Team Maddie Strong - Fighting together

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NEW ACCOUNT.HER OLD ACCT WAS HACKED.Maddie was diagnosed with a rare form of brain/spine cancer.She also has a rare genetic mutation they can’t diagnois along with LiFraumeni.Her sister Avah was also diagnoised with LiFraumeni and one they can’t diagnois.

It was a crazy busy week … From Tornado Warnings and hanging out in the bathroom to lots of rain and wind . Had some deb...
06/14/2026

It was a crazy busy week … From Tornado Warnings and hanging out in the bathroom to lots of rain and wind . Had some debris in the yard luckily no damage . Flat tire to lots of appointments. Never a dull moment . Waiting for my surgeons to schedule my surgery. Got Maddies appts scheduled for Mott’s Children’s Hospital next month and another appointment later on . Lots of tests coming up for Hunter next month as well . Life is hard and I just pray we can catch a break soon. Definitely struggling with all aspects of life right now . Thank you for all the continued love and prayers . We appreciate it so much. Please keep the positive vibes and prayers coming. shuntlife

Very busy week full of appointments 😩 another day today for me. Talking to another surgeon about my surgery. I need to h...
06/11/2026

Very busy week full of appointments 😩 another day today for me. Talking to another surgeon about my surgery. I need to have two done but the drs are tryin to coordinate them together . Fingers crossed 🤞 it will all work out . But one day at a time Lots of daily struggles added to all the medical ones but one minute at a time is all we can do 🙏 Maddie is getting packed for camp . It’s her first time heading to Camp Catch a rainbow 🌈 she is super excited and I’m so happy she gets to go. I’m glad it worked out for her to go this year. I’m excited for her to experience Everything they have to offer for her . She keeps talking about the horse back riding they have . She is loving horses right now and I know this will be amazing for her . Her oncologist will be there along with others from the hospital. Familiar faces will be helpful for her ❤️ She’s been having a lot of head (shunt pain) and leg pain so I’m hoping it will be ok . I know they will know how to handle it if it happens there. When she gets back we have all the referral appts and second opinion appts lined up. Please continue to send positive vibes and prayers . Thank you for all your continued support .

06/05/2026

Happy 8th grade Graduation to my beautiful , strong and brave daughter ❤️ I am so very proud of you !! You are amazing and I know you will do great things !! Hunter is going into middle school and I know he will do amazing to. He is doing so well and has improved so much including getting top cougar this trimester . He has worked so hard . Avah is heading into 8th grade and she is doing amazing too. So much hard work and it has been shown this year as well. Growing up so fast and I can’t believe it . Happy last day to all 3 of you !! I love you to the moon and back .

06/05/2026

It has been a very busy and emotional week 🥹 today was the last day of school for the kids . I officially have a high schooler , an 8th grader and a 6th grader . I can’t believe today was the last day of Maddie attending Cross creek . She has been there since young 5s and it has been the best experience for us. They have helped her so much and she has come so far . It was definitely a bitter sweet day for all. Last night she officially graduated 8th grade and was presented with a compass with her name engraved on it for attending cross creek since she was in kindergarten. She is an inspiration for so many ❤️ she is my hero !! I will be posting more photos since Hunter had his last elementary party and he officially moves on to middle school. So many memories and so many emotions . Today they had a half day and we had to fly downtown to Lemmon Holton for Madison’s orthopedic oncologist appt and then another appointment for Avah . It was a long day , a long week but we did get some good news . Madison’s spot on her knee is healing , they are calling it A non-ossifying fibroma is a benign bone tumor of the osteoclastic, giant cell-rich tumor type.It generally occurs in the metaphysis of long bones in children and adolescents. We will continue to monitor it and she is being sent over to a knee specialist asap to see why she continues to have so much pain. So we will wait for that as well as the referrals for Mott’s and another specialist for her stomach/liver. Thank you for all the continued prayers and support . We appreciate it all so much . I will have my specialist appointments this week and next as well. To see what my spot is they found and talk about what’s next and also find out when I’m having surgery to remove my gallbladder . So many things going on and all we can do is take one moment at at time .

