Dan's "Search for a Kidney" Side Quest

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Dan's "Search for a Kidney" Side Quest This page is to keep friends and family updated on Dan's quest for a new kidney. We will post regular updates and pictures and offer ways to help.

Join our squad on this crazy side quest! Love you all. - Lana

I'm horrible at this update thing. So much has been going on at once that I have totally forgotten about FB posts.Since ...
10/14/2026

I'm horrible at this update thing. So much has been going on at once that I have totally forgotten about FB posts.
Since my last post, we decided to go through the Cornell system and its been like night and day. His kidney team has been top notch and they have guided us every step of the way to figure out what else is going on. So far we know he autoimmune system is fighting something and we are working to figure out what that is. His eGFR has gone back down, which is not good so I'm continuing the process of getting evaluated (I thought I had more time so I paused the process). This morning we are headed to the hospital for an endoscopy and testing to figure out why he's so nauseous every morning. His gastroenterologist and nephrologist don't think it's due to his kidneys so we need to figure that out first. As if that's not enough, he also got a huge hemorrhage in his right eye a few weeks ago so he's been essentially blind in one eye, so next week he will be having surgery to fix that. But through all this we know we are immensely blessed and we see a light at the end of the tunnel. Love you all!

So this happened.Dan broke the 5th metatarsal in his right foot, simply by walking. They aren't going to do surgery beca...
08/10/2026

So this happened.
Dan broke the 5th metatarsal in his right foot, simply by walking. They aren't going to do surgery because we need to find out why this happened and the thought is all these symptoms (CKD, high blood pressure, neck pain, vomiting, and now brittle bones) are related somehow. So add Mr. Glass to the list (FYI I think that's one of M. Night Shymalans best work). Also for anyone in NYC, Orthopedic Assoc. Of Manahassatt has an urgent care after hours clinic for orthopedic emergencies!

Latest update!This kidney transplant journey feels almost like announcing a pregnancy, you are scared to do it too soon ...
05/25/2026

Latest update!

This kidney transplant journey feels almost like announcing a pregnancy, you are scared to do it too soon in case something happens or things change, which is why it’s been a while since my last update.

Here’s the long and short of it....
One of Dan's family members and myself happen to both be matches.

His family member is a confirmed and matched donor. She is the most amazing person and we are honored and full of gratitude to have her on this journey with us.

I am also going through all of the testing to be a viable donor just in case anything happens.

What a blessing!

Sadly though, Dan's Transplant committee convened Friday and made the decision to pause doing the transplant at this time until he has completed more testing.

The transplant was possibly going to have taken place at the end of July, but they want Dan to undergo further testing because what he’s enduring now is more severe than what they expected. They want to make sure that they are not missing any other underlying cause for the severity of his symptoms.

Their fear is that after the transplant, he will be placed on life-long immunosuppressant drugs which could cause an undiagnosed issue to become fatal. So his medical teams are taking more time to be cautious.

Though we know this is ultimately a good thing, it was devastating to know that he will have to deal with these symptoms much longer than expected, which was kind of a shock.

Better safe than sorry!

He is a trooper and a Boy Scout to the end. We are blessed to be able to hold on just a bit more.

Love,
The Perez Family
(the photo below is a pic of last years trip to Epic Universe with the whole fam including our 2 extra daughters. The beauty in the hoodie up front is Chris, Lilly's girlfriend for 4 years and the gorgina in green is Kat, Daniel's girlfriend of 3 years.)

We went and toured the dialysis training center Dan has to go to to train at in order to do his dialysis at home. This l...
04/02/2026

We went and toured the dialysis training center Dan has to go to to train at in order to do his dialysis at home. This little machine will be our new Johnny 5! It's incredible how far medicine has come to make people's lives as normal as possible and also how many amazing people you meet along the way.

Most of you know about Dan’s life long fight and victory overcoming his congenital heart defect. But just when we though...
03/29/2026

Most of you know about Dan’s life long fight and victory overcoming his congenital heart defect. But just when we thought his health struggles were over, last year we noticed that Dan’s health was slowly declining. Over that year while he was flying all around the country for a job he finally loved, he was battling one health issue after another. Every month he had to have shots in his eyes to help with chronic hemorrhages that impeded his vision. He ignored and worked through chronic fatigue and nausea that he kept hidden from his colleagues and friends. And this past January, after 2 hospitalizations, we were given the news that he was in Stage 4 kidney failure and that he would need to start on the road to a kidney transplant.

Hello friends and family! I started this page to share with everyone we love that our family journey has take a turn we ...
03/29/2026

Hello friends and family! I started this page to share with everyone we love that our family journey has take a turn we could never imagine. Dan is in stage 4 kidney failure and as of last week he is now on the list for a kidney transplant. Our hope is that we can find a living donor which will shorten his time in kidney failure and shorten the amount of time he will need to be on dialysis from years to possibly months. Once his microsite is up and running, we will post the site for anyone who would like to start the process to see if they are a match. But this page is also to keep everyone up to date with how he is doing and also to just bring everyone together and harness the positive energy of family and friends to help us get through this. Just you reading and sharing this page is more than enough and we send you lots of love and thanks for being a part of our family!

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600 Northern Blv-Suite 300
Great Neck, NY
11021

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