Growing Through Fanconi: Case & Nova

Growing Through Fanconi: Case & Nova This page is for us to keep everyone updated and allow you to follow along with us during this time!

05/30/2026

Prayers for our boy today has been the hardest since surgery. He’s miserable and swollen. I’ve already called and got some advice from his doctor, so we are currently working on those💙💙

05/28/2026

Little update: Case is sleeping a lot, he went to Cincinnati today with Nova for her appointment and has basically slept the whole ride. The ENT called and said pathology found nothing to worry about. There’s not any precancerous cells or anything🙌🏼🙌🏼

Nova: went to dermatology today and gets to stop her shots for psoriasis. We are going to see if it comes back or not. If it comes back she will have to start them again so fingers crossed it doesn’t come back!

All good news today, couldn’t be more happy💙💙

And we are out!
05/27/2026

And we are out!

05/27/2026

Case has been up since around 2:30 ish this morning. He’s doing good just sore throat. If his o2 dropped anytime last night it jumped right back up. Waiting for doctors to make their rounds and let us out of here💙💙

So far we are staying in the low 90s, he scared me for a minute because he was gargling in his sleep. Then woke up sayin...
05/27/2026

So far we are staying in the low 90s, he scared me for a minute because he was gargling in his sleep. Then woke up saying he couldn’t breathe. As long as we stay in the 90s we will be fine. His nurse is watching his monitor closely and we are trying to rest💙💙

05/26/2026

We are out of surgery and in his room. Main things we are watching for is any bleeding and his oxygen when he sleeps. We had to move him around some in the recovery room because his oxygen was dropping while he slept 🤞🏼🤞🏼 we don’t go on oxygen tonight. All in all everything went good!

Now we wait💙💙
05/26/2026

Now we wait💙💙

We are here waiting to go back! Will update once he’s out of recovery and we are in our room💙💙
05/26/2026

We are here waiting to go back! Will update once he’s out of recovery and we are in our room💙💙

05/25/2026

Case’s update- now for the 4th time we are heading up to Cincinnati tomorrow for Case’s T &A surgery. We should be good to go this time. He’s not sick or coughing. We are scheduled to be there by 11:30 our time and surgery at 1:00. We will be there overnight for observation given Case’s history. Super nervous as always he’s been through so many procedures but he’s always pulled through. Prayers everything goes well and recovery is as smooth as possible💙💙

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