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Congenital Hyperinsulinism International

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Congenital Hyperinsulinism International

CHI is dedicated to improving the lives of people living with Congenital Hyperinsulinism.
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CHI supports the greater congenital hyperinsulinism (HI) community by providing educational and support activities (such as conferences and forums), and representing our community’s interests. CHI is guided in its activities by an outstanding scientific advisory group which includes the leading HI clinicians and researchers.

05/30/2026

Meet Angela and Constantinos!

Angela is an HI mom to Constantinos in Greece. She shared her “7 things for June 7” to raise awareness for Global Hyperinsulinism Awareness Day.

This Global Hyperinsulinism Awareness Day (June 7), we’re inviting our community to share “7 Things for June 7” 💙

Together, we can bring attention to June 7 as Hyperinsulinism Awareness Day to spotlight life with HI.

DM or email ([email protected]) your 7 things with a photo or video to participate!

🔗 https://congenitalhi.org/global-hyperinsulinism-awareness-day/

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| Hyperinsulinism | Congenital | HI | Hypoglycemia | Rare Disease

05/29/2026

Meet a member of Team CHIbra: Pamela Weber-Leaf, CHI's Development Director! 🚴

Pam has done a tremendous job fundraising for our team! She shared this message with us: "I’m participating in the Million Dollar Bike Ride to raise awareness of hyperinsulinism, and to raise money for research that will help families facing the challenges of life with this rare and complex disease. Every dollar counts – so please, go the extra mile with me and support this important cause!" ⁠
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You can support Pam's fundraising page at https://charity.pledgeit.org/MillionDollarBikeRide/-weber-leaf 🔗⁠
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The Million Dollar Bike Ride is on June 13 in Philadelphia, PA, and for the 14th year, we are raising funds for congenital hyperinsulinism research! CHI is raising funds for crucial HI research through the Million Dollar Bike Ride: for the development of better diagnostic tests for timely HI detection, improved management tools, new treatments, and ultimately, to find a cure. ⁠
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05/28/2026

Meet Gayle and Avayah!

Gayle is an HI mother to almost 8-month-old Avayah. She shared her “7 Things for June 7” to raise awareness for hyperinsulinism, and each one is part of a powerful story.

This June 7, be part of the movement.
✨ Share your story
✨ Raise awareness
✨ Help others feel seen

DM or email ([email protected]) your 7 things with a photo or video to participate!

Add your voice this June 7.
🔗 https://congenitalhi.org/global-hyperinsulinism-awareness-day/

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| Hyperinsulinism | Congenital | HI | Hypoglycemia | Rare Disease

05/27/2026

05/26/2026

Meet Maureen!

Maureen is an HI mom and head of the organization Hyperinsulinisme Nederland & België. She shared her “7 things for June 7” to raise awareness for Global Hyperinsulinism Awareness Day.

This Global Hyperinsulinism Awareness Day (June 7), we’re inviting our community to share “7 Things for June 7” 💙

Together, we can bring attention to June 7 as Hyperinsulinism Awareness Day to spotlight life with HI.

DM or email ([email protected]) your 7 things with a photo or video to participate!

🔗 https://congenitalhi.org/global-hyperinsulinism-awareness-day/

| Hyperinsulinism | Congenital | HI | Hypoglycemia | Rare Disease

05/25/2026

Meet Marie-Elena and Gia!

Marie-Elena is Gia's mom. Gia is recently cured! She shared her “7 Things for June 7” to raise awareness for hyperinsulinism, and each one is part of a powerful story.

This June 7, be part of the movement.
✨ Share your story
✨ Raise awareness
✨ Help others feel seen

DM or email ([email protected]) your 7 things with a photo or video to participate!

Add your voice this June 7.
🔗 https://congenitalhi.org/global-hyperinsulinism-awareness-day/

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| Hyperinsulinism | Congenital | HI | Hypoglycemia | Rare Disease

05/24/2026

May is Mental Health Awareness Month. Congenital hyperinsulinism can impact HI families’ mental health due to various stressors, including medical, financial, and social anxieties, from unpredictable rare disease management. 💙

➡️ At the 2018 Congenital Hyperinsulinism Family Conference in Athens, Greece, CHI CEO Julie Raskin shared a presentation on the psychosocial difficulties associated with HI. You can view the presentation here:https://congenitalhi.org/wp-content/uploads/2018/09/H-Raskin-The-Psychosocial-burden-HI.pdf 🔗

| Hyperinsulinism | Congenital | HI | Hypoglycemia | Rare Disease

05/23/2026

💙 Join us at our next Family Conference!
📍 Marseille, France
🗓️ September 5–7, 2026

Congenital Hyperinsulinism International is excited to announce our 2026 Family Conference in Marseille, France. This is a wonderful opportunity to connect, learn, and build community with others impacted by hyperinsulinism.

Families, patients, clinicians, and researchers from around the world will come together to share knowledge, support one another, and move forward together.

✨ Don’t miss this powerful global gathering.

🔗 Learn more & stay updated:
https://congenitalhi.org/2026-family-conference-in-marseille/

| Hyperinsulinism | Congenital | HI | Hypoglycemia | Rare Disease

05/22/2026

Meet Julie 💙

As CHI’s CEO and HI mom to her son Ben, Julie’s connection to hyperinsulinism is both personal and powerful. For Global Hyperinsulinism Awareness Day, she’s sharing her “7 Things for June 7.”

Together, her 7 things tell a story of resilience, advocacy, and hope.

Now it’s your turn.
Join the “7 Things for June 7” campaign and help make hyperinsulinism visible around the world.

Share your story. Be heard. Make an impact.

🔗 Get involved:
https://congenitalhi.org/global-hyperinsulinism-awareness-day/

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| Hyperinsulinism | Congenital | HI | Hypoglycemia | Rare Disease

05/21/2026

Happy first birthday to Beren! 💙 We received this SWEET message: "Beren was diagnosed with hypoglycemia at birth after a routine glucose test due to my (mom’s) Type 1 diabetes. Beren is now 11 months old, stable on diazoxide, and thriving! :) We are so grateful for the support of the CHI community as we navigate this journey!" 🥳

| Hyperinsulinism | Congenital | HI | Hypoglycemia | Rare Disease

Address

Glen Ridge, NJ
07028

Opening Hours

Monday	8am - 6pm
Tuesday	8am - 6pm
Wednesday	8am - 6pm
Thursday	8am - 6pm
Friday	8am - 6pm

Telephone

+19735448372

Website

http://congenitalhi.org/

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