06/13/2026
So I am so excited we findly have a holiday just foe me my boys and all the other family's friends that have cls coffin lowry syndrome hoilday to show support it in calendar now like autsim we all four of us have cls and this is very rare and not much is known about this my oldest died i 2019 at 20 . Show your support to us all and share it all over show your lovehttps://www.facebook.com/share/p/18RkXQPvcW/