Cayden's Adventure

Cayden's Adventure Cayden is a loveable little boy who was diagnosed with neuroblastoma stage 4 high risk cancer when h

We made it home! All of us are extremely tired and will be spending the day relaxing. I spoke with the doctor regarding ...
05/21/2026

We made it home! All of us are extremely tired and will be spending the day relaxing.
I spoke with the doctor regarding his xray. He does have scoliosis but they want to wait a year and check it again.
I went ahead and scheduled an appointment for him with his pediatrician to see about going ahead and getting an orthopedic here at home.
They also saw on his xray an area of concern on the left shoulder near his collarbone that they believe is just low density due to treatments. Said they’d check again next year with another scan.
Once again, to make me feel better, I’d rather go ahead and get him an orthopedic here at home to keep an eye on everything.
Thank you for all of the prayers! 💕

Today didn’t have many appointments but it’s definitely been a long day. The results of his xray came back but sadly nob...
05/19/2026

Today didn’t have many appointments but it’s definitely been a long day.
The results of his xray came back but sadly nobody has looked over them yet. The doctor who ordered it, isn’t his main doctor and she already left and isn’t supposed to be back for a month. They said they will definitely have someone on his team of doctors look at it and get back to me.
I’ve seen the results but I cannot fully speak on it due to the fact I’m not the best with medical terms.
I promise I will post when I hear back from someone who can explain it to me.
Other than that, we are officially done with all appointments unless they add to it. If not, we will be heading back home tomorrow! Thank you for all of the prayers 💕

Yesterday was a very rough and long day so I’m sorry for not updating sooner. The kids are having a blast running around...
05/19/2026

Yesterday was a very rough and long day so I’m sorry for not updating sooner. The kids are having a blast running around and seeing everything.
Cayden’s appointments have went well! Blood work is amazing, his vitamin D is low so we will start him on some daily vitamins to help him. Also after speaking with his doctor about his back pain and leg pains, we discussed the possibility of scoliosis. It’s been brought up before, but most of his doctors assumed growing pains, especially considering he’s grown 3 inches this year. But the doctor looked at his back and noticed and agreed his spine does look a bit curved.
Since Cayden did have radiation, he’s at risk for scoliosis so this morning we are having an xray done to see. They said depending on how deep the curve is, depends if we will just keep an eye on it or if he will get sent to a specialist for it.
He also saw the dentist yesterday about the missing adult teeth and they said the same thing as the dentist back at home. We will do our best to keep these teeth as long as possible until he is older and then will start with the process of getting dentures.
We also have just a few appointments today after that, not much so we was going to take the kids to play and see some stuff as well.
Thank you for all the prayers!

Breakfast and then starting the day! We’ve already done blood work, next will be an xray, then two meetings with his cl...
05/18/2026

Breakfast and then starting the day! We’ve already done blood work, next will be an xray, then two meetings with his clinic, and then one with the dentist to discuss the missing adult teeth. Wish him luck! 💕

First breakfast, then on the road to St Jude! Please say a prayer for safe travels and amazing results!💕
05/17/2026

First breakfast, then on the road to St Jude! Please say a prayer for safe travels and amazing results!💕

We will be heading out Sunday morning for his check up at St Jude. Please keep us in your prayers for safe travels! I wi...
05/14/2026

We will be heading out Sunday morning for his check up at St Jude. Please keep us in your prayers for safe travels! I will be posting more to update everyone as the time goes on. 💕

We will be leaving next month on the 17th for his st Jude appointments. Hopefully nothing stops us this time and everyth...
04/21/2026

We will be leaving next month on the 17th for his st Jude appointments. Hopefully nothing stops us this time and everything goes smoothly as well as great results! 💕

Happy Easter! 🐣🐰
04/05/2026

Happy Easter! 🐣🐰

Cayden was supposed to have his st Jude trips at the beginning of February but those snow storms made it impossible. The...
03/10/2026

Cayden was supposed to have his st Jude trips at the beginning of February but those snow storms made it impossible. They have just informed us the new appointments won’t be until May now.
He’s pretty upset about it cause he was looking forward to it but I explained now when we go, there won’t be any cold weather so we can do so much more and even plan a trip to the zoo if he wanted.
He’s also been going to speech and occupational once a week now and is doing an amazing job. His speech has improved so much even though he has a speech sound disorder.
He’s also back to occupational to help with his sensory processing disorder and ADD. We can all tell a huge improvement!

He also asked if I’d show everyone the ship he built in Minecraft. He found the front half of a ship floating in the sky and fixed it up and built the base as well. It’s crazy what these kids can do in this game💕

It’s official, we are heading out in about 3 weeks for our yearly check up with st Jude!I also just got off the phone wi...
01/12/2026

It’s official, we are heading out in about 3 weeks for our yearly check up with st Jude!

I also just got off the phone with them, they scheduled a dentist appointment to be added to his schedule. They don’t like the images his doctors office took so they are going to take a more detailed image of his teeth while we are there so we can see how many adult teeth he is missing much better. Then we will go from there to figure out what will be best for him.

So far, he only has 2 days of appointments scheduled but as usual, appointments get added while we are there.

We will be heading out on February 1st so keep an eye out.

It’s a weird feeling tho. Through his life as a st Jude patient, I was always told it gets easier. I never believed them. He was so little, he never understood. But he knew the moment bags were packed, the directions we took in the car, he knew. Instant meltdown. But now, he gets excited and looks forward to his visits. He’s wishing the trip would come sooner and is so excited to stay in the new hotel St Jude built, excited to see what new play areas they’ve added, and to see all of his old friends and favorite nurses.

About 7 years of this, it’s his normal. And I wish it didn’t have to be. But I’m thankful he’s found the good in all of it. I think we can all learn something from the things all of these kids have to go through. There’s always good to look forward to💕

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Gate City, VA
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