Vivian’s Journey to a New Kidney: Rare but Strong

Vivian’s Journey to a New Kidney: Rare but Strong Supporting Vivian, a 16yr old preparing for a kidney transplant living with two ultra-rare diagnosis.

Friends & Family!!! 💙🤍I need some advice from my friends and especially those of you in education or who have also taugh...
09/05/2026

Friends & Family!!! 💙🤍

I need some advice from my friends and especially those of you in education or who have also taught Vivian and know what kind of student she is.

Because of her health and some circumstances I’d rather keep private, I’m considering temporarily homeschooling Vivian until she receives her kidney transplant, recovers and can safely return to school.

I’m looking for something flexible that will allow her to continue working toward graduation at her own pace without having to worry about a homebound schedule or having a tutor every day. With appointments, treatments and days when she simply doesn’t feel well, we need something that can work around her health.
If you know of a good homeschool or accredited online program, have experience with one, or know a tutor who could help her as needed, please send me your recommendations!

I’ll take all the advice, opinions and suggestions I can get. Thank you! 🙏🏻

I have to brag… despite everything she’s dealt with since 8th grade, she is currently #93 out of 902 students ….TOP 10% of her class!

Once an All Star, Always an All Star! ⭐️💙🤍

Update on Vivian & Levi ❤️🙏🏼Vivian’s infusion went a little smoother this time, no nausea or vomiting! Hopefully her bod...
09/03/2026

Update on Vivian & Levi ❤️🙏🏼

Vivian’s infusion went a little smoother this time, no nausea or vomiting! Hopefully her body is getting used to it. Except, her blood pressure was very high, so she needed medication through her IV and the doctor decided to change two of her blood pressure medications. After getting home, we got a call about her labs. One level was abnormally high, so she has started medication for gout, which explains the additional fatigue, aches and pains she’s been having. Levi is now scheduled for an MRI tomorrow afternoon because of his continued headaches and migraines and was prescribed medication to help when over-the-counter medicine isn’t enough.
So, back to Fort Worth tomorrow morning for Levi’s appointment, to pick up some of Vivian’s medications we can’t get here, and hopefully get Vivian squeezed in with ENT for some ongoing issues.

Please continue to keep them in your prayers. One day and one appointment at a time.
Thank you ❤️🙏🏻

Trip #23 Headed to Fort Worth for Vivian’s monthly iron infusion, routine transplant labs, and an appointment with h...
08/27/2026

Trip #23

Headed to Fort Worth for Vivian’s monthly iron infusion, routine transplant labs, and an appointment with her nephrologist.
We’re also seeing a new neurologist for Levi since his other doctor moved to Florida. He continues to get headaches and sometimes they turn into migraines that can make him sick.
Thankful we’re able to get appointments and testing done in the same trip. Praying everything goes well and, God willing, we’ll be headed back home tomorrow afternoon.

Please keep Vivian & Levi in your prayers!🙏🏻
Thank you all for your continued support!❤️

My heart is so full. Thank you to everyone who has called, texted, stopped by to visit & to pray over us and brought us...
08/24/2026

My heart is so full. Thank you to everyone who has called, texted, stopped by to visit & to pray over us and brought us thoughtful gifts to prepare for the long days ahead at the hospital.

A special thank you to those who joined us for breakfast., lunch or dinner these past few days just to be with us and support us. By Vivian’s request, we even ate at one of her favorite places before we thought was her surgery Casa Ortiz - Gracie Ortiz Passing the time together, laughing and smiling, truly changed the mood and gave us a much-needed break from everything weighing on our hearts. ❤️

This journey hasn’t been easy, but your love and support remind Vivian and me that we are not walking it alone.

And most importantly—prayers, prayers, prayers. 🙏 Please keep them coming. We continue to trust God’s timing and pray that Vivian’s call is coming soon.

