CT Endo Warriors

06/05/2026

06/03/2026

Little fires everywhere is a book, movie, right? It could be a story about living with chronic illness.. the legs are lighter but I’ve swapped out the neuropathy for a pi**ed off sciatic nerve.

06/01/2026

I actually think that almost all women have a story about being harmed or gaslit by a provider. I see the horror on support group pages. I have my own stories. Like being left for 6 hours on a toilet in a bathroom at 39 weeks pregnant.

05/30/2026

Why sitting can hurt with endometriosis? 🪑🩺

GENTLE REMINDER: I’m a husband learning alongside my wife, who lives with stage IV endo, adeno, and fibro. This is not medical advice but my own research and a wish to understand. THANK YOU! 💛

Sitting can hurt with endometriosis because chair pressure can press on inflamed tissue, tight pelvic floor muscles, irritated nerves, or adhesions that stop organs from moving freely. It may also happen when deep endo sits near the bowel, bladder, re**um, uterosacral ligaments, or pelvic nerves.

That burning, pulling, stabbing, or “I need to stand up now” pain is not you being dramatic; it can be your body protecting an area that already feels under attack. I hope you remember this: changing position, leaving early, or needing rest is not weakness, it is self-respect.

I am learning that sitting is not passive for the pelvis. Your weight goes through the sit bones, tailbone, pelvic floor, lower back, and deep nerves. If those areas are inflamed, scarred, tense, or sensitive, a normal chair can feel like punishment.

Deep endo can irritate the back of the pelvis, especially near the re**um, bowel, and uterosacral ligaments. That may explain pain that feels low, deep, heavy, or like re**al or tailbone pressure.

Pelvic floor muscles can tighten after years of pain. They may clamp down to protect you, but that guarding can create aching, burning, pain with sitting, pain after s*x, bladder urgency, constipation, or pain with bowel movements.

Nerves matter too. Pudendal nerve irritation can cause pain in the v***a, perineum, re**um, or sitting bones, often worse with sitting. Sciatic or sacral nerve irritation can send pain into the buttock, hip, leg, or lower back, especially around your period.

Adhesions can add a pulling feeling because organs that should slide may feel tethered. This is why “just sit down and rest” can be painful advice: sitting may worsen pressure, nerve pain, pelvic floor spasm, bowel pain, or bladder pain.

Some things worth discussing with a knowledgeable clinician are pelvic floor physical therapy, bowel and bladder symptoms, nerve-like pain, imaging for deep disease, and an endometriosis specialist review. Sitting pain alone does not prove one cause, but it deserves to be taken seriously.

If this helped you feel less alone, please grab my FREE 130+ pages eBook “You Did Nothing To Deserve This!” on endometriosis validation. Tap the link in my profile/bio, and if you prefer paperback, it is on Amazon by typing endometriosis validation in the Amazon search tab.

Lucjan 🎗

05/29/2026

I am passionate about helping others and injustice ignite something inside of me, and when things are spiraling and out of control, I turn to volunteering and lifting up others. I am very creative and love design, art, music, gardening and cats! I am more than my illness. I created this page to educate and help myself by finding medical providers, community, support. 💛

05/28/2026

Nerves affected by endometriosis and adenomyosis! 🧠⚡️🩺

GENTLE REMINDER: I’m a husband learning alongside my wife, who lives with stage IV endo, adeno, and fibro. This is not medical advice but my own research and a wish to understand. THANK YOU! 💛

If your pain travels, burns, shoots, pulls, aches, or feels like it has a mind of its own, you are not imagining it.

You may have been told endometriosis is “just painful periods” or adenomyosis is “just a heavy uterus,” but your body might be trying to tell you something much more complex is happening.

Nerves are the body’s message system. They carry pain, pressure, bladder signals, bowel signals, s*xual sensation, muscle control, and warning messages from deep inside the pelvis to the spine and brain.

Endometriosis can directly invade, compress, inflame, scar around, or sensitize nerves, while adenomyosis usually affects uterine nerve pathways more indirectly through an enlarged, inflamed, cramping uterus and altered uterine innervation, rather than growing onto distant nerves like sciatic endometriosis can.

Deep endometriosis has documented involvement of the inferior hypogastric plexus, lumbosacral plexus, sciatic, pudendal, obturator, and femoral nerves, while uterine pain pathways involve hypogastric, pelvic splanchnic, and uterine plexus branches.

