Hereditary Angioedema Association - HAEA

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Hereditary Angioedema Association - HAEA

The US HAEA is a non-profit advocacy and research organization serving people with HAE.

To lead a nationwide advocacy movement that focuses on increasing HAE awareness and education, empowering access to suitable treatment, and fostering ground-breaking research that includes searching for a cure.

06/05/2026

Did you miss the latest Podcast: Voices of the Next Generation? 🫶

➡️Watch the full episode here: https://open.spotify.com/episode/0GEx3Uyep46ik4bA4aChTB

In this episode, we met Ivy, Sadie, and Kayla, three new members of the HAEA Youth Leadership Council, as they share their personal journeys living with hereditary angioedema (HAE). They open up about their paths to diagnosis, how they manage their condition day to day, and the challenges they’ve faced along the way.

06/03/2026

Question of the Month: How Can You Prepare for Insurance Appeals?

Don’t navigate the process alone! Hear from Mandy Granat, HAEA Health Services Manager, who shares practical tips and guidance on how to prepare for an insurance appeal and access the support available to you.

For questions, or more information, please contact an HAE Health Advocate at [email protected].

06/01/2026

Still reminiscing about an incredible Youth Training in Washington, DC with our Youth Leadership Council members and Social Media Interns. 💜

From advocacy and storytelling to hands-on podcast and content creation training, this group brought so much creativity, passion, and leadership to every moment. 🎥🎙️✨

We’re so proud to help empower the next generation of HAE advocates!

05/30/2026

🎶🎳💜 What a wonderful day in Music City! Today, members of the HAEA community came together in Nashville, Tennessee, for a special Community Connections event filled with meaningful conversations, laughter, bowling, and new friendships.

Attendees enjoyed spending time with fellow community members and US HAEA staff members, Mandy, Adina, Sally, and Katie, sharing stories, building connections, and strengthening the bonds that make our community so special. Thank you to everyone who joined us and continues to make the HAEA community a place of support, understanding, and hope. Together, we are stronger, and together, we thrive.

➡️ Find upcoming HAEA events in your area: https://www.haea.org/page/events_home

05/28/2026

👀 In case you missed it…

On hae day :-) we launched our BRAND NEW educational video created especially for kids and teens in the hereditary angioedema (HAE) community!

💜 Watch now and visit our YouTube page!

05/27/2026

👀 In case you missed it…

On hae day :-) we launched our BRAND NEW educational video designed to make understanding hereditary angioedema (HAE) simple and easy to share for adults.

💜 Watch now and visit our YouTube page!

05/25/2026

Community Blog ✨

Jessica’s story brings the lived experience of Hereditary Angioedema (HAE) into focus, highlighting the realities patients face every day. Featured on The Balancing Act on Lifetime, the segment, hosted by Olga Villaverde and Montel Williams, centers on her personal journey, offering an honest look at the unpredictability of HAE and how it shapes daily life.

By sharing her perspective, Jessica helps raise awareness and gives a voice to others navigating this rare condition.

Read more about it here: https://www.haea.org/pages/bp/blog45_Takeda

05/22/2026

Did you miss the HAEA May Newsletter? 📬

➡️ Check it out here: https://www.haea.org/pages/p/newsletter_may_2026

Stories like these highlight the strength, resilience, and leadership of our community members. 💙

Catch up on other inspiring community stories, upcoming events, health resources, program highlights, and more in this month’s newsletter!

05/21/2026

💜 Living with Hereditary Angioedema (HAE) can feel overwhelming, but support starts with the right resources. HAEA Cares Kits are thoughtfully designed for children, teens, and young adults to help make the HAE journey a little easier.

Each free kit includes age-specific materials created to educate, support, and empower individuals living with HAE.

✨ Available for ages 2–12, 13–17, and 18–25.

Request your free kit HERE: https://www.haea.org/pages/p/HAEAcares_kits

05/20/2026

Today on International Clinical Trials Day, we recognize the vital role clinical research plays in advancing healthcare and improving lives around the world. 🔬🌍

Interested in learning more about the clinical trials process and how research impacts our communities? Join the HAEA Clinical Trials Academy course to gain valuable knowledge and explore opportunities in clinical research.

Together, we can help build greater awareness, participation, and representation in clinical trials. 💙

👉 Take the course here: https://academy.haea.org/courses/clinical-trials/

Address

10560 Main Street, Suite PS40
Fairfax, VA
22030

Telephone

+18667985598

Website

http://www.haea.org/

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