Jeb's Journey

06/10/2026

06/08/2026

Meet Jeb 🧡

This CMV Awareness Month, we’re highlighting the faces and stories behind congenital CMV.

Every story shared helps raise awareness, educate families, and remind others they are not alone.

06/03/2026

June is National CMV Awareness Month

Congenital CMV (cCMV) is the most common infectious cause of birth defects in the United States, yet most people probably not have heard of it.
Here is what you should know:

- CMV is a very common virus.
- Most people who have CMV don’t even know it.
- When CMV is passed from mother to child during pregnancy, it becomes congenital CMV (cCMV).
- cCMV can cause hearing loss, developmental delays, vision problems, seizures and learning differences.
- Babies can be born with or without symptoms.

I was born with congenital CMV, experienced vision problems, passed all my newborn hearing tests, had hearing loss at around age 9, my journey shows us that some effects of cCMV may not show immediately which is why awareness monitoring and early interventions matter.

This June, help me spread the word about CMV and cCMV around so those that need the information can get the support they need!

Born with cCMV. Built by Autism.
Unapologetically Jeb.

~Jeb

05/27/2026

It has been a few weeks, I had a vacation in Walt Disney World in Florida, and I am willing to share my experience with my vacation alongside AuDHD.

Prior to the vacation, I signed up for Disney’s Disability Access Service (DAS). It was easy to do, I chatted on their online chat, waited for a cast member to video chat and get the full details, told them about my AuDHD and how it affects me and got accepted in.

During the vacation, the DAS pass was helpful for me during my day faced with crowds among other challenges. For loud sounds like concerts and loud entertainment, I stayed away from them as much as I could. For big events like nighttime fireworks displays, I kept my distance and instead I enjoyed my time at the resort.

For the last park day, I enjoyed my time at my favorite park, EPCOT, and did what I wanted to do before I left for home the next day. I felt glad and happy doing what I wanted to do by myself!

All in all, I advocated for myself and was accommodated by Disney to enjoy my time!

To my fellow readers, how do you advocate for yourself?

05/04/2026

💥Second Day Spotlight on the 4th💥

Built by AuDHD. Awareness is not optional.

This month, Jeb’s Journey focuses on hearing loss awareness, especially the kind families may not see coming.

Jeb passed his newborn hearing screening. He passed all those hearing tests until age 9.

Nine years later, congenital CMV contributed to single-sided hearing loss.

Passing a newborn hearing screening does not always mean hearing loss won’t develop later.

That matters because many families are told “everything is fine” without realizing hearing loss can emerge months or years later.

Congenital CMV is a leading infectious cause of childhood hearing loss, yet many families have never even heard of it.
Hearing loss is not always immediate.

⭐Monitoring matters.
⭐Early intervention matters.
⭐Awareness matters.
⭐If your child was born with cCMV, continued hearing checks matter.
⭐Because early matters.
⭐Because knowledge protects.
⭐Because one missed diagnosis can change everything.

Born with cCMV. Built by autism. Unapologetically Jeb.

**Photo is Jeb getting his last hearing aid set in 2019.

04/26/2026

Did you know…?

People with autism have a higher likelihood to be LGBTQ+, however not all people with autism are LGBTQ+. In current knowledge, 25% of us are trans, 3x as likely to be trans or gender diverse and 2x likely to be gay, le***an, bi, pan, etc.

Times are tough here, but we all deserve love, no matter what we identify as, we are all human after all! My page is also a safe space for LGBTQ+ people, always has been, always will be, no matter how much hate and displeasure comes my way, my stance is firm and clear!

04/13/2026

Did you know that no two people with Autism are the same?

Like snowflakes falling in the winter, no two snowflakes are the same. Same goes for us, no two of us are the same. Some may need more support than others, some may need a little support. Every one of us is different, but the only true thing we have in common is Autism!

Below are the levels of Autism, 2 different charts. They explain each functionality of people with Autism. Some are Level One, some Level Two, some Level Three, but no there is no bonus level. However, what we all have is love in our hearts. ❤️

More April Autism Acceptance and Awareness posts are incoming, so stay tuned! ~Jeb