Cora's Grand Adventure

09/10/2026

We did it🥹 One year home and a lifetime to go.

Cora is a babbling, army-crawling, sitting, (almost) standing, and oral feeding queen. She’s off the vent a few hours a day, loving her speaking valve, and one wean away from being off of her longest term med, cortef.

Oh… and we have had not a single unplanned hospital visit, admission, ER appearance, etc. she’s so dang strong!

07/27/2026

This big girl is coming to visit NCH tomorrow! We’ll be bringing our donations from Cora’s birthday NICU drive, and we’ll have lunch for C4A staff too! We’re thinking Chipotle or Chik-Fil-A?

06/29/2026

Cora is TWO😭 How!?

Her birthday party could not have gone better (except for me forgetting the forks for the cake… oops!), and she’s growing leaps and bounds!

She is regularly sitting herself up, getting into quadruped, crawling backwards, babbling, and exploring her world more every day!

Her PIP will officially be in the TEENS this week, which means we’re going to start sprinting! We did a few small sprints last week, just a minute a day, but this week we’re able to increase as tolerated.

We will be making our big NICU donation later in July, and we hope to see many of you when we’re there!

05/10/2026

I wish I could send this to some of our NICU nurses🫶🏼 Thank you for helping me learn how to be Cora’s mom.

05/04/2026

After several weeks of no appointments, we're heading back to Columbus! We had a little break from appointments for a while, but we have several in May.

Coming up this Wednesday, we'll be heading to Pulmonology to see Dr. Giunta to talk about cpap and sprinting! Can you believe Cora's on a PIP of 26 now?! I remember when she was in the 50's and struggling. We're so grateful to be out of that season, but equally grateful for all the things it taught us.

We're also meeting with Dr. Ali in Endocrinology this month to begin Cora's FINAL enteral med wean - Cortef! We should get a (bittersweet) discharge from Dr. Mifflin in Complex Care later in May, and we will be back at the Feeding Clinic with Dr. Braswell to talk about oral feeding progress. Spoiler alert... Cora's LOVING her purees and just needs to work on swallowing a bit more consistently!

Thank you for all of the love and support. We miss our friends at NCH and we hope to get to see you sometime this month when we visit!

04/24/2026

I’m so encouraged by how Cora’s Clothing & Toy drive is starting out! I can’t wait to see how much more we can raise and donate to C4A🫶🏼

04/21/2026

Girlie updates!

We finally got our tomato chair! She is sitting independently and just needs a little help to get into the right position.

Feeding therapies are going well. We were approved to advance to more tastes, without her feeding/speech therapist present!

Camp Cora is coming up in June! If you’d like details on celebrating her birthday with us, send me a message and I’ll get you the info💛

02/19/2026

02/18/2026

Girlfriend has a DLB + ABR on Friday! We’re hoping to finally be cleared by audiology😅 (she had rhino for her last AVR, so there was fluid in her outer ear), and hoping for no change on her bronchoscope and laryngoscopy. We hope to wean her PIP again next week, as we get closer and closer to sprinting someday!

Bryce and I will be around the hospital during her scope Friday so we will call up to C4A if any friends want to say hello while we anxiously wait for Cora to get done💛

02/16/2026

We hope everyone had a nice Valentine's weekend! I almost didn't post this because I look ridiculous but I couldn't gate keep how freaking cute her laugh is! It's one of the first times we could really hear it well.