Briggs & Brody’s battle with Batten Disease CLN2

10/18/2026

🧇 🧇 🧇 // fundraise

A brumate, story shield headphones AND multiple stories, 2 dumplings, a butter squishy, fuzzy socks, straw toppers, 3D printed animals, and an ice cream giftcard.

For Batten disease research (our fam funds with the BDSRA) & the boys cash “Ohio-travel” binder.

5 dollars per spot.

50 spots.

Over $250 value.

10/17/2026

He ate by mouth on the way home, and now, WE’RE HOME!!!!! 🙌🏽🎉🥹😫❤️‍🩹

10/17/2026

Brody is tolerating all his feeds & actually hasn’t even wanted to take water by mouth 😫

I know it’s temporary, but these are all the scary parts of all the “new” when it comes to Batten Disease….all the things that never should’ve been…

But we’re here, and we’re learning as the days and time goes.

The best news is….WE SHOULD GET TO GO HOME TODAY!!!!!! PRAISE!!!! 🙌🏽

10/16/2026

HE’S OUT. Need some oxygen help.

Lots of pain, but hoping it’s short for him. 🙏🏼😫❤️‍🩹😭

10/16/2026

He’s off!!! 🙏🏼❤️‍🩹😫😭

10/16/2026

He’s ready!!!! Surgery is set for 9:30AM.

Keep praying, thinking of him/us, and send all your good juju 🙏🏼😭😫

AND just to add to our plate, plz pray for Briggs and that it’s NOT meningitis or anything serious. 😫

I woke up to Briggs throwing up at 4AM, and wouldn’t you know it, with a fever. 😫😭🙏🏼

UGH. PLEASE. LORD. HEAR US. 🙏🏼😭❤️‍🩹🫶🏽

10/16/2026

10/16/2026

Got his wheel back on ✔️

& he is chowing down on some chicken & fries!!!!

Pre-surgery bath next, and he’ll be in jamms for the night! Maybe we’ll give him a snack after if he wants! 😉🥰🫶🏽

If anyone wants to join, we will be live here around 10pm to pray over Brody and his surgery in the morning. 🙏🏼❤️‍🩹🥹

10/15/2026

This is another reason we need Medicaid!!!!

Thankfully, we got this chair used, but we haven’t even got Brody out of the car yet because my dad arrived and once we opened it, the wheel pops off. 😫😫

Why am I fighting so hard for my child to get a highchair, that just so happens to double as a wheelchair & activity chair……?

But a baby doesn’t. Bc that’s “normal”.

I hate it here.