T1D Talks

T1D Talks Welcome to T1D Talks. This page exists to share our journey, spread awareness, share resources, and do our best to support those living this life.

Whether you live with T1D or care for someone who does, you belong here 💙

This girl absolutely loves painting nails and getting hers painted as well!That being said, please drop some T1D inspo i...
09/02/2026

This girl absolutely loves painting nails and getting hers painted as well!

That being said, please drop some T1D inspo in the comments! She’s decided she wants to do some for awareness beyond just blue đŸ„°

Just a girl doing something she loves 💕🎣With camping full time we get to go fishing whenever we want. Low snacks, finger...
09/01/2026

Just a girl doing something she loves 💕🎣

With camping full time we get to go fishing whenever we want. Low snacks, finger poke stuff, phone, all geared up in her carry on bag and then off to walk to the pond to fish!

Anyone else love to fish? 🐠

08/31/2026

“Stuck in an Insulin Vial” was a poem wrote about acknowledging the grief of T1D. Some people had some negative things to say and I wanted to dive into some parts of it more.

It is not about painting my daughter’s life as miserable. It isn’t about hopelessness and despair. It isn’t about dwelling and being in a constant state of she has it worse than anyone, I know it can be worse. It’s about giving words to something deeper that I have struggled with as a parent and seeing my child go through.

Yes, my daughter is thriving. Yes, she laughs, plays, sings, dances, and dreams big. And I will always encourage that and remind her she can. Yes, I am grateful every single day for insulin, technology, and the chance at a long, full life. But none of that erases the reality that T1D has changed her childhood — and our lives — forever.

Grief in this context doesn’t mean I think her life is ruined. It means I mourn the parts of childhood that will never be untouched by pain, numbers, needles, and alarms. That she has scars from the adhesive of the technology literally peeling her skin off. That a bath without devices feels like a rare treat instead of an every other night luxury that a lot of people don’t realize they take for granted. I mourn that she can’t go on a random sleep over with anyone other than 1 family member because taking care of her isn’t exact every day and it’s a lot for anyone to handle. I mourn the parts of her childhood that she feels alone because she has no friends like her and she doesn’t understand.

She has gotten her insulin pump ripped off by a kid at the playground who didn’t know what it was.
She gets moody when she’s high and feels sick when she’s low. She won’t have a perfect number all day every day, and that affects how she feels.
She has cried and melted into a puddle of sadness about wishing she could stop being a type 1 diabetic more times than I can count. I have firsthand seen her diabetes burnout and have heard her plead to just make it go away.

No, she isn’t a prisoner. But she is trapped with a life long 24/7 disease that gives no breaks, and brings constant battles and hardships. And as a parent who cares about my children, I don’t want to see any of them suffer. So yes it will always cause heartache, but that doesn’t mean it will ever stop me from always letting her know I think she is the strongest person in the world and can do anything.

Insulin is the gateway to her freedom. She cannot have a life without it. And the after diagnosis doesn’t mean we’re without joy, but that there is a grief most families will never understand. It is the invisibilities that no one sees unless you are in this life.

This isn’t negativity. It’s honesty. And honesty matters, because only in safe spaces can parents and children acknowledge the hard parts and still celebrate the good. My daughter hears my pride, my encouragement, and my joy every single day. She also deserves a mom who allows room for the parts that hurt, instead of pretending they don’t exist.

Grief and joy can coexist. Hope and heartbreak can share the same story. Gratefulness and sadness are valid at the same time. And naming the grief doesn’t erase the joy, it makes the joy that much more profound.

So if you’ve never lived this life, I ask you not to judge the words of someone who has. Instead, try to listen. Because sometimes the most loving thing we can do is make space for the hard parts.

And I appreciate beyond words all of the kind things everyone has said 💙

Food is not the only factor that affects blood sugar in type 1 diabetics. Sometimes it’s a fall that ends with a scraped...
08/31/2026

Food is not the only factor that affects blood sugar in type 1 diabetics. Sometimes it’s a fall that ends with a scraped knee.

It’s important to take proper care of any type of injuries to try and avoid infection. Type 1 diabetes makes healing a bigger challenge and can take longer.

My little one got this nasty wound from running and falling on the road. It caused a huge spike in her numbers and was a little unexpected. Cleaning it daily has been important!

Today is Grief Awareness Day and I wanted to share this poem that gives words to the grief that comes with watching your...
08/30/2026

Today is Grief Awareness Day and I wanted to share this poem that gives words to the grief that comes with watching your small child go through things you never imagined. That doesn’t mean these are the only feelings, this just acknowledges some of the grief felt. If you don’t relate or don’t like the way it’s worded, that is your right but please do not be rude towards other people’s feelings.

Stuck in an Insulin Vial

I didn’t know grief could look like this.
Not a funeral.
Not a goodbye.
But a diagnosis.

A little girl.
My little girl.
I never imagined her childhood would fit
inside a vial.
Clear glass, cold to the touch,
holding everything she needs
and everything she’s lost.

I hold it in my hand
this tiny bottle that decides
if she runs,
if she laughs,
if she wakes up tomorrow.
This glass vial that will follow her
for the rest of her life.

Diagnosis day split our lives in two:
the before, when she was free,
and the after, where freedom is measured
in half-units,
and innocence is punctured
by needles and alarms.

She is only a little girl,
yet already her skin tells a story
of what’s been taken.
Bruises and scars where play should be.
Tears where giggles used to spill.
The weight of forever
pressed into every drop I draw.

Grief comes in waves.
Not because she isn’t surviving—
she is. She is fierce,
resilient in ways she should never have to be, but will always need to be.
Because she is stuck.
We are stuck.
In this endless loop
of math and insulin,
fear and correction,
chasing a number that never stays.

