Neuromuscular Disease Support Organization

02/03/2022

NMDSO is now TaskForce Neuro.
This page will be closed down mid month.

11/19/2021

National Day of Giving is
Tuesday Nov 30th.
Please donate to NMDSO so we can continue to support those affected by a neuromuscular disease or disorder.
Donations are tax deductible

09/15/2021

Neuromuscular Disease Support Organization Announces new
EXECUTIVE DIRECTOR

Please join us in welcoming Mr. Grant DeHaven as NMDSO’s new Executive Director.
Grant DeHaven is a proud native of Petersburg, West Virginia. Since 2012, he has resided in New Bern, North Carolina and is the Director of Mission Assurance at MCAS Cherry Point. In this capacity, Grant is responsible for managing the protection of personnel, assets, infrastructure, and networks critical to the ex*****on of Department of Defense (DoD) mission essential functions. Additionally, he oversees installation emergency management and has managed numerous responses to all-hazard disasters.
Grant is a 2002 graduate of West Virginia Wesleyan College with Bachelor of Arts degrees in Political Science and History. He received his Master of Science in Criminal Justice from Eastern Kentucky University in 2004. While in graduate school, he was commissioned as a Second Lieutenant within the Military Intelligence Branch through the U.S. Army Reserve Officer Training Corps (ROTC) program.
In October of 2019 Grant joined NMDSO as a volunteer and founded the Bear Town Paddle Battles, which will continue as NMDSO’s annual paddle sport racing fundraising event in New Bern, NC, that attracts patrons from all over the eastern United States.
Mr. DeHaven is extremely passionate about advocating for people with neuromuscular diseases due to his own family’s experience with Huntington’s Disease. He brings many new ideas to the organization and we are excited to have Grant as our new Executive Director relieving our Founder, Sandi Sanderson who has moved to the Board of Directors and will continue to stay involved.
He enjoys staying active and spending plenty of time in the outdoors. His favorite hobbies include surfskiing, fishing, and swimming.

Sincerely, NMDSO Board of Directors

07/18/2021

A super day in New Bern for the BearTown Paddle Battles. Great weather, great racers in all categories. All thanks to our many sponsors and volunteers. We will do it again next year. All funds raised will be used to support individuals and families affected by a neuromuscular disease in our local communities.

05/24/2020

Now that things are opening up, Are you interested in attending a support group meeting??? MS, HUNTINGTON'S, PARKINSON'S, or another neuromuscular disease or disorder. Flexible times and days.
We follow CDC guidelines for safe assembly. Call our office at 252 733 0799 for more information.
Please Share with those who you think would be interested or would benefit.
Have a safe Memorial Day weekend. Don't forget those who have given their lives for our freedoms.

05/22/2020

Taken from a post from someone who suffers with MS..

I am not giving up, but I want to make others aware. A nap won't help. I am not lazy. I am on meds. I struggle with pain, mobility issues and fatigue every day. The most frustrating part is people look at me and say "It can't be that bad; you look fine." Despite the fact that my body is experiencing excruciating pain all over. I apologize if I miss events that I would love to attend. One day you'll understand my daily struggles. This disease affects me physically, mentally, and emotionally. I need your support, not your judgment.
With the post comes the following request:
"Please, be mindful of those and their families who are fighting 💜💜💜💜, Multiple Sclerosis💜Huntington's Disease 💚💜Parkinson's Diseases💜💛 ALS, AND OTHER LESS KNOW NEUROMUSCULAR DISEASES. Take time to understand there Challenges and support them as much as possible. Share this post or repost it to your page if youd like to show your support.

05/21/2020

Our office is open. If you or someone you know needs assistance call us. 252 733 0799
We are good listeners as well.

05/03/2020

Tuesday We May 5th is National Day of Giving. NMDSO has teamed with Firespring on their Matching Fund Initiative.
Visit https://now.firespring.com (copy and paste) and share a gift that will help those affected by a neuromuscular disease/disorder.

Raise more money with matching funds for your nonprofit this and connect with a global network of supporters. Register now.

04/19/2020

Our new office located at 925 East Main Street Suite 7, Havelock NC 28532. Open to serve as we "Follow the Need".

03/18/2020

NMDSO has teamed up with the Havelock Mustang Club to help those with a neurological and neuromuscular issues.