Hereditary Angioedema Association - HAEA

Hereditary Angioedema Association - HAEA The US HAEA is a non-profit advocacy and research organization serving people with HAE.

To lead a nationwide advocacy movement that focuses on increasing HAE awareness and education, empowering access to suitable treatment, and fostering ground-breaking research that includes searching for a cure.

Advocacy doesn’t take an August recess! 💪 HAEA advocates continue to make their voices heard and build meaningful connec...
08/28/2026

Advocacy doesn’t take an August recess! 💪

HAEA advocates continue to make their voices heard and build meaningful connections with legislators in their communities. This month, we are taking part in Rare Across America and helping ensure the HAEA community’s priorities remain part of the conversation.

Want to advocate? Write a letter to your representative today using the ready-to-use templates on our website. Make your voice heard today: haea.org/pages/p/voter_voice

Did a young advocate inspire you at this year’s Capitol Hill Day, or another HAEA event? 🏛️💙Now’s your chance to celebra...
08/27/2026

Did a young advocate inspire you at this year’s Capitol Hill Day, or another HAEA event? 🏛️💙

Now’s your chance to celebrate them! Nominate a youth advocate for their leadership and impact.

👉 Nominate here: https://www.haea.org/autoforms/f/477

Deadline: September 10

08/25/2026

🏛️ Following an inspiring 2026 HAEA Capitol Hill Day, we're reflecting on the impact of advocacy and the dedicated voices that are driving meaningful change for the HAEA community.

Every other year, members of the HAEA community come together in Washington, D.C., to meet with lawmakers, share their experiences with Hereditary Angioedema (HAE), and advocate for policies that improve the lives of people with HAE.

Take a look at what Capitol Hill Day is all about and the impact our community can make when we advocate together.

Pursuing your education while managing HAE can be challenging, but the HAEA is here to help! 🤝Learn more and apply:https...
08/24/2026

Pursuing your education while managing HAE can be challenging, but the HAEA is here to help! 🤝

Learn more and apply:
https://www.haea.org/pages/p/scholarships

US HAEA members with a confirmed HAE diagnosis can apply for:
-Pam King HAEA Scholarship
-HAEA Scholarship for Aspiring Healthcare Professionals

📅 Spring 2027 Applications close September 30, 2026

🐝 Have you heard the buzz?The ADVANCE HAE Scientific Registry has new forms designed to capture even more insights about...
08/22/2026

🐝 Have you heard the buzz?

The ADVANCE HAE Scientific Registry has new forms designed to capture even more insights about the HAE experience.

Whether you're joining for the first time or updating your information, every contribution helps researchers better understand HAE and support future discoveries.

Join the Hive. Advance HAE!

🔗Join or update your information here: https://www.haea.org/pages/p/scientific_registry_join

Did you miss the HAEA in Action August 2026 Newsletter? 📬Stay up to date with the latest from the HAEA, including commun...
08/21/2026

Did you miss the HAEA in Action August 2026 Newsletter? 📬

Stay up to date with the latest from the HAEA, including community news, advocacy updates, educational resources, inspiring stories, podcasts, webinars, youth programs, and more.

Check it out here: https://www.haea.org/pages/p/newsletter_aug_2026

08/20/2026

🎙️ We invite you to watch a special episode of the HAE Speaks Podcast! Roundtable with the CEO - Tony Has a Conversation with a CSL Executive Director.

In this new HAE Speaks Podcast series, Tony (HAEA CEO & Chairman of the Board) sits down with Tom Groeling, Executive Director of Specialty Franchise at CSL.

Together, they discuss CSL's long-standing commitment to the HAE community and the company's vision for advancing care. The conversation also explores CSL's HAE therapies, ANDEMBRY® and HAEGARDA®, and provides an overview of their intended use, key features, and available support programs.

08/19/2026

🎙️In this month's episode of the HAE Speaks Podcast, the Warner-Mukes family shares their journey of living with HAE together.

➡️Watch or listen now by clicking HERE: https://open.spotify.com/episode/5WCIA8yOCw5LA3CaIWYkHJ?si=uuKt8p1dSfS_EnCwruxTOQ

From navigating diagnosis and treatment to supporting one another through the challenges of daily life, they offer an honest conversation about what it means to face HAE as a family.

On National Nonprofit Day, we reflect on the HAEA's journey over the last 26 years!From a small group of advocates durin...
08/17/2026

On National Nonprofit Day, we reflect on the HAEA's journey over the last 26 years!

From a small group of advocates during one of our earliest Hill Days, to more than 250 passionate voices united in Washington this year, our mission has remained the same: to improve the lives of people living with Hereditary Angioedema (HAE).

These two photos are a reminder of what's possible when a community comes together with a shared purpose. Thank you to every advocate, volunteer, healthcare professional, and supporter who has played a role in our journey and continued to move our mission forward.

Address

10560 Main Street, Suite PS40
Fairfax, VA
22030

Telephone

+18667985598

Website

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