The Fibrolamellar Cancer Foundation

08/05/2026

Sadly, there is a Facebook post going around that is using the branding of the Fibrolamellar Cancer Foundation. It is called Alumni United…authored by Heather Phillips, Nancy Cross and Elizabeth Even.
They are selling T-shirts that say FCF Alumni. It is not us!! Please do not order from them.
We have nothing to do with this organization.

07/02/2026

REGISTRATION IS NOW OPEN!

FCF Patient & Family Gathering
Sept 18 - Sep 20, 2026
Lake Mansfield Trout Club
Stowe, Vermont

Click on the link to register:

Registration is now open for the Patient & Family Gathering to be held on September 18 – 20, 2026, at the Lake Mansfield Trout Club in Stowe, Vermont. This unique event brings together patients, families and caregivers dealing with fibrolamellar, helping them build connections and friendships with...

06/03/2026

Would you like to help fibrolamellar patients access clinical trials?

Participation in clinical trials can be critical for fibrolamellar carcinoma patients—but the cost of travel, lodging, and time away from work or school can prevent many from enrolling. FCF is working to reduce these barriers with its Clinical Trial Patient Assistance Program, which provides housing assistance for patients with financial need while they are participating in FCF‑sponsored trials.

Participation in clinical trials can be critical for fibrolamellar carcinoma patients—but the cost of travel, lodging, and time away from work or school can prevent many from enrolling. FCF is working to reduce these barriers with its Clinical Trial Patient Assistance Program, which provides housi...

04/20/2026

SAVE THE DATE!!!
FCF Patient & Family Gathering
Lake Mansfield Trout Club, Stowe, VT
Sept 18 - Sept 20, 2026

ON LINE REGISTRATION WILL OPEN JULY 2, 2026

04/07/2026

TONIGHT @ 7pm EST / 4pm PT is the FCF Hosted Webinar:

New Clinical Guidelines for Fibrolamellar Carcinoma (FLC) Released 📣
We’re glad to share that a landmark, evidence‑based clinical guideline for fibrolamellar carcinoma (FLC) has been released online ahead of publication in Hepatology. Developed by a panel of 20 expert physicians from 15 leading cancer centers, and supported by FCF, these guidelines are an important step forward for everyone affected by this rare cancer.
Because FLC is biologically different from other liver cancers, treatment decisions have long been confusing and inconsistent. These new guidelines bring together the best available medical evidence and the real‑world experience of doctors who treat many FLC patients, offering a clearer roadmap for diagnosis, treatment options, and supportive care.
The goal is to improve the consistency and quality of care, while empowering patients and caregivers to ask informed questions and actively participate in shared decision‑making with their medical teams. Ultimately, these guidelines aim to accelerate research progress and bring hope for better outcomes.
👉 Join the conversation
FCF is hosting a live Zoom panel discussion featuring several members of the team who authored the guidelines.
📅 Tuesday, April 7
⏰ 7:00 pm ET / 4:00 pm PT
🔗 Visit (https://fibrofoundation.org/new-clinical-guidelines-for.../) to learn more about the guidelines and register for the webinar

04/07/2026

Tomorrow....Tuesday, April 7
Webinar....
Don't forget to sign up!

New Clinical Guidelines for Fibrolamellar Carcinoma (FLC) Released 📣
We’re glad to share that a landmark, evidence‑based clinical guideline for fibrolamellar carcinoma (FLC) has been released online ahead of publication in Hepatology. Developed by a panel of 20 expert physicians from 15 leading cancer centers, and supported by FCF, these guidelines are an important step forward for everyone affected by this rare cancer.
Because FLC is biologically different from other liver cancers, treatment decisions have long been confusing and inconsistent. These new guidelines bring together the best available medical evidence and the real‑world experience of doctors who treat many FLC patients, offering a clearer roadmap for diagnosis, treatment options, and supportive care.
The goal is to improve the consistency and quality of care, while empowering patients and caregivers to ask informed questions and actively participate in shared decision‑making with their medical teams. Ultimately, these guidelines aim to accelerate research progress and bring hope for better outcomes.
👉 Join the conversation
FCF is hosting a live Zoom panel discussion featuring several members of the team who authored the guidelines.
📅 Tuesday, April 7
⏰ 7:00 pm ET / 4:00 pm PT
🔗 Visit (https://fibrofoundation.org/new-clinical-guidelines-for.../) to learn more about the guidelines and register for the webinar

A landmark, evidence‑based clinical guideline for the diagnosis and treatment of fibrolamellar carcinoma (FLC) has been released online ahead of publication i

04/01/2026

📣 New Clinical Guidelines for Fibrolamellar Carcinoma (FLC) Released 📣

We’re glad to share that a landmark, evidence‑based clinical guideline for fibrolamellar carcinoma (FLC) has been released online ahead of publication in Hepatology. Developed by a panel of 20 expert physicians from 15 leading cancer centers, and supported by FCF, these guidelines are an important step forward for everyone affected by this rare cancer.

Because FLC is biologically different from other liver cancers, treatment decisions have long been confusing and inconsistent. These new guidelines bring together the best available medical evidence and the real‑world experience of doctors who treat many FLC patients, offering a clearer roadmap for diagnosis, treatment options, and supportive care.

The goal is to improve the consistency and quality of care, while empowering patients and caregivers to ask informed questions and actively participate in shared decision‑making with their medical teams. Ultimately, these guidelines aim to accelerate research progress and bring hope for better outcomes.

👉 Join the conversation

FCF is hosting a live Zoom panel discussion featuring several members of the team who authored the guidelines.
📅 Tuesday, April 7
⏰ 7:00 pm ET / 4:00 pm PT
🔗 Visit (https://fibrofoundation.org/new-clinical-guidelines-for-flc-published/) to learn more about the guidelines and register for the webinar

A landmark, evidence‑based clinical guideline for the diagnosis and treatment of fibrolamellar carcinoma (FLC) has been released online ahead of publication i

12/01/2025

We’re excited to share that a landmark paper has just been published in Nature Medicine highlighting advances in targeted immunotherapy for fibrolamellar carcinoma (FLC).

The publication, “A Therapeutic Peptide Vaccine for Fibrolamellar Hepatocellular Carcinoma: A Phase 1 Trial,” reports on a novel vaccine treatment designed to train the immune system to recognize and attack FLC tumors. This vaccine targets the abnormal fusion protein found in nearly all FLC cases.

Key Highlights:
✅ The treatment appeared to be safe and well-tolerated
✅ 75% of patients mounted an immune response
✅ All responding patients achieved some disease control
✅ One-third of responding patients experienced dramatic, long-lasting tumor shrinkage—and remain cancer-free 3–5 years later!

This is the first time multiple cases of near-complete, durable responses have been reported in advanced FLC.

We are deeply grateful to the teams at Johns Hopkins University School of Medicine and St. Jude Children’s Research Hospital for their outstanding work, and proud that FCF helped make this clinical trial possible.
https://fibrofoundation.org/groundbreaking-flc-vaccine-study-published-in-nature-medicine/

11/11/2025

Another amazing Pig Gig in New Jersey! Thank you Glenn Alexander for 10 years of fundraising for The Fibrolamellar Cancer Foundation. We are so grateful! 💚💚💚💚