Briggs & Brody’s battle with Batten Disease CLN2

06/18/2026

Every. Single. Day.

Being a mom was/is everything I ever wanted. To have no control going from 4 children to 2…..because of money. Science. Science requires money to save children. To cure them.

I truly can’t explain this heartbreak.

06/18/2026

More treats for Saturday!!!!

SEE YOU THERE!!!!! ‼️‼️2 DAYS‼️‼️

06/17/2026

I’m just giving it my best shot 😅🫶🏽😭🙏🏼

06/17/2026

Goooood morning to all of our beautiful people.

‼️‼️‼️SATURDAY. JUNE 20th. 3 DAYS‼️‼️‼️

See you there!!!! 🥊❤️‍🩹

06/16/2026

06/15/2026

Really trying my artistic abilities for Saturday 😜🫶🏽🥵😎

06/14/2026

‼️‼️‼️‼️ 6 DAYS AWAY ‼️‼️‼️‼️

These boys & all the other children fighting deserve it. 😭 please help be a voice with us. Make it loud. Make it big. Come help us make a difference!!! 😭🤧🥹🫶🏽❤️‍🩹💔❤️‍🩹

Briggs and Brody’s Battle Ride

06/14/2026

Crying. Actually.

It’s these random moments where I am just so MAD. I’m so mad that I don’t get to rub his hair while he sleeps forever. I’m so mad I don’t get to see him grow up. Grow older.

I’m so mad he fell asleep in this beautifully donated tomato chair because he can no longer enjoy the things he used to. He can no longer “boy” like his brothers at all times.

&& in one tiny spec, I’m grateful in this moment. Grateful we had another Batten family donate this to Brody, even if it’s purple. We don’t care. 🤧😩 today was the first day he took serious interest in it, and he was clearly comfortable. Grateful he is so soundly asleep. He got his ‘PAD’ after dinner, and fell asleep. On his own. 😭🤧🥹😩

I love him so much. 😭❤️‍🩹💔🤧😩