AliveAndKickn

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AliveAndKickn

To improve the lives of individuals and families affected by Lynch Syndrome and associated cancers through research, education, and screening.

06/01/2026

This is a milestone worth sharing.

NOUS-209, an investigational therapy designed to intercept cancer before it develops in Lynch syndrome carriers, has been granted FDA Fast Track Designation. The Phase 1b/2 results, the first clinical evidence of cancer interception in Lynch syndrome, were recently published in Nature Medicine.

For our community, this matters. Lynch syndrome carries up to an 80% lifetime cancer risk, and for most carriers, surveillance is still the primary management tool. Research in immunoprevention, stopping cancer from developing in the first place, is working toward a different future.

This program is still advancing toward a registration trial, but Fast Track status accelerates the FDA dialogue. Progress is being made.

AliveandKick'n will keep following this research and amplifying what it means for our community. https://lnkd.in/eFhP5jFg

05/12/2026

Look what we can accomplish together!

04/28/2026

Last call! Applications for the Living with Lynch Patient Workshop close THIS FRIDAY, May 1st.

Don't miss your chance to join us November 5–8, 2026 in Houston, TX, an experience built for Lynch syndrome patients and previvors, by people who get it.

🔗 Apply today at LivingWithLynch.org

04/20/2026

Calling all Lynch syndrome patients and previvors!

The application window for the 2026 Living With Lynch Patient Workshop is closing soon, don't miss your chance to apply by May 1st!

Every year, a small, carefully selected group of Lynch syndrome patients and previvors comes together for a weekend that many describe as life-changing. The connections made. The knowledge gained. The feeling of finally being truly understood.⁠

This fully funded weekend brings together our community for expert-led education, advocacy training, and the kind of community that only comes from being in a room full of people who truly get it.⁠
⁠
🔹 12–14 participants will be selected. ⁠
🔹 An application and interview process is required.⁠
⁠
If Lynch syndrome is part of your story, and you've been waiting for a sign, this is it. Apply today and take your first step. 💙⁠
⁠
👉 Apply now at LivingWithLynch.org
⁠

04/06/2026

Every year, a small, carefully selected group of Lynch syndrome patients and previvors comes together for a weekend that many describe as life-changing. The connections made. The knowledge gained. The feeling of finally being truly understood.⁠
⁠
Applications are now open for the 2026 Living with Lynch Patient Workshop in Houston, TX, November 5–8! This fully funded weekend brings together our community for expert-led education, advocacy training, and the kind of community that only comes from being in a room full of people who truly get it.⁠
⁠
🔹 12–14 participants will be selected. ⁠
🔹 An application and interview process is required.⁠
⁠
If Lynch syndrome is part of your story, and you've been waiting for a sign, this is it. Apply today and take your first step. 💙⁠
⁠
👉 Apply now at https://forms.gle/RfA6tVnLFrmKQUXw8 ⁠
⁠

03/22/2026

💙 Today is Lynch Syndrome Awareness Day and we're celebrating with some of the incredible people in our community who remind us every day why this work matters.

Regular screenings are one of the most powerful tools we have. For people living with Lynch syndrome, consistent surveillance can catch cancer early, or prevent it altogether. That's not just good medicine. That's lifesaving.

Know your risk. Get screened. Share this post. 💙

Tag someone who needs to hear this today.

03/22/2026

💙 Today is Lynch Syndrome Awareness Day and we want to make sure the men in our community know their risks too.

Lynch syndrome affects men and women differently and for men, that includes a higher risk of prostate cancer, in addition to colon, skin, and other cancers. Lynch syndrome is not a "colon cancer only" condition. It touches everyone.

Men, know your family history. Talk to your doctor. Get tested. 💙

03/22/2026

💙 Today is Lynch Syndrome Awareness Day and preventative screening is at the heart of what we advocate for every single day.

For Lynch syndrome previvors, people who carry a gene mutation but haven't had cancer, regular screening isn't just recommended. It can be the difference between catching something early and not catching it at all. Knowledge is power. Screening is action. 💙

If you haven't talked to your doctor about genetic testing, today is the day.

03/22/2026

💙 Today is Lynch Syndrome Awareness Day and one of the things we're most grateful for is this community.

A Lynch syndrome diagnosis can feel isolating. But it doesn't have to be. Connecting with others who truly understand your journey; the screenings, the uncertainty, the resilience; can be genuinely life changing. This community shows up for each other every single day.

You are not alone. 💙

03/22/2026

💙 Today is Lynch Syndrome Awareness Day and facts like this one are exactly why we show up every day.

Lynch syndrome is the most common inherited cause of colorectal and endometrial cancers, yet most people have never heard of it. Awareness changes that. Genetic testing changes that. Community changes that.

If you or someone you love has a history of these cancers, please talk to your doctor about hereditary cancer screening.
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PO Box 38
Haworth, NJ
07641

Website

http://www.aliveandkickn.org/

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