Turner Syndrome Foundation

Turner Syndrome Foundation Advocating for people affected by Turner syndrome. We can help! Turner Syndrome - Support the cause!

Join us for a day of summer fun, connection, and community! ☀️We're hosting our Turner Syndrome Community Summer Social ...
06/01/2026

Join us for a day of summer fun, connection, and community! ☀️

We're hosting our Turner Syndrome Community Summer Social on July 18th at Liberty Lake in Bordentown, NJ. This is a relaxed, welcoming day designed for girls and women living with Turner syndrome and their families.

Spend the day:
✨ Building friendships with people who truly understand
🏖️ Swimming, playing games, and enjoying the outdoors
💬 Connecting with other families and individuals with TS

Capacity is limited to help create a close-knit and supportive experience, so early registration is encouraged!

This event is free to attend for women and girls with TS, and tickets for family members are available to purchase. Tickets include access to all facilities and meals.

🎟️ Learn more and save your seat at https://turnersyndromefoundation.org/event/summer-social-at-liberty-lake-bordentown-nj/

We’re excited to share this new resource that will be sent to new individuals who connect with our community! A special ...
05/29/2026

We’re excited to share this new resource that will be sent to new individuals who connect with our community!

A special thank you to Adrianna for creating this guide for families and individuals on their journey.

If you’re looking to get connected to trusted resources, community, and support, be sure you're on our email list!

👉 Join our registry to access the full range of resources TSF has to offer: https://turnersyndromefoundation.org/research/registry/

Every student deserves the support they need to succeed, and for students with Turner syndrome, the right school accommo...
05/28/2026

Every student deserves the support they need to succeed, and for students with Turner syndrome, the right school accommodations can make all the difference. 📚

From understanding learning differences to implementing meaningful supports like 504 Plans and IEPs, creating an inclusive school experience starts with awareness and collaboration.

Any individual working in an educational environment is invited to join the TSF Education Working Group to collaborate on programs and resources to help students with TS access the support they need.

💡 Read more about the group at
https://turnersyndromefoundation.org/2026/04/13/shaping-better-school-experiences-for-students-with-turner-syndrome/

Reminder to get your tickets for the Miami Marlins vs. Tampa Rays game raising awareness of Turner syndrome on June 6th!...
05/27/2026

Reminder to get your tickets for the Miami Marlins vs. Tampa Rays game raising awareness of Turner syndrome on June 6th! 🎟️

After losing their daughter Ellis to Turner syndrome at 19 weeks gestation, Peter and Lydia Fairbanks turned their grief into purpose. This is the 3rd year that they have worked to raise awareness, support families, and help others feel less alone.

Another amazing aspect of this campaign is that for every strikeout by Peter Fairbanks this season, they will donate $200 to our mission in honor of Ellis. We are so grateful for this support!

✨ Get your tickets, grab exclusive merch, and be part of a powerful night of awareness and community. https://turnersyndromefoundation.org/event/fairbanks-strikeout-for-turner-syndrome-2/

We’re honored to be recognized as a 2026 Top-Rated Nonprofit by GreatNonprofits!This recognition is especially meaningfu...
05/26/2026

We’re honored to be recognized as a 2026 Top-Rated Nonprofit by GreatNonprofits!

This recognition is especially meaningful because it’s based on the voices of our community: patients, families, volunteers, and supporters who have shared their experiences and impact.

Thank you for being part of the Turner Syndrome Foundation and helping us continue our work in education, advocacy, research, and support.

✨ Want to leave us a review? Visit https://greatnonprofits.org/org/turner-syndrome-foundation

Starting college is a big transition, and for students with Turner syndrome, it can come with unique questions around su...
05/25/2026

Starting college is a big transition, and for students with Turner syndrome, it can come with unique questions around support, independence, and self-advocacy. 🎓

From navigating accommodations to building confidence and finding your community, preparation can make a meaningful difference.

Our latest blog shares practical advice and encouragement for girls with Turner syndrome as they take this next step.

✨ Read the blog and feel more prepared for the college journey:
https://turnersyndromefoundation.org/2026/04/09/advice-for-girls-with-turner-syndrome-on-going-to-college/

Expecting a baby with Turner syndrome? We hope you will join us for this live online event on Tuesday, May 26th!This is ...
05/24/2026

Expecting a baby with Turner syndrome? We hope you will join us for this live online event on Tuesday, May 26th!

This is a special event featuring moms whose daughters were diagnosed with Turner syndrome in utero. They’ll share their journeys through diagnosis, pregnancy, and beyond, and answer questions from the community live.

🗓 Tuesday, May 26
⏰ 8–9 PM EDT
📍 Virtual Event
📝 Registration required at https://turnersyndromefoundation.org/event/turner-syndrome-expectant-parent-panel/

If you’re navigating a prenatal diagnosis or want to support someone who is, we hope you’ll join us.

⚾ We're thrilled that the Fairbanks family and Miami Marlins are hosting a Turner Syndrome Community Day again this year...
05/23/2026

⚾ We're thrilled that the Fairbanks family and Miami Marlins are hosting a Turner Syndrome Community Day again this year! This event will be on June 6th for the Miami Marlins vs. Tampa Rays game.

Hosted by Peter and Lydia Fairbanks in honor of their daughter, Ellis, this special event supports the Turner Syndrome Foundation and raises awareness on a national scale for families navigating Turner syndrome diagnosis, care, and loss.

💙 Together, we can honor Ellis, support other families, and remind the Turner syndrome community that they are not alone.

Learn more and get tickets at https://turnersyndromefoundation.org/event/fairbanks-strikeout-for-turner-syndrome-2/

🧬 Did you know? Turner syndrome is caused by a random error in cell division during egg or s***m formation, or very earl...
05/22/2026

🧬 Did you know? Turner syndrome is caused by a random error in cell division during egg or s***m formation, or very early after fertilization. This is why, in fraternal twins, one twin may have TS while the other does not.

While this is rare, it is not unheard of, and this often leads to important questions for families about why this happens and what it means.

➡️ Learn more about Turner syndrome in twins and the role of chance in our latest blog:
https://turnersyndromefoundation.org/2026/04/01/turner-syndrome-in-twins-is-it-random/

Today is Bitcoin Pizza Day! 🍕Did you know Turner syndrome affects approximately 1 in 2,000 live female births, yet aware...
05/22/2026

Today is Bitcoin Pizza Day! 🍕

Did you know Turner syndrome affects approximately 1 in 2,000 live female births, yet awareness and specialized care gaps still exist?

This Bitcoin Pizza Day, you can help change that.

Crypto donations to the Turner Syndrome Foundation support awareness, education, research, and advocacy to support the TS community.

In honor of the first-ever Bitcoin purchase—two pizzas bought for 10,000 BTC in 2010—consider turning your crypto into meaningful impact for the TS community.

✨ Support the future of Turner syndrome care with a crypto donation easily through our website: https://turnersyndromefoundation.org/become-supporter/

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