Zoom, supportive friends, family, and caregivers are welcome. Click the link above to let us know if you're coming. We can't wait to reconnect! 💜

05/25/2026

🎉 SAVE THE DATE: We are meeting IN PERSON! 🍹

For the first time in years, the Doylestown Fibromyalgia and ME/CFS Community and Support Group (DFC) is stepping away from the Zoom screens. One of our wonderful members, Sam, has graciously offered to host us at her home before she puts it on the market!

Please note the slight time change for this special event so we can enjoy the sunset together:

📅 WHEN: Friday, June 5th, from 6:30 PM – 9:00 PM
(Listen to your body! You are always welcome to arrive late or leave early as needed—zero pressure and zero judgment here).

📍 WHERE: A private home right next to Doylestown Hospital.

🍇 FOOD & DRINK: Casual, light snacks (cheese, gluten-free crackers, olives, nuts, and chips) will be provided. Sam will also be sharing some refreshing herbal mocktails from her new herbal company! (Bringing a snack to share is welcome, but entirely optional.)

💻 WANT TO JOIN VIRTUALLY? If you can’t make it in person, don't worry! We are planning a Zoom drop-in option so you can still say hello.

We aren't sure yet whether the evening will turn into a traditional group meeting or we will just hang out and mingle—we'll see what everyone feels like doing that night! Either way, we'd love for you to drop in from home. As usual, we'll post the Zoom link right here in our private Facebook group on the morning of the meeting.

⚠️ RSVP INFO: To protect privacy, the exact street address will only be given to those who RSVP. RSVPs are NOT open yet! We wanted to share this early so you can save the date and pace your energy for the week. We will post the official RSVP link and instructions here in a few days.

Whether you’ve been with DFC since the hospital days or just joined us on Zoom, supportive friends, family, and overlapping chronic pain/fatigue warriors are welcome. We can't wait to reconnect at whatever pace your body needs. See you soon! 💜💜

05/09/2026

Let's go!

SO MUCH IS HAPPENING NEXT WEEK!

We are excited to share that has secured 12 meetings with Congress next week to discuss funding the ME/CFS Research Roadmap through appropriations. We are partnering with Notjustfatigue to make the Congress meetings happen. These meetings have been carefully planned with advocates in specific states that will have the most impact.

On May 12th, as part of , we will gather outside the Health and Human Services (HHS) with a small art installation that speaks to the very real and devastating severity of ME and Long COVID. High-ranking HHS officials have already confirmed their attendance, and we will use that moment to convey the weight of these diseases and advocate for exemptions to Medicaid work requirements.

MEAction is also meeting next week with the NIH Director to discuss funding the ME/CFS Research Roadmap directly through NIH channels. We are pleased to have this face-to-face meeting with the NIH Director to convey the severe nature of the disease, its enormous impact and the urgency to move forward with the ME/CFS Research Roadmap.

Your voice is powerful in this fight! Sharing your story online gives us more experiences to amplify and more proof that this community cannot be ignored. Please take a moment to tell your story of living with this serious disease. Check out our toolkit for story prompts and resources. Right now, it truly matters more than ever. Link in our bio!

Your support is vital to our efforts! Thank you!

05/08/2026

We're live on Zoom!

05/08/2026

Hope to see you tonight on Zoom for our May Virtual Support Meeting!

05/01/2026

Tomorrow's Virtual Meeting has been rescheduled for May 8th. We apologize for the inconvenience.

https://gem.godaddy.com/s/d5e69e1

04/22/2026

Interesting theory. She's selling a book. Someone in the comments posted a link to a study. I haven't read it yet.
https://pmc.ncbi.nlm.nih.gov/articles/PMC4409380/