And no matter how tightly I hold her,
how desperately I whisper,
“I wish I could trade places,”
the truth is unshakable:
I cannot pull her out of that vial.
I cannot break the glass.
I can only watch her grow inside it.
Shaping a childhood inside that glass
while every piece of my heart shatters.

Grief is not just one moment,
it is every moment after.
It is birthdays with carb counts,
sleepovers with syringes,
tiny fingers that should be finger painting,
not finger pricking.

I hate that her freedom is measured in units.
I hate that her joy has to be timed,
counted, calculated.
I hate that something simple like a bath with no robot pieces is something that rarely gets to happen, but something she always looks forward to.

And though I smile for her,
though I steady my hands
as I draw up her life,
inside I am breaking
for the freedom she’ll never taste,
for the innocence trapped
in that vial forever.

Your/your child’s Diaversary (date of diagnosis) can carry a lot. For some, it’s a day they’ll never forget. For others,...
08/29/2026

Your/your child’s Diaversary (date of diagnosis) can carry a lot.

For some, it’s a day they’ll never forget. For others, it’s complicated, blurry, or just another reminder that life changed.

Whether you honor it, dread it, ignore it, or celebrate how far you’ve come
 it matters.

So let’s talk about it. 💬

📅 When is your or your child’s diaversary?
💙 How do you feel about it?

Drop the date below and let’s remind each other that every year lived with T1D is worth recognizing

‌You cannot catch type 1 diabetes from someone who has it. I repeat, YOU CANNOT CATCH TYPE 1 DIABETES FROM SOMEONE WHO ...
08/28/2026

‌You cannot catch type 1 diabetes from someone who has it.

I repeat, YOU CANNOT CATCH TYPE 1 DIABETES FROM SOMEONE WHO HAS IT.

It is extremely heartbreaking to a child with T1D to be told “my parents don’t want me to play with you because they don’t want me to catch diabetes”, and it’s just as heartbreaking and frustrating as the parent to hear that.

This is why education and awareness on type 1 diabetes matters so much. The people outside of this life are so undereducated it can be harmful.

Please don’t say these things to t1d’s. This life can be hard enough.

Anyone else have issues with this lot of numbers? I checked it on the omnipod website for the ones that were recalled an...
08/27/2026

Anyone else have issues with this lot of numbers?

I checked it on the omnipod website for the ones that were recalled and it says not affected, but we’ve had 2 of these fail right after insertion.

There’s also another lot # that 2 of them failed upon inserting so just trying to see if we’re the only ones.

Update on the Magic Spoon Cereal : my little girl absolutely hated it đŸ«ŁShe wouldn’t eat what she was dosed for because s...
08/26/2026

Update on the Magic Spoon Cereal : my little girl absolutely hated it đŸ«Ł

She wouldn’t eat what she was dosed for because she couldn’t get passed the “weird taste” and asked for something else for lunch instead.

I ended up trying it as well since she wouldn’t eat it and it’s not super cheap.

It isn’t bad, but it does kind of taste like cardboard in my opinion.

However, my 1 year old liked it so he’ll get the rest of the box 😆

We went with the cocoa this time, but have heard other flavors are better. I only saw the cocoa and fruity as options when I found them, but will look for others.

If you do like this brand, which flavor is your favorite?

Today we are spotlighting Erica Smith and her son Avery. Here is what she said “Avery is 9 yrs old. He was diagnosed on ...
08/25/2026

Today we are spotlighting Erica Smith and her son Avery. Here is what she said

“Avery is 9 yrs old. He was diagnosed on January 27, 2026.

I’ve spent a couple years before diagnosis knowing something wasn’t quite right with him.

We went to doctors and were told he had Oppositional Defiance Disorder.
That didn’t sit right with me because he wasn’t violent. He didn’t go out his way to do the opposite of what was asked. He just mostly quit eating. Had a very restrictive diet. He was sleeping a lot and difficult to wake up.
We started noticing he needed more bathroom breaks on road trips like 30 mins after the last one.

Still we thought that was a coincidence because we didn’t know we should be looking at those things together rather than as separate issues.

On January 23, 2026 Avery got sick. He was throwing up and complaining of stomach pains. I gave him Tylenol for the stomach pain and he immediately puked. His oldest brother did the same thing years ago and had appendicitis.
So we went to the ER. They did some test and decided it was a stomach bug and he was sent home.

All weekend he was fine. Then Tuesday morning around 2 am he woke me up because he’d started puking again. I got everything cleaned up and sent him back to bed with some water. It was just a stomach bug after all.
I last saw my child looking normal at 7 am.
I left for work not knowing everything would change by the end of that day.
I got called during my afternoon shift saying he was refusing water because it tasted weird and he says it hurts to breathe. Ok monitor him and keep trying the water was the advice I gave my partner. He can be dramatic when he doesn’t feel good.

I got home around 6 pm. He looked like he’d lost 10lbs since I saw him that morning. His breathing was labored and he struggled to walk. Back to the ER.

His older brother carried him in. They took him to the back almost immediately and before the IV was in he’d lost consciousness.
They asked is he diabetic.
I said not that I’m aware of.
A finger prick returned a bg over 900. He is now.
He was transferred to Children’s PICU where he didn’t regain consciousness for 2 days.
He was in DKA and had literally lost 10lbs in a matter of hours. We didn’t know if he’d wake up.

This disease has taken so much away. It almost took Avery right before his 9th birthday.
Always push for answers. Look for signs even ones that you would think mean nothing.
This is Avery now. Thriving. Growing. Going to public school and living with a lifelong diagnosis of being T1D. “

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Effingham, IL
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