Sickle Cell Disease Association of America, Inc.

Sickle Cell Disease Association of America, Inc. The official page of the National Sickle Cell Disease Association of America, Inc. (SCDAA).
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SCDAA was founded in 1972 to give a national voice to the thousands of Americans across the country who live with sickle cell disease and their families What SCDAA does:

* Provide leadership on a national level to create awareness of the negative impact of sickle cell disease on the health, economic, social and educational well-being of the individual and his or her family and to create aware

ness of the requirements for resolution.

* Prepare and distribute substantive educational materials, written and visual, about the sickle cell disease problem for all relevant segments of our society.

* Organize and/or participate in national and regional educational conferences.

* Develop and promote the implementation of service programs that will be in the best interest of the affected population.

* Develop positions and promote favorable resolution of issues and activities that could have an adverse effect on sickle cell programs or the affected population.

* Assist in the organization and development of local chapters.

* Provide ongoing technical assistance to members and other interested groups or organizations.

* Encourage adequate support for research activities leading to improved treatment and eventual cure.

SCDAA is proud to commemorate Juneteenth alongside World Sickle Cell Day! Celebrating health, resilience and freedom – t...
06/19/2026

SCDAA is proud to commemorate Juneteenth alongside World Sickle Cell Day! Celebrating health, resilience and freedom – today and every day.

Have you tuned in to the World Sickle Cell Day Virtual 24-hour Sickle Cell Awareness and Action event yet? This event, c...
06/19/2026

Have you tuned in to the World Sickle Cell Day Virtual 24-hour Sickle Cell Awareness and Action event yet? This event, co-hosted by the Global Alliance of Sickle Cell Disease Organizations and Cayenne Wellness Center and Children's Foundation, is a powerful tool for bringing our global community together. This year's theme is "Closing the Survival Gap: Equity in Sickle Cell Disease." Make sure to pop in at 1 p.m. ET to hear from SCDAA President and CEO Regina Hartfield!

Register ➡️ https://buff.ly/S8sWZRB

Today is World Sickle Cell Day. 🩸There are over 100,000 individuals in the United States and millions globally who live ...
06/19/2026

Today is World Sickle Cell Day. 🩸

There are over 100,000 individuals in the United States and millions globally who live with sickle cell disease. Over the past few years, our community has seen unprecedented breakthroughs and dismaying setbacks. Through the highs and lows, we stand together in strength, hope and dedication as we show the world that .

💡 Please join us today as we shine the light on sickle cell. Comment to show us that you're in!

THANK YOU to everyone who joined us yesterday evening for our Sickletini Happy Hour event! We heard from inspirational s...
06/17/2026

THANK YOU to everyone who joined us yesterday evening for our Sickletini Happy Hour event! We heard from inspirational speakers, played fun games and enjoyed delicious beverages - but our work isn't over yet.

We can't continue our mission without your support, and right now, your support can take us even farther. Thanks to our generous donors, every dollar raised at bit.ly/Sickletini will be matched 2-for-1! Any amount helps us develop important programming and make a difference as we show the world that .

If you missed Sickletini or have been considering making a gift to SCDAA in honor of World Sickle Cell Day, now is the time. Turn your $1 into $3 by visiting bit.ly/Sickletini or scanning the QR code today!

Time is running out! ⏰️ The 2026 SCDAA National Abstract Competition closes on June 22 at 11:59 p.m. PT – that’s in just...
06/15/2026

Time is running out! ⏰️

The 2026 SCDAA National Abstract Competition closes on June 22 at 11:59 p.m. PT – that’s in just ONE WEEK. Make sure to submit your work before then for a chance to present at our Annual National Convention in October. 🔎

There will be NO EXTENSIONS, so please be sure to finish your submission as soon as possible.

Learn more ➡️ https://buff.ly/JFmuS8M

The SCDAA Q2 Advocacy Update has been published! Read more about the impact of our recent Advocacy Days on Capitol Hill ...
06/13/2026

The SCDAA Q2 Advocacy Update has been published! Read more about the impact of our recent Advocacy Days on Capitol Hill and get the latest updates on SCD legislation ➡️ https://buff.ly/YtvWmKS

World Sickle Cell Day is one week away! Are you ready to show the world that ? Share your story to help raise awareness...
06/12/2026

World Sickle Cell Day is one week away! Are you ready to show the world that ? Share your story to help raise awareness and get involved by joining our community at one or more of the below events.

SCDAA SICKLETINI HAPPY HOUR - June 16
Catch up with your community across the country and explore SCDAA's mission during this interactive virtual event.
🔗 https://buff.ly/pxmdy6p

SHINE THE LIGHT ON SICKLE CELL - June 19
Individuals and organizations will host and promote events, create compelling videos and social media campaigns and request that buildings be illuminated in red.
🔗 https://buff.ly/ngCTDoV

VIRTUAL 24-HOUR SICKLE CELL AWARENESS AND ACTION EVENT - June 19
Hosted by the Global Alliance of Sickle Cell Disease Organizations (GASCDO) and Cayenne Wellness Center and Children's Foundation, this 24-hour global broadcast highlights the voices of warriors, caregivers and medical professionals.
🔗 https://buff.ly/S8sWZRB

And/or, find an SCDAA member organization event near you ➡️ https://buff.ly/3SdAr63

Tell us in the comments how you're planning to recognize this important occasion!

06/10/2026

Welcome back to another year of Shine The Light on Sickle Cell! 🔴✨

Sickle Cell Warriors, caregivers, advocates, families, and supporters, we're excited to have you join us as we kick off our 8th year of raising awareness and building support for the Sickle Cell community.

This June 19th marks 18 years since World Sickle Cell Day was officially recognized by the United Nations. Together, we have an opportunity to educate, inspire, and bring attention to the millions of individuals and families impacted by Sickle Cell Disease and Trait.

There are so many ways to get involved. Host a community event, wear red, share educational resources, tell your story, create artwork, write a poem, or simply start a conversation. Every effort helps shine a brighter light on Sickle Cell.

As we prepare for June 19th, we invite you to start thinking about how you will participate this year. Stay tuned for campaign updates, resources, and ways to get involved.

Thank you for being part of this movement and for helping keep the light shining year after year.

Coming up soon! Register today to join the National Heart, Lung, and Blood Institute (NHLBI) and the Sickle Cell Disease...
06/10/2026

Coming up soon! Register today to join the National Heart, Lung, and Blood Institute (NHLBI) and the Sickle Cell Disease Association of America, Inc. (SCDAA) at the upcoming sickle cell disease community forum Research That Heals: Partnering with Patients to Transform SCD Care.
📅 June 25-26
📍 Hybrid (Rockville, Maryland, and virtual)
🔗 https://buff.ly/2xPsd0o

The free forum will be a crucial platform for engaging directly with the sickle cell disease (SCD) community, including individuals with SCD and their caregivers, healthcare providers and community-based organizations. During the forum, participants will discuss and develop solutions to enhance care and improve the quality of life for children and adults living with sickle cell disease.

Time is running out! ⏰️ The deadline to submit your sickle cell research to the 2026 SCDAA Abstract Competition is June ...
06/08/2026

Time is running out! ⏰️ The deadline to submit your sickle cell research to the 2026 SCDAA Abstract Competition is June 22. That's in just two weeks! Don't miss your chance to present at the Annual National Convention in October: https://buff.ly/2BnZs3d

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7240 Parkway Drive, Ste 180
Hanover, MD
21076

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