Congenital Hyperinsulinism International

Congenital Hyperinsulinism International CHI is dedicated to improving the lives of people living with Congenital Hyperinsulinism.
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CHI supports the greater congenital hyperinsulinism (HI) community by providing educational and support activities (such as conferences and forums), and representing our community’s interests. CHI is guided in its activities by an outstanding scientific advisory group which includes the leading HI clinicians and researchers.

We hope you had a great first day of kindergarten, Connor! 💙 Enjoy the school year! 🏫 | Hyperinsulinism | Congen...
09/05/2026

We hope you had a great first day of kindergarten, Connor! 💙 Enjoy the school year! 🏫


| Hyperinsulinism | Congenital | HI | Hypoglycemia | Rare Disease

Happy birthday to Felecia! 🥳 Felecia has HI, is an HI mom, and is an incredible advocate! 💙 We hope you have a terrific ...
09/04/2026

Happy birthday to Felecia! 🥳 Felecia has HI, is an HI mom, and is an incredible advocate! 💙 We hope you have a terrific day! 🎈


| Hyperinsulinism | Congenital | HI | Hypoglycemia | Rare Disease

💙 Did you know that September is NICU Awareness Month? At CHI, we are deeply grateful to NICU staff worldwide for the in...
09/03/2026

💙 Did you know that September is NICU Awareness Month? At CHI, we are deeply grateful to NICU staff worldwide for the incredible service they provide to newborn infants and parents.

💙 Help us raise awareness of hyperinsulinism and neonatal hypoglycemia – post a NICU photo and share your experiences using the hashtag !


| Hyperinsulinism | Congenital | HI | Hypoglycemia | Rare Disease

Happy first day of 5th grade to Josiah David! ✏️ CHI wishes you a terrific start to the school year! 💙⁠Do you have a bac...
09/02/2026

Happy first day of 5th grade to Josiah David! ✏️ CHI wishes you a terrific start to the school year! 💙

⁠Do you have a back-to-school photo you would like to share with us for this school year? DM us on social media or email [email protected]⁠


| Hyperinsulinism | Congenital | HI | Hypoglycemia | Rare Disease

Who has a birthday 🥳 in September? CHI wants to give all our September babies a birthday shout-out! 🎈🎉 Send your birthda...
09/01/2026

Who has a birthday 🥳 in September? CHI wants to give all our September babies a birthday shout-out! 🎈🎉 Send your birthdate, photo, and a short message to [email protected] or DM us!⁠ ⁠🎂⁠
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| Hyperinsulinism | Congenital | HI | Hypoglycemia | Rare Disease

Throwback to our back-to-school series last year! We wished Nora and other HI kiddos a very happy first day of school 🏫 ...
08/31/2026

Throwback to our back-to-school series last year! We wished Nora and other HI kiddos a very happy first day of school 🏫 🖍️⁠
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Do you have a back-to-school photo you would like to share with us for this school year? DM us on social media or email [email protected]⁠
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Do continuous glucose monitors (CGMs) impact hyperinsulinism (HI) care? ✅ Among participants currently using a CGM: 🔹 82...
08/30/2026

Do continuous glucose monitors (CGMs) impact hyperinsulinism (HI) care?

✅ Among participants currently using a CGM:
🔹 82% reported that CGM data led to adjustments in their treatment plan (e.g., medication dose/timing, prescribed feeding schedule) and/or daily routine (e.g., snack before activity, avoiding certain activities).

✅ Hypoglycemia prevention actions:
🔹 84% take at least one preventive action every day (e.g. eating food and/or taking medication to prevent a low)
🔹 40% report an average of four or more preventive actions daily

These findings show how CGMs can play a key role in managing HI and preventing dangerous lows.

These insights and more are featured in our 2025 HI Global Registry Annual Report, available at https://congenitalhi.org/higr-annual-reports-and-publications/

What is HIGR? It’s the only patient-powered hyperinsulinism (HI) registry, and your input drives critical research.

Not registered yet? It’s not too late to share your experiences and feel the power of your data! Learn more at higlobalregistry.org at the link in our bio and sign up today.


| Hyperinsulinism | Congenital | HI | Hypoglycemia | Rare Disease

“It was so easy to connect, and I'm excited to know that my son's Dexcom data will help make the case for getting all HI...
08/29/2026

“It was so easy to connect, and I'm excited to know that my son's Dexcom data will help make the case for getting all HI kids access to a CGM.

Having a Dexcom has made his blood sugar management so much easier for us, and I know his data will demonstrate how our kids are unique and need this technology.” ⁠
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Sharing your glucose values helps HI researchers understand the unique glucose patterns in people with HI. ⁠
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Visit higlobalregistry.org to log in and start sharing your glucometer and/or continuous glucose monitor (CGM) values. ⁠
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Reminder: Your data is always de-identified in all reporting and research. ⁠
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Not registered yet? It’s not too late to contribute your experiences to HI research! Learn more at higlobalregistry.org and sign up today. ⁠
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| Hyperinsulinism | Congenital | HI | Hypoglycemia | Rare Disease

08/28/2026

Every hour matters when severe hypoglycemia goes undetected.

In Turn Hours Into a Lifetime, CHI and the creative team at Wolfstreet share the real-life experiences of three families affected by hyperinsulinism from around the world. Their stories demonstrate why early diagnosis, access to treatment, and greater awareness are critical for protecting lives and preventing avoidable brain injury.

We are proud to share this film and thankful to the LightCure Grant and the European Union for supporting this work.

🎥 Watch the documentary on this post or at our YouTube page: https://youtu.be/CCiqYVP6PWc?si=7ywBRQg9Rhz6OK7N


| Hyperinsulinism | Congenital | HI | Hypoglycemia | Rare Disease

08/28/2026

Next week, Congenital Hyperinsulinism International will welcome families, clinicians, researchers, advocates, and partners from around the world to Marseille, France for a three-day Congenital Hyperinsulinism Family Conference.

Rezolute is honored to support and attend this important event, which provides a meaningful opportunity to make connections, learn about the latest in hyperinsulinism care, and show support for an incredible community.

Learn more: https://bit.ly/3SvUfyu

Address

Glen Ridge, NJ
07028

Opening Hours

Monday 8am - 6pm
Tuesday 8am - 6pm
Wednesday 8am - 6pm
Thursday 8am - 6pm
Friday 8am - 6pm

Telephone

+19735448372

Website

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