Nerves endometriosis can affect:

1. Inferior Hypogastric Plexus
2. Superior Hypogastric Plexus
3. Hypogastric Nerves
4. Pelvic Splanchnic Nerves, S2–S4
5. Sacral Splanchnic Nerves
6. Uterovaginal Plexus
7. Paracervical Plexus / Frankenhäuser Plexus
8. Uterine Nerve Branches
9. Vaginal Nerve Branches
10. Bladder / Vesical Nerve Branches
11. Re**al Nerve Branches
12. Ovarian Plexus
13. Ureteric Nerve Plexus
14. Lumbosacral Plexus
15. Lumbosacral Trunk, L4–L5
16. Sacral Plexus
17. Sacral Nerve Roots, S1–S4
18. Lumbar Nerve Roots, especially L4–L5
19. Sciatic Nerve
20. Pudendal Nerve
21. Obturator Nerve
22. Femoral Nerve
23. Genitofemoral Nerve
24. Ilioinguinal Nerve
25. Iliohypogastric Nerve
26. Posterior Femoral Cutaneous Nerve
27. Lateral Femoral Cutaneous Nerve
28. Nerve To Levator Ani / Pelvic Floor Nerve Branches
29. Perineal Nerve Branches
30. Dorsal Nerve Of The Cl****is
31. Phrenic Nerve
32. Intercostal Nerves
33. Sympathetic Chain Pathways
34. Dorsal Root Ganglia / Spinal Pain Pathways

Adenomyosis research is less about named peripheral nerve invasion and more about uterine nerve fiber density, inflammation, prostaglandins, oxytocin-driven uterine contractions, and pain signals travelling through sympathetic T10–L1 and parasympathetic S2–S4 pathways.

Some reviews also describe adenomyosis as having altered or even reduced nerve fibers in certain uterine layers, so the biology is not as straightforward as “more nerves equals more pain.”

Nerves adenomyosis Clcan affect:

1. Uterine Nerve Fibers
2. Junctional Zone Nerve Fibers
3. Myometrial Nerve Fibers
4. Endometrial Nerve Fibers
5. Inferior Hypogastric Plexus
6. Superior Hypogastric Plexus
7. Hypogastric Nerves
8. Pelvic Splanchnic Nerves, S2–S4
9. Sacral Splanchnic Nerves
10. Uterovaginal Plexus
11. Paracervical Plexus / Frankenhäuser Plexus
12. Cervical Nerve Branches
13. Vaginal Nerve Branches
14. Ovarian Plexus
15. Sympathetic Pain Pathways, roughly T10–L1
16. Parasympathetic Pain Pathways, roughly S2–S4
17. Pelvic Floor Nerve Branches
18. Pudendal Nerve, usually indirectly
19. Dorsal Root Ganglia / Spinal Pain Pathways
20. Central Pain Pathways

Save this for the next time someone makes your pain sound simple. Share it with a woman who needs to understand why her symptoms may feel so connected.

If this post made you feel less alone, I also created my FREE 130+ pages eBook “You Did Nothing To Deserve This!” for endometriosis validation. You can grab it by tapping the link in my profile/bio, and if you prefer holding a physical copy, the paperback is available on Amazon if you type “endometriosis validation” into Amazon’s search tab.

Lucjan 🎗

05/27/2026

I’m okay with talking about the uncomfortable, clearly! With every surgery and procedure comes risk. The more you have the more of a risk you take. I have a lot of fibrosis which complicates things and the iliac vein was taken down by it. The risk was high for a clot.

05/27/2026

One week since I had a stent placed in my for and . It can take quite a while for things to adjust and function differently than they have been for who knows how long! Big bruise where they entered through the groin and it’s sore but I am feeling this will eventually give me more relief. 💛

05/26/2026

Since this was round two of this procedure I went into it a little more prepared and asked for a sedative drug so I would not be freaking out mentally and physically upon arrival for the procedure. Make sure you advocate for yourself, don’t additionally suffer mentally and physically! So I was in a little more zombie like because again, I had done part of this procedure before and as much as I wanted it over I was scared. The anesthesia nurse was different. The first round I made it clear I wanted to be out and not feel anything! It’s a mild sedation so again, I advocated and explained that I had PTSD. I read up a lot on the procedure and outcomes. I read on Reddit that others had woken up! But this time, I didn’t speak up.

05/24/2026

Trauma patients need more meds! When the pain starts to dissipate and your brain starts to process what you have been through you become emotional. It is part of the process and those who have experienced lots of trauma feel an overwhelming amount of grief. This procedure was much more intense than anticipated and the level of pain caused my entire body to go back to a response that it’s too familiar with. So at this point even a simple or basic appointment can set someone with PTSD off.