Been a busy weekend and week … filled with appointments, sport camps and last days of school. The kids are done on June ...
05/28/2026

Been a busy weekend and week … filled with appointments, sport camps and last days of school. The kids are done on June 4th. Hunter made Top cougar and I am so very proud of him . He has worked so hard for this and he did it !!! Also today I received an email from one of Maddie’s teachers which said this ,Hello! I took this picture of Madison today to celebrate the end of the year. I’ve enjoyed working with her very much, and wish her the best in high school. I can’t believe it’s her last year at Cross Creek. She’s been there since she was 5 years old . So many memories made 🥹 I will have a high school and I still can’t believe it !! She has come so far and is such an inspiration. She is a fighter that’s for sure . Next week we will be meeting with her orthopedic oncologist about her MRI results . Her leg is bothering her so much 😢 still waiting on referrals for neurosurgery and another specialist as well. Avah’s ultrasounds showed nothing but her kidneys stones and she will have her full body sedated MRIs in September. Maddies ultrasounds just came back today and she is stable , no change in her liver spots . She is also showing her kidneys stones as well . Which we know those don’t go away , speaking on experience 😩 She will have her full body sedated mris in August along with labs and oncology. We don’t know what the future holds on anything but all we can do is stay positive and pray 🙏 life is hard and we are definitely struggling in very single way right now . Bills are piling up and I feel like I can’t keep my head above water 💧 Everyday I try and I feel like I can’t get ahead . I know so many people are struggling in one form or another . All I can do is take one moment at a time. Please always be kind , you never know what someone is dealing with . We all have to stick together and help each other out if we can. If it’s a should to cry on , a gift card , a coffee , a bill paid , a hug or just to lend your ear to listen . Whatever it may be … just remember to stay strong !! Never give up !! I have to tell myself that every single day !! It’s a struggle but we can do it . We are Team Maddie Strong 💪

I am so unbelievably proud of this girl !! She has never done a longer MRI without sedation especially needing to have a...
05/23/2026

I am so unbelievably proud of this girl !! She has never done a longer MRI without sedation especially needing to have an IV . She is such a trooper, they had the team come down from vascular with the ultrasound and got the iv in and she didn’t even flinch. The mri will take about 50 minutes . She is so strong and brave !! My hero !!

Yesterday was a long day … both girls did amazing !! Avah’s ultrasounds came back good but Madison’s isn’t in yet . Avah...
05/23/2026

Yesterday was a long day … both girls did amazing !! Avah’s ultrasounds came back good but Madison’s isn’t in yet . Avah’s blood work is coming in slowly so I’m sure we will hear more about those next week . Madison didn’t need bloodwork since she got a bunch a couple weeks ago. Which her liver numbers were abnormal so we will see what her ultrasound shows . Madison will have her full body sedated mris in August and Avah will have hers in September. We will continue to do oncology, labs and ultrasounds every 3 months . Today Maddie will have an mri of her left leg, ankle and foot at 3pm. Please continue to pray and send positive vibes . Thank you so much !!

At the hospital with the girls for their Ultrasounds 🙏then labs and oncology. Both girls are hungry and want Starbucks 🧋...
05/22/2026

At the hospital with the girls for their Ultrasounds 🙏then labs and oncology. Both girls are hungry and want Starbucks 🧋instead of McDonald’s it’s now Starbucks on Hospital days . Moving up from Kids meals 😉 these days are so hard on everyone . Life is a struggle lately but one minute at a time. Thank you for all your continued love , prayers and support .

Tomorrow is another long day at the hospital for Madison and Avah 🎗️ both Girls will have their ultrasounds, labs and on...
05/22/2026

Tomorrow is another long day at the hospital for Madison and Avah 🎗️ both Girls will have their ultrasounds, labs and oncology appointments. Please send positive vibes and prayers ! Then on Saturday Maddie will be back at the hospital for a mri . Two very long anxiety filled days for us all 🙏😢

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