Heterotaxy Connection

Heterotaxy Connection Heterotaxy Connection is a nonprofit supporting individuals and families affected by heterotaxy.

We provide education, advocacy, and community connections to improve awareness, care, and outcomes

👤Have you used the Interactive body map on our website? If you haven’t, you are missing out!!!🫀Go check it out right now...
06/01/2026

👤Have you used the Interactive body map on our website? If you haven’t, you are missing out!!!

🫀Go check it out right now!!! Heterotaxy.org

🗣️ Loads of information has been added to this map. It even gives the option to have everything read aloud to you! It is a tool we are very proud of. It took a lot of time, effort, energy and a team of people to get this up and running. We hope you are able to use it to your advantage. It can be a great resource to share with others as well.

💛 Please let us know what you think. We welcome your feedback.

FACTS:Heterotaxy can be inherited in different patterns; X-linked, autosomal dominant, or autosomal recessive, meaning i...
05/29/2026

FACTS:
Heterotaxy can be inherited in different patterns; X-linked, autosomal dominant, or autosomal recessive, meaning it can run in families in different ways.

Genetic testing and counsoling are recommended for all families affected by heterotaxy.

💛 Heterotaxy.org

💛Meet Bristol, Heterotaxy Warrior💛TOGETHER WE THRIVE📝If you would like to share your Heterotaxy journey, please go to ou...
05/27/2026

💛Meet Bristol, Heterotaxy Warrior💛

TOGETHER WE THRIVE

📝If you would like to share your Heterotaxy journey, please go to our bio ➡️linkin.bio ➡️Share Your Story or use the link below:
https://heterotaxyconnection.dm.networkforgood.com/forms/storytelling-content-form

🎥If you’d like to share your journey through our new Video Storytelling please scroll up to our bio ➡️linkin.bio ➡️ NEW Video Storytelling or use the link below:
https://senja.io/p/heterotaxyconnection/r/warriorstories

💛💛💛 This is so great!!!
05/25/2026

💛💛💛 This is so great!!!

Today, we pause to remember and honor the brave men and women who gave their lives in service to our country…those who m...
05/25/2026

Today, we pause to remember and honor the brave men and women who gave their lives in service to our country…those who made the ultimate sacrifice and never made it home.

Memorial Day is a time to reflect on the courage, selflessness, and sacrifice that protect the freedoms we often take for granted.

Today we remember | We honor | We thank them

🤍🇺🇸🕊️

💫THE MORE YOU KNOW: Heterotaxy is a rare disease and a congenital disorder, meaning it is present at birth.HETEROTAXY 💛 ...
05/22/2026

💫THE MORE YOU KNOW:

Heterotaxy is a rare disease and a congenital disorder, meaning it is present at birth.

HETEROTAXY 💛 TOGETHER WE THRIVE

⭐️ Heterotaxy.org

⭐️Meet Carlos, Heterotaxy Warrior⭐️TOGETHER WE THRIVE📝If you would like to share your Heterotaxy journey, please go to o...
05/20/2026

⭐️Meet Carlos, Heterotaxy Warrior⭐️

TOGETHER WE THRIVE

📝If you would like to share your Heterotaxy journey, please go to our bio ➡️linkin.bio ➡️Share Your Story or use the link below:
https://heterotaxyconnection.dm.networkforgood.com/forms/storytelling-content-form

🎥If you’d like to share your journey through our new Video Storytelling please scroll up to our bio ➡️linkin.bio ➡️ NEW Video Storytelling or use the link below:
https://senja.io/p/heterotaxyconnection/r/warriorstories

Together, with Citizen Health, we are building critical natural history studies for the Heterotaxy community through a f...
05/18/2026

Together, with Citizen Health, we are building critical natural history studies for the Heterotaxy community through a fully digital platform with no site visits required.

By securely organizing medical records into a centralized profile, our community’s real-world experiences can be more effectively shared with the research community, helping create a stronger understanding of Heterotaxy and its lifelong impact.

This partnership allows our stories, journeys, and data to help inspire research, uncover patterns, and identify opportunities that could lead to breakthroughs and life-changing therapies.

Together, we are unlocking new possibilities and driving meaningful progress for Heterotaxy. 💛

Please look into joining, today. It is truly amazing.
https://www.citizen.health/ai-advocate/heterotaxy-connection

On Instagram go to the link in bio ➡️Citizen Health.

May is Mental Health Awareness Month. 💛💛 As a heterotaxy patient or a caregiver, your mind and heart carry so much every...
05/15/2026

May is Mental Health Awareness Month. 💛

💛 As a heterotaxy patient or a caregiver, your mind and heart carry so much every single day. It is never ending. Give yourself permission to pause, recharge, and care for your mental health too, as you move through each and every day.

💛

Heterotaxy.org

💛Meet Orion, Heterotaxy Warrior💛TOGETHER WE THRIVE📝If you would like to share your Heterotaxy journey, please go to our ...
05/13/2026

💛Meet Orion, Heterotaxy Warrior💛

TOGETHER WE THRIVE

📝If you would like to share your Heterotaxy journey, please go to our bio ➡️linkin.bio ➡️Share Your Story or use the link below:
https://heterotaxyconnection.dm.networkforgood.com/forms/storytelling-content-form

🎥If you’d like to share your journey through our new Video Storytelling please scroll up to our bio ➡️linkin.bio ➡️ NEW Video Storytelling or use the link below:
https://senja.io/p/heterotaxyconnection/r/warriorstories

Address

2882 E Ruby Valley Drive
Draper, UT
84005

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