Thank you, everyone. Mary Nell Robles Paul Robles Pam AndAlfred Alvarado Kristen Alvarado Alyssa Flores Maribel Aranda
Berta M. Saldibar Noemi Valdez Valadez Kamila Muela.
Each and every one of you, it means more to us than you know. You know who you are at how thankful I am for you. Many blessings to each of you always. Thank you ❤️

08/22/2026

It must be okay. ❤️🥺
It wasn’t Vivian’s kidney this time.

I know that doesn’t make the disappointment hurt any less, especially after getting the call, waiting all those hours, praying, hoping, and preparing yourselves for everything to change. To come that close and then hear “not this time” is heartbreaking.

But maybe tonight the prayer simply has to be: “Lord, I don’t understand, but I trust You.”

“Be still, and know that I am God.”
— Psalm 46:10

Our Prayer TonightOh dear Lord, please hear our prayers. We are getting so close, and the phone call we have prayed and ...
08/22/2026

Our Prayer Tonight

Oh dear Lord, please hear our prayers. We are getting so close, and the phone call we have prayed and waited for could come at any moment. If it be Your will, Lord, please let this be our time. Give us strength for what lies ahead and peace as we wait. Quiet our hearts and minds so that we may rest tonight, trusting that You are with us through every moment. We place our fears, our exhaustion, our hope, and everything we cannot control into Your hands. Your will, Your timing, Lord. We trust in You. Amen. 🙏❤️

UPDATE: The donors surgery was canceled tonight, so they will call us tomorrow morning with another update. We will co...
08/20/2026

UPDATE: The donors surgery was canceled tonight, so they will call us tomorrow morning with another update. We will continue to be on standby for now.

Family & friends, please keep us—and especially the donor’s family—in your prayers. 🙏🏼

We received “THE CALL” this afternoon. While our hearts are filled with hope, we know another family is hurting and facing an unimaginable loss. Please pray for them especially.

We’re expecting an update around 6 PM and then the final call around midnight telling us whether it’s time to go.

Vivian is tired. I’m tired. Physically, emotionally, mentally… we are exhausted. But tonight, we are holding onto faith and praying with everything we have that this is THE call—and that midnight brings the words we’ve been waiting for. 🙏🏼❤️❤️❤️

🚨👕Support Vivian’s Journey to a New 👕🚨Kidney by purchasing a Rare but Strong T-shirt. Following Vivian’s kidney tra...
08/15/2026

🚨👕Support Vivian’s Journey to a New 👕🚨Kidney by purchasing a Rare but Strong
T-shirt.
Following Vivian’s kidney transplant, we will need to temporarily relocate to Fort Worth for approximately three months so she can remain close to her transplant team during recovery. Proceeds from this fundraiser will help our family with the additional expenses of temporarily living away from home during this important time.
Every shirt purchased not only helps ease some of the financial burden of Vivian’s journey, but also helps us spread awareness and reminds her that she has an entire community standing behind her.
✨ Choose from 7 T-shirt colors!
📦 Direct delivery available, or shipping for an additional cost.

Place your order at the link below:
https://gogandy.com/vivians-journey-store

Thank you for every purchase, prayer, share, and act of support. It truly means more than we can say!! PLEASE SHARE!!
’s Journey to a New Kidney:
Rare but Strong💙🦋

08/10/2026

Lord, I hate waking up feeling down when I know I should feel excited and happy, but instead I wake with this deep hole in my stomach and the weight of not knowing what today may bring. I’m also on edge, knowing I could get the call at any moment, and I’m asking You for courage, strength, peace, and comfort as I wait. Help me not to let fear consume the moments I have today. Remind me to count my blessings, to be grateful for what I do have, and to trust You with what I cannot control. I place my worries, my fears, my sadness, and this uncertainty at Your feet, Lord. Carry what I cannot, calm my heart, and give me the strength to face whatever comes, knowing that You are with me through it all. Amen.🙏🏻
’s Journey to a New Kidney❤️

“Cast all your anxiety on him because he cares for you.” — 1 Peter 5:7

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Fort Worth, TX
76104

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